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Journal Articles

Patient Education Interventions for Improving Self-Management in Adults with Hemoglobinopathies: A Systematic Review and Meta-Analysis

Maha Munawar, BSc, Richard Ward, MSc, MRCP, FRCPath, Kate Uchendu, BScN, MN, NP-Adult, Rouhi Fazelzad, BSc, MISt, Janet Papadakos, Kevin H. M. Kuo, MDMSc,FRCPC

Blood (2019) 134 (Supplement_1): 5783.

https://doi.org/10.1182/blood-2019-131718

Published: 2019

Journal Articles

Effect of Age on Healthcare Utilization in Patients with Sickle Cell

Nicholas Hamilton, Payal Desai, MD, Nita Williams, Mikaela D. Moore, BS, Andrew I. Schamess, MD

Blood (2019) 134 (Supplement_1): 1019.

https://doi.org/10.1182/blood-2019-127543

Published: 2019

Journal Articles

Value of Digital Patient Reported Outcomes (PROs) - Long-Term Management of Treatment Fatigue in Relapsed or Refractory Multiple Myeloma

Noa Biran, MD, Emre Yucel, PhD MSc, MBA, BSPharm, Robin Anthony Kouyaté, PhD, Gillian McGovern, MPH, Antoinette Schoenthaler, EdD, Olivia Durling, BS, Rashmi Unawane, MBBS, Andrew Schutt, MSc, Sumeet Panjabi, PhD

Blood (2019) 134 (Supplement_1): 3439.

https://doi.org/10.1182/blood-2019-123154

Published: 2019

Journal Articles

Feasibility of Electronic Monitoring of Daily Oral Medications in Adolescents with Sickle Cell Disease

Lori E Crosby, PsyD, Katherine M Kidwell, PhD, Aimee K Hildenbrand, PhD, Charles T. Quinn, MD, Meghan E Mcgrady, PhD

Blood (2019) 134 (Supplement_1): 4701.

https://doi.org/10.1182/blood-2019-125875

Published: 2019

Journal Articles

The Importance of Patients and Caregivers Education to Prevent Central Line Associated Bloodstream Infections in Children with Malignancies: A Single Center Experience

Alessandro Di Gangi, MD, Cecilia Maria Pini, MD, Francesco Baccelli, MD, Maria Vittoria Micheletti, MD, Giorgio Costagliola, MD, Sayla Bernasconi, MD PhD, Mariacristina Menconi, MD, Gabriella Casazza, MD

Blood (2018) 132 (Supplement 1): 5866.

https://doi.org/10.1182/blood-2018-99-118146

Published: 2018

Journal Articles

Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease

Cecelia Calhoun, MD MPHS, Lingzi Luo, MSW, MPH, Ana Baumann, PhD, Aimee James, PhD, Allison King, MD MPH, PhD

Blood (2018) 132 (Supplement 1): 2274.

https://doi.org/10.1182/blood-2018-99-113150

Published: 2018

Journal Articles

Health Related Stigma and Quality of Life in Adults with Sickle Cell Disease in Jamaica

Dominique Bulgin, BSN, RN, Paula Tanabe, PhD MSN, MPH, RN, FAEN, FAAN, Asnani Monika, DM, PhD, Christian Douglas, DrPH

Blood (2018) 132 (Supplement 1): 2285.

https://doi.org/10.1182/blood-2018-99-113263

Published: 2018

Journal Articles

County Level Surveillance of Sickle Cell Disease Population, Healthcare Utilization, and Fragmentation to Support Improvements in Access to Care

Susan T Paulukonis, MA, MPH, Elliott Vichinsky, MD, Marsha Treadwell, PhD, Mary Hulihan, PhD MPH

Blood (2017) 130 (Supplement 1): 3369.

https://doi.org/10.1182/blood.V130.Suppl_1.3369.3369

Published: 2017

Journal Articles

Caregiver Perceptions of Adolescent Self-Management Skills Predicts Higher Disease Knowledge Among Adolescents with SCD

