Table 1.

Study attributes and levels

Effect categoryAttributeLevels
Benefits Chance of no symptoms of SCD after treatment 90% (9/10)
80% (8/10)
60% (6/10)∗,
40% (4/10)∗,
No chance†  
Increase in life years after treatment 8 more years
4 more years
No increase 
Risks Chance of death within 1 y after treatment No chance
10% (1/10)
30% (3/10) 
Increase in lifetime cancer risk No increase
Not expected
Not known 
Effect categoryAttributeLevels
Benefits Chance of no symptoms of SCD after treatment 90% (9/10)
80% (8/10)
60% (6/10)∗,
40% (4/10)∗,
No chance†  
Increase in life years after treatment 8 more years
4 more years
No increase 
Risks Chance of death within 1 y after treatment No chance
10% (1/10)
30% (3/10) 
Increase in lifetime cancer risk No increase
Not expected
Not known 
∗

Only 1 of these levels was presented to each respondent as part of a scope test.

†

This level is associated with the “no gene therapy” alternative only.

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