Mortality by year since diagnosis. Patients in this study (yellow line) are compared with those reported previously in the relevant references. Kaplan-Meier plot of survival. Data for comparison from Cunningham-Rundles and Bodian2 (pink line), Healy et al18 (blue line), UK actuarial life figures 2003—men (turquoise line), and UK actuarial life figures 2003—women (purple line); because these are based on data from birth, they are both adjusted to start from the mean age of onset in patients, for comparison with start of patient data.