Table 1.

Research themes from the Blue Sky Project

SustainabilityNewborn screeningMental healthUnderserved populations
Integrated comprehensive care model and treatment centers Expansion of genetic screening at birth for BDs  Increased access and improvements to services for people with BDs, leveraging technologies (eg, telehealth services) Women’s health including women with hemophilia 
Funding research designed to address the needs of the community, especially understudied populations including women, girls, and people with the propensity to menstruate and those with ultrarare BDs 
Increasing access to telehealth services 
Genetic counseling for BDs  Education and training for health care professionals Ultrarare BDs 
Platelet disorders 
SustainabilityNewborn screeningMental healthUnderserved populations
Integrated comprehensive care model and treatment centers Expansion of genetic screening at birth for BDs  Increased access and improvements to services for people with BDs, leveraging technologies (eg, telehealth services) Women’s health including women with hemophilia 
Funding research designed to address the needs of the community, especially understudied populations including women, girls, and people with the propensity to menstruate and those with ultrarare BDs 
Increasing access to telehealth services 
Genetic counseling for BDs  Education and training for health care professionals Ultrarare BDs 
Platelet disorders 

BDs represent inheritable BDs.

or Create an Account

Close Modal
Close Modal