Workshop registrant characteristics (registrants, N = 589/attendees, N = 472)
| Characteristic . | Value . |
|---|---|
| Connection to SCD Adult with SCD Parent/guardian of someone with SCD Partner/spouse of someone with SCD | 308 (52%) 240 (41%) 41 (7%) |
| Adult living with SCD (n = 308) | |
| Female sex Race Black/African American White Asian Other Age “I have participated in a clinical trial” | 70% 94% 1% 1% 4% Median, 34 y; range, 18-78 y 132 (43%) |
| Parent/guardian of someone with SCD (n = 240) “My child has participated in a clinical trial” | 79 (33%) |
| Characteristic . | Value . |
|---|---|
| Connection to SCD Adult with SCD Parent/guardian of someone with SCD Partner/spouse of someone with SCD | 308 (52%) 240 (41%) 41 (7%) |
| Adult living with SCD (n = 308) | |
| Female sex Race Black/African American White Asian Other Age “I have participated in a clinical trial” | 70% 94% 1% 1% 4% Median, 34 y; range, 18-78 y 132 (43%) |
| Parent/guardian of someone with SCD (n = 240) “My child has participated in a clinical trial” | 79 (33%) |