Table 1. Caregiver-patient dyad... | American Society of Hematology

Table 1.

Caregiver-patient dyad characteristics (N = 63)

Variable	Level	n	%	Median	Mean	SD	Min	Max
Caregiver age at assessment	Continuous, y	63	100	54.0	52.9	12.2	20.0	79.0
Patient age at assessment∗	Continuous, y	63	100	55.7	54.1	12.7	20.2	73.5
Caregiver CCAT†	Continuous total score	63	100	11.0	11.1	4.0	5.0	24.0
Caregiver CCID‡	Continuous mean score	63	100	2.2	2.3	1.1	1.0	4.2
Caregiver sex	Male	15	24
	Female	48	76
Patient sex	Male	41	65
	Female	22	35
Caregiver race/ethnicity	White	50	79
	Latino	3	5
	White, Latino	3	5
	API	3	5
	API, Latino	2	3
	API, White	1	2
	Indian/Aleut/Eskimo	1	2
Patient race/ethnicity	White	55	87
	Black or African American	1	2
	Asian	5	8
	Unknown	2	3
Caregiver education	High school diploma/GED	7	11
	Vocational school or some college	8	13
	College degree	28	44
	Professional or graduate school	20	32
Patient education	Some high school	1	2
	High school diploma/GED	8	13
	Vocational school or some college	10	16
	College degree	25	40
	Professional or graduate school	19	30
Patient income	<$75 000	17	27
	≥$75 000	37	59
	Unknown	9	14
Caregiver income	<$75 000	21	33
	≥$75 000	39	62
	Unknown	3	5
Caregiver employment	Paid full-time	27	43
	Paid part-time	4	6
	Self-employed	4	6
	Student full-time	1	2
	Homemaker	6	10
	Unemployed, disabled	1	2
	Retired	14	22
	Unemployed, looking for work	1	2
	Unemployed, not looking for work	4	6
	Unknown	1	2
Patient employment	Paid full-time	17	27
	Paid part-time	2	3
	Self-employed	6	10
	Student full-time	2	3
	Homemaker	1	2
	Not employed-disabled	17	27
	Retired	11	17
	Unemployed, looking for work	1	2
	Unemployed, not looking for work	6	10
Ever seen at MSKCC	No	25	40
	Yes	38	60
Diagnosis	ECD	54	88
	Mixed ECD/LCH	7	11
	Mixed ECD/RDD	2	3

Variable	Level	n	%	Median	Mean	SD	Min	Max
Caregiver age at assessment	Continuous, y	63	100	54.0	52.9	12.2	20.0	79.0
Patient age at assessment∗	Continuous, y	63	100	55.7	54.1	12.7	20.2	73.5
Caregiver CCAT†	Continuous total score	63	100	11.0	11.1	4.0	5.0	24.0
Caregiver CCID‡	Continuous mean score	63	100	2.2	2.3	1.1	1.0	4.2
Caregiver sex	Male	15	24
	Female	48	76
Patient sex	Male	41	65
	Female	22	35
Caregiver race/ethnicity	White	50	79
	Latino	3	5
	White, Latino	3	5
	API	3	5
	API, Latino	2	3
	API, White	1	2
	Indian/Aleut/Eskimo	1	2
Patient race/ethnicity	White	55	87
	Black or African American	1	2
	Asian	5	8
	Unknown	2	3
Caregiver education	High school diploma/GED	7	11
	Vocational school or some college	8	13
	College degree	28	44
	Professional or graduate school	20	32
Patient education	Some high school	1	2
	High school diploma/GED	8	13
	Vocational school or some college	10	16
	College degree	25	40
	Professional or graduate school	19	30
Patient income	<$75 000	17	27
	≥$75 000	37	59
	Unknown	9	14
Caregiver income	<$75 000	21	33
	≥$75 000	39	62
	Unknown	3	5
Caregiver employment	Paid full-time	27	43
	Paid part-time	4	6
	Self-employed	4	6
	Student full-time	1	2
	Homemaker	6	10
	Unemployed, disabled	1	2
	Retired	14	22
	Unemployed, looking for work	1	2
	Unemployed, not looking for work	4	6
	Unknown	1	2
Patient employment	Paid full-time	17	27
	Paid part-time	2	3
	Self-employed	6	10
	Student full-time	2	3
	Homemaker	1	2
	Not employed-disabled	17	27
	Retired	11	17
	Unemployed, looking for work	1	2
	Unemployed, not looking for work	6	10
Ever seen at MSKCC	No	25	40
	Yes	38	60
Diagnosis	ECD	54	88
	Mixed ECD/LCH	7	11
	Mixed ECD/RDD	2	3

API, Asian/Pacific Islander; GED, graduate equivalency degree; LCH, Langerhans cell histiocytosis; Max, maximum; Min, minimum; MSKCC, Memorial Sloan Kettering Cancer Center; RDD, Rosai-Dorfman disease.

∗

Using the assessment date closest to that of the caregiver’s assessment.

†

The CCAT family communication subscale comprises 5 items scored on a 6-point Likert scale ranging from 1, “Strongly disagree” to 6, “Strongly Agree,” with higher scores reflective of poorer communication. The CCAT family communication subscale score is the total of all 5 responses.

‡

The CCID comprises 5 items scored on a 5-point Likert scale ranging from 1, “not at all” to 5, “to a large extent,” with higher scores indicative of poorer communication. The CCID total score is the average of all 5 responses.

View Large

This Feature Is Available To Subscribers Only