The Data Hub SCD data quality report
| Summary of data set . | This submission . | Previous submission . |
|---|---|---|
| Total patient records (#) | ||
| Total encounter records (#) | ||
| Total patient records with at least 1 encounter (#) | ||
| Tables submitted | ||
| Tables not submitted | ||
| Total patient records with activity in the past 5 years (#) | ||
| Distribution of patients by time since last visit | ||
| <1 year | ||
| 1-2 years | ||
| 2-3 years | ||
| 3-4 years | ||
| 4-5 years | ||
| 5-10 years | ||
| >10 years | ||
| Timeliness and currency | ||
| Submission date | ||
| Previous submission date | ||
| Time between submissions (d) | ||
| Earliest encounter year | ||
| Latest encounter year | ||
| Uniqueness | ||
| Unique patients (#) | ||
| Unique patients/total patients (%) | ||
| Unique encounters (#) | ||
| Unique encounters/total encounters (%) | ||
| Unique providers (#) | ||
| Accuracy | ||
| Count of patients without 1+ dx code from SCD inclusion list (#) | ||
| Count of patients without 1+ dx code from SCD inclusion list/count of unique patients (%) | ||
| Count of conditions with end date earlier than start date (#) | ||
| Count of conditions with end date earlier than start date/total conditions (%) | ||
| Count of encounters with end date earlier than start date (#) | ||
| Count of encounters with end date earlier than start date/total encounters (%) | ||
| Count of measurements with non-null value_as_number and no unit_concept_id/total observations with non-null value_as_number (#) | ||
| Count of measurements with non-null value_as_number and no unit_concept_id/total observations with non-null value_as_number (%) | ||
| Investigator-verified SCD diagnosis | ||
| HbSC | ||
| HbSD | ||
| HbSE | ||
| HbSS | ||
| HbSBetaPlus | ||
| HbSBetaZero | ||
| HbSDeltaBetaZero | ||
| HbLepore | ||
| HbOArab | ||
| HbSOther | ||
| Diagnosis undocumented | ||
| No SCD diagnosis code present | ||
| Total | ||
| Summary of data set . | This submission . | Previous submission . |
|---|---|---|
| Total patient records (#) | ||
| Total encounter records (#) | ||
| Total patient records with at least 1 encounter (#) | ||
| Tables submitted | ||
| Tables not submitted | ||
| Total patient records with activity in the past 5 years (#) | ||
| Distribution of patients by time since last visit | ||
| <1 year | ||
| 1-2 years | ||
| 2-3 years | ||
| 3-4 years | ||
| 4-5 years | ||
| 5-10 years | ||
| >10 years | ||
| Timeliness and currency | ||
| Submission date | ||
| Previous submission date | ||
| Time between submissions (d) | ||
| Earliest encounter year | ||
| Latest encounter year | ||
| Uniqueness | ||
| Unique patients (#) | ||
| Unique patients/total patients (%) | ||
| Unique encounters (#) | ||
| Unique encounters/total encounters (%) | ||
| Unique providers (#) | ||
| Accuracy | ||
| Count of patients without 1+ dx code from SCD inclusion list (#) | ||
| Count of patients without 1+ dx code from SCD inclusion list/count of unique patients (%) | ||
| Count of conditions with end date earlier than start date (#) | ||
| Count of conditions with end date earlier than start date/total conditions (%) | ||
| Count of encounters with end date earlier than start date (#) | ||
| Count of encounters with end date earlier than start date/total encounters (%) | ||
| Count of measurements with non-null value_as_number and no unit_concept_id/total observations with non-null value_as_number (#) | ||
| Count of measurements with non-null value_as_number and no unit_concept_id/total observations with non-null value_as_number (%) | ||
| Investigator-verified SCD diagnosis | ||
| HbSC | ||
| HbSD | ||
| HbSE | ||
| HbSS | ||
| HbSBetaPlus | ||
| HbSBetaZero | ||
| HbSDeltaBetaZero | ||
| HbLepore | ||
| HbOArab | ||
| HbSOther | ||
| Diagnosis undocumented | ||
| No SCD diagnosis code present | ||
| Total | ||