Demographics
| Year . | 1 . | 2 . | 3 . | 4 . | 5 . | Mean . |
|---|---|---|---|---|---|---|
| No. of patients | 66 | 67 | 63 | 77 | 70 | 68.6 |
| Male (%) | 39 (59.1%) | 37 (55.2%) | 32 (50.8%) | 40 (51.9%) | 35 (50.0%) | 36.6 (53.4%) |
| Female (%) | 27 (40.9%) | 30 (44.7%) | 31 (49.2%) | 37 (48.1%) | 35 (50.0%) | 32.0 (46.6%) |
| No. of Visits | 358 | 483 | 622 | 550 | 541 | 511 |
| Male (%) | 152 (42.5%) | 257 (53.2%) | 267 (43.0%) | 222 (40.4%) | 204 (37.7%) | 220 (43.1%) |
| Female (%) | 206 (57.5%) | 226 (46.8%) | 355 (57.1%) | 328 (60.0%) | 337 (62.3%) | 290 (56.8%) |
| Age (Median years) | 29.8 | 30.0 | 30.4 | 30.4 | 30.8 | — |
| Disease Group | ||||||
| SS | 58 (87.9%) | 55 (82.0%) | 49 (77.8%) | 60 (77.9%) | 62 (88.6%) | 56.8 (82.8%) |
| SC | 7 (10.6%) | 6 (8.9%) | 8 (12.7%) | 10 (13.0%) | 3 (4.2%) | 6.8 (9.9%) |
| Sβ + THAL | — | 1 (1.4%) | 2 (3.2%) | 3 (3.9%) | 3 (4.3%) | 1.8 (2.6%) |
| SβO THAL | — | 4 (6.0%) | 2 (3.2%) | 3 (3.9%) | 1 (1.4%) | 2.0 (2.9%) |
| SO ARAB | 1 (1.5%) | 1 (1.5%) | 1 (1.6%) | 1 (1.3%) | 1 (1.4%) | 0.8 (1.2%) |
| SD | — | — | 1 (1.6%) | — | — | 0.4 (0.6%) |
| Ethnicity of Patients | ||||||
| African-American | 54 (81.8%) | 55 (82.1%) | 49 (77.8%) | 62 (80.5%) | 52 (74.3%) | 54.4 (79.3%) |
| Hispanic-American | 12 (18.2%) | 11 (16.4%) | 13 (20.6%) | 15 (19.5%) | 17 (24.3%) | 13.6 (19.8%) |
| Other | 0 | 1 (1.5%) | 1 (1.6%) | 0 | 1 (1.4%) | 0.6 (0.8%) |
| Ethnicity by Visits | ||||||
| African-American | 271 (75.7%) | 350 (72.5%) | 465 (74.7%) | 411 (74.7%) | 381 (70.2%) | 375.4 (73.5%) |
| Hispanic-American | 87 (24.3%) | 128 (26.5%) | 151 (24.3%) | 139 (25.3%) | 159 (29.4%) | 132.8 (25.9%) |
| Other | 0 | 4 (0.8%) | 5 (0.8%) | 0 | 1 (0.2%) | 2 (0.4%) |
| Year . | 1 . | 2 . | 3 . | 4 . | 5 . | Mean . |
|---|---|---|---|---|---|---|
| No. of patients | 66 | 67 | 63 | 77 | 70 | 68.6 |
| Male (%) | 39 (59.1%) | 37 (55.2%) | 32 (50.8%) | 40 (51.9%) | 35 (50.0%) | 36.6 (53.4%) |
| Female (%) | 27 (40.9%) | 30 (44.7%) | 31 (49.2%) | 37 (48.1%) | 35 (50.0%) | 32.0 (46.6%) |
| No. of Visits | 358 | 483 | 622 | 550 | 541 | 511 |
| Male (%) | 152 (42.5%) | 257 (53.2%) | 267 (43.0%) | 222 (40.4%) | 204 (37.7%) | 220 (43.1%) |
| Female (%) | 206 (57.5%) | 226 (46.8%) | 355 (57.1%) | 328 (60.0%) | 337 (62.3%) | 290 (56.8%) |
| Age (Median years) | 29.8 | 30.0 | 30.4 | 30.4 | 30.8 | — |
| Disease Group | ||||||
| SS | 58 (87.9%) | 55 (82.0%) | 49 (77.8%) | 60 (77.9%) | 62 (88.6%) | 56.8 (82.8%) |
| SC | 7 (10.6%) | 6 (8.9%) | 8 (12.7%) | 10 (13.0%) | 3 (4.2%) | 6.8 (9.9%) |
| Sβ + THAL | — | 1 (1.4%) | 2 (3.2%) | 3 (3.9%) | 3 (4.3%) | 1.8 (2.6%) |
| SβO THAL | — | 4 (6.0%) | 2 (3.2%) | 3 (3.9%) | 1 (1.4%) | 2.0 (2.9%) |
| SO ARAB | 1 (1.5%) | 1 (1.5%) | 1 (1.6%) | 1 (1.3%) | 1 (1.4%) | 0.8 (1.2%) |
| SD | — | — | 1 (1.6%) | — | — | 0.4 (0.6%) |
| Ethnicity of Patients | ||||||
| African-American | 54 (81.8%) | 55 (82.1%) | 49 (77.8%) | 62 (80.5%) | 52 (74.3%) | 54.4 (79.3%) |
| Hispanic-American | 12 (18.2%) | 11 (16.4%) | 13 (20.6%) | 15 (19.5%) | 17 (24.3%) | 13.6 (19.8%) |
| Other | 0 | 1 (1.5%) | 1 (1.6%) | 0 | 1 (1.4%) | 0.6 (0.8%) |
| Ethnicity by Visits | ||||||
| African-American | 271 (75.7%) | 350 (72.5%) | 465 (74.7%) | 411 (74.7%) | 381 (70.2%) | 375.4 (73.5%) |
| Hispanic-American | 87 (24.3%) | 128 (26.5%) | 151 (24.3%) | 139 (25.3%) | 159 (29.4%) | 132.8 (25.9%) |
| Other | 0 | 4 (0.8%) | 5 (0.8%) | 0 | 1 (0.2%) | 2 (0.4%) |