Sociodemographic information of adults and caregivers of children with SCD
| Total . | Adults . | Children∗ . | Combined . | |
|---|---|---|---|---|
| 168 (68.9%) . | 76 (31.1%) . | 244 . | ||
| Age of patient in years, mean (SD) | 33.2 (12.1) | 8.1 (4.7) | 25.4 (15.6) | |
| Sex of patient | Male | 64 (38.1%) | 40 (52.6%) | 107 (42.6%) |
| Female | 102 (60.7%) | 36 (47.4%) | 135 (56.6%) | |
| Other | 2 (1.2%) | 0 (0%) | 2 (0.8%) | |
| Race | Black/African American | 165 (98.2%) | 71 (93.4%) | 236 (96.7%) |
| Highest degree or level of school | High school graduate or less | 70 (42.4%) | 28 (54.9%) | 98 (45.4%) |
| Some college or beyond | 92 (55.8%) | 13 (25.5%) | 105 (48.6%) | |
| Prefer not to answer | 3 (1.8%) | 10 (19.6%) | 13 (6%) | |
| Relationship status | Married/living together | 51 (30.4%) | 12 (15.8%) | 63 (25.8%) |
| Unmarried | 108 (64.3%) | 50 (65.8%) | 158 (64.8%) | |
| Prefer not to say | 9 (5.4%) | 14 (18.4%) | 23 (8.4%) | |
| Difficulty paying monthly bills | Not very/not at all | 67 (39.9%) | 38 (50%) | 105 (43.0%) |
| Somewhat/very | 98 (58.3%) | 38 (50%) | 136 (55.7%) | |
| Prefer not to say | 3 (1.8%) | 0 (0) | 3 (1.2%) | |
| Site | Chicago | 14 (8.3%) | 76 (100%) | 90 (36.9%) |
| OSU | 25 (14.9%) | 0 | 25 (10.2%) | |
| UCSF | 51 (30.4%) | 0 | 51 (20.9%) | |
| VUMC | 32 (19%) | 0 | 32 (13.1%) | |
| UTHSC | 46 (27.4%) | 0 | 46 (18.8%) | |
| Total . | Adults . | Children∗ . | Combined . | |
|---|---|---|---|---|
| 168 (68.9%) . | 76 (31.1%) . | 244 . | ||
| Age of patient in years, mean (SD) | 33.2 (12.1) | 8.1 (4.7) | 25.4 (15.6) | |
| Sex of patient | Male | 64 (38.1%) | 40 (52.6%) | 107 (42.6%) |
| Female | 102 (60.7%) | 36 (47.4%) | 135 (56.6%) | |
| Other | 2 (1.2%) | 0 (0%) | 2 (0.8%) | |
| Race | Black/African American | 165 (98.2%) | 71 (93.4%) | 236 (96.7%) |
| Highest degree or level of school | High school graduate or less | 70 (42.4%) | 28 (54.9%) | 98 (45.4%) |
| Some college or beyond | 92 (55.8%) | 13 (25.5%) | 105 (48.6%) | |
| Prefer not to answer | 3 (1.8%) | 10 (19.6%) | 13 (6%) | |
| Relationship status | Married/living together | 51 (30.4%) | 12 (15.8%) | 63 (25.8%) |
| Unmarried | 108 (64.3%) | 50 (65.8%) | 158 (64.8%) | |
| Prefer not to say | 9 (5.4%) | 14 (18.4%) | 23 (8.4%) | |
| Difficulty paying monthly bills | Not very/not at all | 67 (39.9%) | 38 (50%) | 105 (43.0%) |
| Somewhat/very | 98 (58.3%) | 38 (50%) | 136 (55.7%) | |
| Prefer not to say | 3 (1.8%) | 0 (0) | 3 (1.2%) | |
| Site | Chicago | 14 (8.3%) | 76 (100%) | 90 (36.9%) |
| OSU | 25 (14.9%) | 0 | 25 (10.2%) | |
| UCSF | 51 (30.4%) | 0 | 51 (20.9%) | |
| VUMC | 32 (19%) | 0 | 32 (13.1%) | |
| UTHSC | 46 (27.4%) | 0 | 46 (18.8%) | |
Data obtained from caregivers of children with SCD.