Table 1.

Sample characteristics

TotalHU treatedNot HU treated
Patients, n (%) 3 032 (100) 614 (20.3) 2 418 (79.7) 
Sex, n (%)    
Male 1 471 (100) 353 (24) 1 118 (76) 
Female 1 561 (100) 261 (16.7) 1 300 (83.3) 
Age, n (%), y    
<18 1 746 (100) 362 (20.7) 1 384 (79.3) 
18-25 457 (100) 76 (16.6) 381 (83.4) 
>25 829 (100) 176 (21.2) 653 (78.8) 
Sickle genotype, n (%)    
HbSS/Sβ0-thalassemia 2 212 (100) 542 (24.5) 1 670 (75.5) 
HbSC, HbSD, or HbSβ+-thalassemia 820 (100) 72 (8.8) 748 (91.2) 
Use of deferasirox, n (%) 159 (100) 77 (48.4) 82 (51.6) 
Use of blood transfusions, n (%)    
Ambulatory 417 (100) 139 (33.3) 278 (66.7) 
ED 552 (100) 128 (23.2) 424 (76.8) 
Admission 215 (100) 56 (26) 159 (74) 
Total patients attending ambulatory clinic, n (%) 2 994 (100) 613 (20.5) 2 381 (79.5) 
Total patients presenting to the ED, n (%) 1 017 (100) 239 (23.5) 778 (76.5) 
Total patients admitted/hospitalized, n (%) 381 (100) 89 (23.4) 292 (76.6) 
Total costs ($) 8 124 266.90 3 703 382.50 4 420 884.40 
Total costs (ambulatory) 6 434 292.80 3 296 515.40 3 137 777.40 
Total costs (ED) 550 902.50 128 361.80 422 540.70 
Total costs (admission) 1 139 071.50 278 505.10 860 566.40 
TotalHU treatedNot HU treated
Patients, n (%) 3 032 (100) 614 (20.3) 2 418 (79.7) 
Sex, n (%)    
Male 1 471 (100) 353 (24) 1 118 (76) 
Female 1 561 (100) 261 (16.7) 1 300 (83.3) 
Age, n (%), y    
<18 1 746 (100) 362 (20.7) 1 384 (79.3) 
18-25 457 (100) 76 (16.6) 381 (83.4) 
>25 829 (100) 176 (21.2) 653 (78.8) 
Sickle genotype, n (%)    
HbSS/Sβ0-thalassemia 2 212 (100) 542 (24.5) 1 670 (75.5) 
HbSC, HbSD, or HbSβ+-thalassemia 820 (100) 72 (8.8) 748 (91.2) 
Use of deferasirox, n (%) 159 (100) 77 (48.4) 82 (51.6) 
Use of blood transfusions, n (%)    
Ambulatory 417 (100) 139 (33.3) 278 (66.7) 
ED 552 (100) 128 (23.2) 424 (76.8) 
Admission 215 (100) 56 (26) 159 (74) 
Total patients attending ambulatory clinic, n (%) 2 994 (100) 613 (20.5) 2 381 (79.5) 
Total patients presenting to the ED, n (%) 1 017 (100) 239 (23.5) 778 (76.5) 
Total patients admitted/hospitalized, n (%) 381 (100) 89 (23.4) 292 (76.6) 
Total costs ($) 8 124 266.90 3 703 382.50 4 420 884.40 
Total costs (ambulatory) 6 434 292.80 3 296 515.40 3 137 777.40 
Total costs (ED) 550 902.50 128 361.80 422 540.70 
Total costs (admission) 1 139 071.50 278 505.10 860 566.40 

HU, hydroxyurea; HbSS, homozygous sickle cell anemia; HbSC, hemoglobin SC disease; HbSD, hemoglobin SD disease.

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