Table 3.

Example questions for exploring key preferences for EOL

Who they want to have involved in decision-making 
  • Who are the important people in your life?

  • If something serious happens, who should know what is happening?a

  • When I have medical updates to share with you, who would you like to have here with you?

    • - How would you like us to involve them in your care?

  • Who would be the best person to help the doctors make decisions if you are too sick to participate?a

    • - Have you and that person ever spoken about what would be most important to you if you were very sick?

 
Religion/spirituality 
  • Is religion/spirituality important to you?

  • Are you involved with a religious/spiritual community?

  • Serious illness can be hard on a person physically. I wonder how it's been for you spiritually as well.a

  • How may your faith affect how you make decisions about your health?

  • If discussing wanting a miracle:

    • - What does a miracle mean to you?

    • - I would welcome a miracle. What kinds of miracles are you thinking about?a

  • If patient/family says “It's in God's hands”

    • - What does that mean to you?

  • If patient/family says: “God will tell us”: Tell me about your relationship withGod.a

  • Are you at peace?a

 
Prior experiences with serious illness 
  • Have you ever experienced the loss of a loved one?

    • - What do you think about the EOL care they received?

  • Have you been with family or friends when EOL decisions were made?a

    • - What went well, and what could have been better?a

  • Every so often, someone suddenly gets very sick, and I can't talk to them. Have you ever been in this situation before?

    • Have you ever been very sick, needing to go to the ICU to receive life support or a (breathing tube or CPR)?

    • What was that like for you?

    • What went well, and what could have been better?

    • If you were in a similar situation in the future, would you do anything differently?

  • Do you have any experience with PC? Hospice care?

 
Who they want to have involved in decision-making 
  • Who are the important people in your life?

  • If something serious happens, who should know what is happening?a

  • When I have medical updates to share with you, who would you like to have here with you?

    • - How would you like us to involve them in your care?

  • Who would be the best person to help the doctors make decisions if you are too sick to participate?a

    • - Have you and that person ever spoken about what would be most important to you if you were very sick?

 
Religion/spirituality 
  • Is religion/spirituality important to you?

  • Are you involved with a religious/spiritual community?

  • Serious illness can be hard on a person physically. I wonder how it's been for you spiritually as well.a

  • How may your faith affect how you make decisions about your health?

  • If discussing wanting a miracle:

    • - What does a miracle mean to you?

    • - I would welcome a miracle. What kinds of miracles are you thinking about?a

  • If patient/family says “It's in God's hands”

    • - What does that mean to you?

  • If patient/family says: “God will tell us”: Tell me about your relationship withGod.a

  • Are you at peace?a

 
Prior experiences with serious illness 
  • Have you ever experienced the loss of a loved one?

    • - What do you think about the EOL care they received?

  • Have you been with family or friends when EOL decisions were made?a

    • - What went well, and what could have been better?a

  • Every so often, someone suddenly gets very sick, and I can't talk to them. Have you ever been in this situation before?

    • Have you ever been very sick, needing to go to the ICU to receive life support or a (breathing tube or CPR)?

    • What was that like for you?

    • What went well, and what could have been better?

    • If you were in a similar situation in the future, would you do anything differently?

  • Do you have any experience with PC? Hospice care?

 
a

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