Participants’ preferences regarding discussion of CHIP, disclosure of CHIP testing results, and potential support
| . | Not at all, n (%) . | A little bit, n (%) . | Somewhat, n (%) . | Quite a bit, n (%) . | Very much, n (%) . | Not available, n (%) . |
|---|---|---|---|---|---|---|
| How comfortable would you feel learning general information about CHIP in the following ways? | ||||||
| Print or written information | 25 (4.7) | 55 (10.4) | 89 (16.9) | 152 (28.8) | 179 (33.9) | 28 (5.3) |
| Web-based information | 22 (4.2) | 43 (8.1) | 111 (21.0) | 157 (29.7) | 161 (30.5) | 34 (6.4) |
| Computer kiosk touch screen in a clinic | 209 (39.6) | 105 (19.9) | 110 (20.8) | 35 (6.6) | 35 (6.6) | 34 (6.4) |
| Discussion with a nurse | 28 (5.3) | 39 (7.4) | 101 (19.1) | 163 (30.9) | 163 (30.9) | 34 (6.4) |
| Discussion with a primary care physician | 28 (5.3) | 34 (6.4) | 97 (18.3) | 157 (29.7) | 181 (34.2) | 31 (5.9) |
| Discussion with a cancer specialist such as an oncologist | 6 (1.1) | 5 (0.9) | 24 (4.5) | 130 (24.6) | 335 (63.4) | 28 (5.3) |
| If you were tested for CHIP, how comfortable would you be learning results through the following modes? | ||||||
| In-person disclosure of results | 9 (1.7) | 9 (1.7) | 39 (7.4) | 125 (23.7) | 316 (59.8) | 30 (5.7) |
| Disclosure of results by electronic means (email, portal, etc) | 100 (18.9) | 64 (12.1) | 126 (23.9) | 107 (20.3) | 104 (19.7) | 27 (5.1) |
| If you were found to have CHIP, how interested would you be in the following? | ||||||
| A clinical trial testing a medicine for CHIP | 77 (14.6) | 87 (16.5) | 173 (32.8) | 86 (16.3) | 64 (12.1) | 41 (7.8) |
| A proven medicine for CHIP (if there was one) | 17 (3.2) | 28 (5.3) | 79 (15.0) | 158 (29.9) | 204 (38.6) | 42 (8.0) |
| Yearly blood tests to follow CHIP and its possible complications | 12 (2.3) | 20 (3.8) | 80 (15.2) | 170 (32.3) | 206 (39.0) | 40 (7.6) |
| Lifestyle recommendations to reduce other risk factors that may be related to CHIP | 6 (1.1) | 13 (2.5) | 48 (9.1) | 156 (29.5) | 264 (50.0) | 41 (7.8) |
| Personalized heart/blood disease risk estimates considering age and ethnicity | 10 (1.9) | 21 (4.0) | 62 (11.7) | 153 (2.9) | 241 (45.6) | 41 (7.8) |
| Peer-support groups | 131 (24.8) | 103 (19.5) | 154 (29.2) | 59 (11.2) | 42 (8.0) | 39 (7.4) |
| Communication to keep you up to date with recommendations for managing CHIP | 8 (1.5) | 29 (5.5) | 74 (14.0) | 167 (31.6) | 206 (39.0) | 44 (8.3) |
| Meeting with a social worker or other mental health provider to help manage stress this diagnosis may cause | 105 (19.9) | 89 (16.9) | 137 (25.9) | 89 (16.9) | 66 (12.5) | 42 (8.0) |
| . | Not at all, n (%) . | A little bit, n (%) . | Somewhat, n (%) . | Quite a bit, n (%) . | Very much, n (%) . | Not available, n (%) . |
|---|---|---|---|---|---|---|
| How comfortable would you feel learning general information about CHIP in the following ways? | ||||||
| Print or written information | 25 (4.7) | 55 (10.4) | 89 (16.9) | 152 (28.8) | 179 (33.9) | 28 (5.3) |
| Web-based information | 22 (4.2) | 43 (8.1) | 111 (21.0) | 157 (29.7) | 161 (30.5) | 34 (6.4) |
| Computer kiosk touch screen in a clinic | 209 (39.6) | 105 (19.9) | 110 (20.8) | 35 (6.6) | 35 (6.6) | 34 (6.4) |
| Discussion with a nurse | 28 (5.3) | 39 (7.4) | 101 (19.1) | 163 (30.9) | 163 (30.9) | 34 (6.4) |
| Discussion with a primary care physician | 28 (5.3) | 34 (6.4) | 97 (18.3) | 157 (29.7) | 181 (34.2) | 31 (5.9) |
| Discussion with a cancer specialist such as an oncologist | 6 (1.1) | 5 (0.9) | 24 (4.5) | 130 (24.6) | 335 (63.4) | 28 (5.3) |
| If you were tested for CHIP, how comfortable would you be learning results through the following modes? | ||||||
| In-person disclosure of results | 9 (1.7) | 9 (1.7) | 39 (7.4) | 125 (23.7) | 316 (59.8) | 30 (5.7) |
| Disclosure of results by electronic means (email, portal, etc) | 100 (18.9) | 64 (12.1) | 126 (23.9) | 107 (20.3) | 104 (19.7) | 27 (5.1) |
| If you were found to have CHIP, how interested would you be in the following? | ||||||
| A clinical trial testing a medicine for CHIP | 77 (14.6) | 87 (16.5) | 173 (32.8) | 86 (16.3) | 64 (12.1) | 41 (7.8) |
| A proven medicine for CHIP (if there was one) | 17 (3.2) | 28 (5.3) | 79 (15.0) | 158 (29.9) | 204 (38.6) | 42 (8.0) |
| Yearly blood tests to follow CHIP and its possible complications | 12 (2.3) | 20 (3.8) | 80 (15.2) | 170 (32.3) | 206 (39.0) | 40 (7.6) |
| Lifestyle recommendations to reduce other risk factors that may be related to CHIP | 6 (1.1) | 13 (2.5) | 48 (9.1) | 156 (29.5) | 264 (50.0) | 41 (7.8) |
| Personalized heart/blood disease risk estimates considering age and ethnicity | 10 (1.9) | 21 (4.0) | 62 (11.7) | 153 (2.9) | 241 (45.6) | 41 (7.8) |
| Peer-support groups | 131 (24.8) | 103 (19.5) | 154 (29.2) | 59 (11.2) | 42 (8.0) | 39 (7.4) |
| Communication to keep you up to date with recommendations for managing CHIP | 8 (1.5) | 29 (5.5) | 74 (14.0) | 167 (31.6) | 206 (39.0) | 44 (8.3) |
| Meeting with a social worker or other mental health provider to help manage stress this diagnosis may cause | 105 (19.9) | 89 (16.9) | 137 (25.9) | 89 (16.9) | 66 (12.5) | 42 (8.0) |