Participant demographics
| Variable . | Patients (N = 20) . | Caregivers (N = 6) . | Clinicians (N = 9) . |
|---|---|---|---|
| Age, mean (SD, range) | 75 (5.9, 63-87) | 64 (13.7, 44-77) | 44 (11.7, 31-66) |
| Number of years in practice after completion of training, mean (SD, range) | _ | _ | 11 (10.0, 2-30) |
| Discipline, n (%) | |||
| Oncology physician | _ | _ | 5 (55.6%) |
| Advanced practice provider | _ | _ | 4 (44.4%) |
| Sex, n (%) | |||
| Male | 11 (55.0%) | 2 (33.3%) | 3 (33.3%) |
| Female | 9 (45.0%) | 4 (66.7%) | 6 (66.7%) |
| Ethnicity, n (%) | |||
| Not Hispanic or Latino | 16 (80.0%) | 5 (83.3%) | 9 (100.0%) |
| Unknown/not reported | 4 (20.0%) | 1 (16.7%) | 0 (0.0%) |
| Race, n (%) | |||
| White | 17 (85.0%) | 6 (100.0%) | 8 (88.9%) |
| Black or African American | 1 (5.0%) | 0 (0.0%) | 0 (0.0%) |
| Asian | (0.0%) | 0 (0.0%) | 1 (11.1%) |
| Unknown/not reported | 2 (10.0%) | 0 (0.0%) | 0 (0.0%) |
| Education, n (%) | |||
| High school or below | 6 (30.0%) | 0 (0.0%) | _ |
| Training after high school or at least some college/university | 1 (5.0%) | 3 (50.0%) | _ |
| College/university graduate | 6 (30.0%) | 2 (33.3%) | _ |
| Postgraduate level | 7 (35.0%) | 1 (16.7%) | _ |
| Marital status, n (%) | |||
| Married | 12 (60.0%) | 5 (83.3%) | _ |
| Single | 3 (15.0%) | 1 (16.7%) | _ |
| Widowed | 5 (25.0%) | 0 (0.0%) | _ |
| Employment status, n (%) | |||
| Employed | 1 (5.0%) | 3 (50.0%) | _ |
| Retired | 18 (90.0%) | 3 (50.0%) | _ |
| Homemaker | 1 (5.0%) | 0 (0.0%) | _ |
| Caregiver living with the patient, n (%) | |||
| Partner (spouse/significant other) | 11 (55.0%) | _ | _ |
| Grandchild/grandchildren | 1 (5.0%) | _ | _ |
| None | 8 (40.0%) | _ | _ |
| Caregiver who is not living with the patient, n (%) | |||
| Partner (spouse/significant other) | 2 (10.0%) | _ | _ |
| Child/children | 4 (20.0%) | _ | _ |
| None | 14 (70.0%) | _ | _ |
| Caregiver’s relationship to the patient, n (%) | |||
| Partner (spouse/significant other) | _ | 4 (66.7%) | _ |
| Child/children | _ | 2 (33.3%) | _ |
| Patient’s diagnosis, n (%) | |||
| AML | 11 (55.0%) | _ | _ |
| MDS | 9 (45.0%) | _ | _ |
| Initial treatment, n (%) | |||
| Intensive treatment | 5 (25.0%) | _ | _ |
| Lower intensity treatment | 13 (65.0%) | _ | _ |
| Best supportive care | 2 (10.0%) | _ | _ |
| AML risk group (2017 ELN), n (%) | |||
| Low or intermediate | 7 (35.0%) | _ | _ |
| High | 3 (15.0%) | _ | _ |
| Unknown | 1 (5.0%) | _ | _ |
| MDS IPSS-R score, n (%) | |||
| Low or intermediate | 5 (25.0%) | _ | _ |
| High | 4 (20.0%) | _ | _ |
| ECOG (KPS) performance status at time of visit, n (%) | |||
| 0 (90-100) | 3 (15.0%) | _ | _ |
| 1 (70-80) | 8 (40.0%) | _ | _ |
| 2 (50-60) | 7 (35.0%) | _ | _ |
| Not recorded | 2 (10.0%) | _ | _ |
| Cancer health literacy, n (%) | |||
| Adequate | 20 (100.0%) | 6 (100.0%) | _ |
