Participants’ clinical characteristics from clinical chart review
| Variable . | Frequency . | Percentage . |
|---|---|---|
| SCD type | ||
| Hb SS disease | 25 | 78.1 |
| Hb SC disease | 5 | 15.6 |
| Hb Sβthal0 | 2 | 6.3 |
| Received a red blood cell transfusion to treat an acute complication | 10 | 31.3 |
| Received chronic transfusion | 4 | 12.5 |
| Participant has been prescribed the following treatment | ||
| Folic acid | 29 | 90.6 |
| Hydroxyurea | 17 | 53.1 |
| Prophylactic penicillin or other antibiotics to prevent infection | 10 | 31.3 |
| Short-acting opioid analgesics | 24 | 75.0 |
| Long-acting opioid analgesics | 10 | 31.3 |
| Iron chelation medication | 9 | 28.1 |
| CPAP machine | 3 | 9.4 |
| Most common prescribed drugs from 483 records∗ | ||
| Short-acting opioid analgesics | 304 | 62.9 |
| Long-acting opioid analgesics | 68 | 14.1 |
| Antibiotics | 58 | 12.0 |
| Hydroxyurea | 49 | 10.1 |
| L-glutamine | 4 | 0.8 |
| Most common diagnosis for ED visits† | ||
| Acute pain crisis | 65 | 89.0 |
| Acute chest syndrome | 1 | 1.4 |
| Pneumonia | 1 | 1.4 |
| Other | 6 | 8.2 |
| Most common diagnosis for hospitalization from 73 records† | ||
| Acute pain crisis | 50 | 68.5 |
| Pneumonia | 3 | 4.1 |
| Acute chest syndrome | 2 | 2.7 |
| Heart disease (heart failure) | 1 | 1.4 |
| Other | 17 | 23.3 |
| Variable . | Frequency . | Percentage . |
|---|---|---|
| SCD type | ||
| Hb SS disease | 25 | 78.1 |
| Hb SC disease | 5 | 15.6 |
| Hb Sβthal0 | 2 | 6.3 |
| Received a red blood cell transfusion to treat an acute complication | 10 | 31.3 |
| Received chronic transfusion | 4 | 12.5 |
| Participant has been prescribed the following treatment | ||
| Folic acid | 29 | 90.6 |
| Hydroxyurea | 17 | 53.1 |
| Prophylactic penicillin or other antibiotics to prevent infection | 10 | 31.3 |
| Short-acting opioid analgesics | 24 | 75.0 |
| Long-acting opioid analgesics | 10 | 31.3 |
| Iron chelation medication | 9 | 28.1 |
| CPAP machine | 3 | 9.4 |
| Most common prescribed drugs from 483 records∗ | ||
| Short-acting opioid analgesics | 304 | 62.9 |
| Long-acting opioid analgesics | 68 | 14.1 |
| Antibiotics | 58 | 12.0 |
| Hydroxyurea | 49 | 10.1 |
| L-glutamine | 4 | 0.8 |
| Most common diagnosis for ED visits† | ||
| Acute pain crisis | 65 | 89.0 |
| Acute chest syndrome | 1 | 1.4 |
| Pneumonia | 1 | 1.4 |
| Other | 6 | 8.2 |
| Most common diagnosis for hospitalization from 73 records† | ||
| Acute pain crisis | 50 | 68.5 |
| Pneumonia | 3 | 4.1 |
| Acute chest syndrome | 2 | 2.7 |
| Heart disease (heart failure) | 1 | 1.4 |
| Other | 17 | 23.3 |
Data were obtained from clinical chart review for 12 months before enrollment.
CPAP, continuous positive airway pressure.
Analysis was performed on the basis of chart review for 483 prescription records during the 6 months before the enrollment period.
Analysis was performed based on chart review for 73 records from the 12 months before enrollment.