Patient and provider characteristics
| Socio-demographics and other characteristics . | Patients (n = 153)∗ . |
|---|---|
| Site, n (%) | |
| Site 1 | 14 (9.2) |
| Site 2 | 27 (17.6) |
| Site 3 | 22 (14.4) |
| Site 4 | 12 (7.8) |
| Site 5 | 17 (11.1) |
| Site 6 | 21 (13.7) |
| Site 7 | 16 (10.5) |
| Site 8 | 24 (15.7) |
| Age, mean (SD), y | 29.1 (6.8) |
| Age groups, n (%), y | |
| 18-24 | 45 (29.4) |
| 25-29 | 39 (25.5) |
| 30-34 | 34 (22.2) |
| 35-39 | 23 (15.0) |
| 40-45 | 12 (7.9) |
| Sex identity, n (%) | |
| Female | 99 (64.7) |
| Male | 54 (35.3) |
| Race, n (%) | |
| Asian | 1 (0.7) |
| Black or African American | 146 (95.4) |
| >1 race | 2 (1.3) |
| White | 3 (1.9) |
| Prefer not to say | 1 (0.7) |
| Ethnicity, n (%) | |
| Hispanic or Latino/Latina | 9 (5.9) |
| Not Hispanic or Latino/Latina | 142 (92.8) |
| Prefer not to answer | 2 (1.3) |
| SCD genotype, n (%) | |
| SS/Sβ0 | 110 (71.9) |
| Other | 43 (28.1) |
| Site with baseline IPP plans, n (%) | |
| Yes | 102 (66.7) |
| No | 51 (33.3) |
| Socio-demographics and other characteristics . | Patients (n = 153)∗ . |
|---|---|
| Site, n (%) | |
| Site 1 | 14 (9.2) |
| Site 2 | 27 (17.6) |
| Site 3 | 22 (14.4) |
| Site 4 | 12 (7.8) |
| Site 5 | 17 (11.1) |
| Site 6 | 21 (13.7) |
| Site 7 | 16 (10.5) |
| Site 8 | 24 (15.7) |
| Age, mean (SD), y | 29.1 (6.8) |
| Age groups, n (%), y | |
| 18-24 | 45 (29.4) |
| 25-29 | 39 (25.5) |
| 30-34 | 34 (22.2) |
| 35-39 | 23 (15.0) |
| 40-45 | 12 (7.9) |
| Sex identity, n (%) | |
| Female | 99 (64.7) |
| Male | 54 (35.3) |
| Race, n (%) | |
| Asian | 1 (0.7) |
| Black or African American | 146 (95.4) |
| >1 race | 2 (1.3) |
| White | 3 (1.9) |
| Prefer not to say | 1 (0.7) |
| Ethnicity, n (%) | |
| Hispanic or Latino/Latina | 9 (5.9) |
| Not Hispanic or Latino/Latina | 142 (92.8) |
| Prefer not to answer | 2 (1.3) |
| SCD genotype, n (%) | |
| SS/Sβ0 | 110 (71.9) |
| Other | 43 (28.1) |
| Site with baseline IPP plans, n (%) | |
| Yes | 102 (66.7) |
| No | 51 (33.3) |
| . | Providers (n = 135) . |
|---|---|
| Age (y), mean (SD) | 39.1 (9.3) |
| Gender identity, n (%) | |
| Female | 51 (37.8) |
| Male | 80 (59.2) |
| Prefer not to answer | 4 (3.0) |
| Race, n (%) | |
| Asian | 12 (9.0) |
| Black or African American | 5 (3.7) |
| >1 race | 3 (2.2) |
| White | 101 (75.4) |
| Prefer not to answer | 13 (9.7) |
| Profession | |
| Attending physician | 106 (78.5) |
| Nurse practitioner | 4 (3.0) |
| Resident physician | 20 (14.8) |
| Physician assistant | 5 (3.7) |
| . | Providers (n = 135) . |
|---|---|
| Age (y), mean (SD) | 39.1 (9.3) |
| Gender identity, n (%) | |
| Female | 51 (37.8) |
| Male | 80 (59.2) |
| Prefer not to answer | 4 (3.0) |
| Race, n (%) | |
| Asian | 12 (9.0) |
| Black or African American | 5 (3.7) |
| >1 race | 3 (2.2) |
| White | 101 (75.4) |
| Prefer not to answer | 13 (9.7) |
| Profession | |
| Attending physician | 106 (78.5) |
| Nurse practitioner | 4 (3.0) |
| Resident physician | 20 (14.8) |
| Physician assistant | 5 (3.7) |
Note, missing data not included in percentage calculations unless otherwise specified.