| Variable . | Patients (N = 20) . | Caregivers (N = 6) . | Clinicians (N = 9) . |
|---|---|---|---|
| Age, mean (SD, range) | 75 (5.9, 63-87) | 64 (13.7, 44-77) | 44 (11.7, 31-66) |
| Number of years in practice after completion of training, mean (SD, range) | _ | _ | 11 (10.0, 2-30) |
| Discipline, n (%) | |||
| Oncology physician | _ | _ | 5 (55.6%) |
| Advanced practice provider | _ | _ | 4 (44.4%) |
| Sex, n (%) | |||
| Male | 11 (55.0%) | 2 (33.3%) | 3 (33.3%) |
| Female | 9 (45.0%) | 4 (66.7%) | 6 (66.7%) |
| Ethnicity, n (%) | |||
| Not Hispanic or Latino | 16 (80.0%) | 5 (83.3%) | 9 (100.0%) |
| Unknown/not reported | 4 (20.0%) | 1 (16.7%) | 0 (0.0%) |
| Race, n (%) | |||
| White | 17 (85.0%) | 6 (100.0%) | 8 (88.9%) |
| Black or African American | 1 (5.0%) | 0 (0.0%) | 0 (0.0%) |
| Asian | (0.0%) | 0 (0.0%) | 1 (11.1%) |
| Unknown/not reported | 2 (10.0%) | 0 (0.0%) | 0 (0.0%) |
| Education, n (%) | |||
| High school or below | 6 (30.0%) | 0 (0.0%) | _ |
| Training after high school or at least some college/university | 1 (5.0%) | 3 (50.0%) | _ |
| College/university graduate | 6 (30.0%) | 2 (33.3%) | _ |
| Postgraduate level | 7 (35.0%) | 1 (16.7%) | _ |
| Marital status, n (%) | |||
| Married | 12 (60.0%) | 5 (83.3%) | _ |
| Single | 3 (15.0%) | 1 (16.7%) | _ |
| Widowed | 5 (25.0%) | 0 (0.0%) | _ |
| Employment status, n (%) | |||
| Employed | 1 (5.0%) | 3 (50.0%) | _ |
| Retired | 18 (90.0%) | 3 (50.0%) | _ |
| Homemaker | 1 (5.0%) | 0 (0.0%) | _ |
| Caregiver living with the patient, n (%) | |||
| Partner (spouse/significant other) | 11 (55.0%) | _ | _ |
| Grandchild/grandchildren | 1 (5.0%) | _ | _ |
| None | 8 (40.0%) | _ | _ |
| Caregiver who is not living with the patient, n (%) | |||
| Partner (spouse/significant other) | 2 (10.0%) | _ | _ |
| Child/children | 4 (20.0%) | _ | _ |
| None | 14 (70.0%) | _ | _ |
| Caregiver’s relationship to the patient, n (%) | |||
| Partner (spouse/significant other) | _ | 4 (66.7%) | _ |
| Child/children | _ | 2 (33.3%) | _ |
| Patient’s diagnosis, n (%) | |||
| AML | 11 (55.0%) | _ | _ |
| MDS | 9 (45.0%) | _ | _ |
| Initial treatment, n (%) | |||
| Intensive treatment | 5 (25.0%) | _ | _ |
| Lower intensity treatment | 13 (65.0%) | _ | _ |
| Best supportive care | 2 (10.0%) | _ | _ |
| AML risk group (2017 ELN), n (%) | |||
| Low or intermediate | 7 (35.0%) | _ | _ |
| High | 3 (15.0%) | _ | _ |
| Unknown | 1 (5.0%) | _ | _ |
| MDS IPSS-R score, n (%) | |||
| Low or intermediate | 5 (25.0%) | _ | _ |
| High | 4 (20.0%) | _ | _ |
| ECOG (KPS) performance status at time of visit, n (%) | |||
| 0 (90-100) | 3 (15.0%) | _ | _ |
| 1 (70-80) | 8 (40.0%) | _ | _ |
| 2 (50-60) | 7 (35.0%) | _ | _ |
| Not recorded | 2 (10.0%) | _ | _ |
| Cancer health literacy, n (%) | |||
| Adequate | 20 (100.0%) | 6 (100.0%) | _ |