Demographics
| . | Congenital . | Cyclic . | Autoimmune/Idiopathic . | ||||
|---|---|---|---|---|---|---|---|
| Age, yr . | <18 . | ≥18 . | <18 . | ≥18 . | <18 . | ≥18 . | |
| Patients | 383 | 287 | 88 | 178 | 352 | 464 | |
| Age at last contact, yr | Median | 8.5 | 26.6 | 9.0 | 39.4 | 6.8 | 45.5 |
| Mean | 8.7 | 30.0 | 9.4 | 42.3 | 7.9 | 46.8 | |
| Range | (0.3-17.9) | (18.0-82.0) | (1.2-17.9) | (18.1-92.8) | (1.1-17.9) | (18.0-90.7) | |
| Years of clinical observation study | Median | 4.9 | 16.5 | 5.4 | 15.2 | 3.8 | 8.9 |
| Mean | 5.5 | 15.9 | 6.0 | 15.3 | 4.5 | 10.2 | |
| Range | (0-17.3) | (0-31.4) | (0-15.5) | (0.1-32.2) | (0-16.1) | (0-30.8) | |
| Years of observation by age | 2119 | 4552 | 526 | 2722 | 1582 | 4712 | |
| Total years of observation by diagnosis* | 6671 | 3248 | 6294 | ||||
| . | Congenital . | Cyclic . | Autoimmune/Idiopathic . | ||||
|---|---|---|---|---|---|---|---|
| Age, yr . | <18 . | ≥18 . | <18 . | ≥18 . | <18 . | ≥18 . | |
| Patients | 383 | 287 | 88 | 178 | 352 | 464 | |
| Age at last contact, yr | Median | 8.5 | 26.6 | 9.0 | 39.4 | 6.8 | 45.5 |
| Mean | 8.7 | 30.0 | 9.4 | 42.3 | 7.9 | 46.8 | |
| Range | (0.3-17.9) | (18.0-82.0) | (1.2-17.9) | (18.1-92.8) | (1.1-17.9) | (18.0-90.7) | |
| Years of clinical observation study | Median | 4.9 | 16.5 | 5.4 | 15.2 | 3.8 | 8.9 |
| Mean | 5.5 | 15.9 | 6.0 | 15.3 | 4.5 | 10.2 | |
| Range | (0-17.3) | (0-31.4) | (0-15.5) | (0.1-32.2) | (0-16.1) | (0-30.8) | |
| Years of observation by age | 2119 | 4552 | 526 | 2722 | 1582 | 4712 | |
| Total years of observation by diagnosis* | 6671 | 3248 | 6294 | ||||
Total years of observation by all diagnostic groups: 16 213.