Anjelica C Saulsberry, BS, Jason Hodges, PhD, Justin Williams, PhD, Megan Loew, MS, Sheila Anderson, RN, Audrey Cole, RN, Guolian Kang, PhD, Chen Li, MS, Robert Cronin, MD MS, Jerlym Porter, PhD MPH, Jane S Hankins, MD MS

Blood (2017) 130 (Supplement 1): 3350.

https://doi.org/10.1182/blood.V130.Suppl_1.3350.3350

Published: 2017

Journal Articles

Sickle Cell Patient Education: Assessment of the Emmi Electronic Teaching Module

Lewis L Hsu, MD PhD, Jennie Y Law, MD, Tammie Tam, BS

Blood (2017) 130 (Supplement 1): 5582.

https://doi.org/10.1182/blood.V130.Suppl_1.5582.5582

Published: 2017

Journal Articles

Provider Perspectives of Necessary Factors in Sickle Cell Disease Health Care Transition: Results from an Online Survey

Jerlym Porter, PhD MPH, Kathryn Russell, PhD, Rebecca Rupff, BA, Marsha Treadwell, PhD, Maria Ferris, MD MPH, PhD, Jane S Hankins, MD MS, Winfred Wang, MD

Blood (2017) 130 (Supplement 1): 2140.

https://doi.org/10.1182/blood.V130.Suppl_1.2140.2140

Published: 2017

Journal Articles

Transition Readiness Assessment of Adolescents with Sickle Cell Disease and Their Caretakers at the Sickle Cell Clinic in Kumasi, Ghana

Miriam Kwarteng-Siaw, BA, Vivian Paintsil, MD, Korankye Toboh Catherine, Amma Owusu-Ansah, MD MBBS, Nancy S. Green, MD

Blood (2017) 130 (Supplement 1): 4663.

https://doi.org/10.1182/blood.V130.Suppl_1.4663.4663

Published: 2017

Journal Articles

An Intensive Transition Navigator Intervention Improves Transition Readiness to Adult Care in Youth with Sickle Cell Disease

Deepa Manwani, MD, Lynn Davidson, MD, Ellen Silver, Rosy Chhabra, PsyD, Caterina Minniti, MD, Deepa Rastogi, MD, Maya Doyle, LCSW-R, PhD, Kerry A Morrone, MD, Ruth Stein, MD, Suzette Oyeku, MD MPH, Laurie Bauman, PhD

Blood (2017) 130 (Supplement 1): 4634.

https://doi.org/10.1182/blood.V130.Suppl_1.4634.4634

Published: 2017

Journal Articles

Habit, a Feasibility Trial to Improve Hydroxyurea Adherence, Improves Quality of Life in Youth with Sickle Cell Disease

Arlene Smaldone, PhD CPNP, Sally E. Findley, PhD, Deepa Manwani, MD, Haomiao Jia, PhD, Nancy S. Green, MD

Blood (2017) 130 (Supplement 1): 869.

https://doi.org/10.1182/blood.V130.Suppl_1.869.869

Published: 2017

Journal Articles

Factors Related to Iron Chelation Therapy Adherence in Young Adults with Thalassemia: A Framework from the Patient Perspective

Meghan Foe, Marsha J. Treadwell, PhD, Robert Yamashita, PhD, Ashutosh Lal, MD

Blood (2017) 130 (Supplement 1): 2080.

https://doi.org/10.1182/blood.V130.Suppl_1.2080.2080

Published: 2017

Journal Articles

Developing a Problem-Solving Intervention to Address Methods of Self-Management and Transition Challenges in Adolescents with Sickle Cell Disease: A Qualitative Investigation

Nicole Melita, MA, Yaminette Diaz-Linhart, LCSW, Patricia Kavanagh, MD, Amy Sobota, MD MPH

Blood (2017) 130 (Supplement 1): 2081.

https://doi.org/10.1182/blood.V130.Suppl_1.2081.2081

Published: 2017

Journal Articles

A Pilot Intervention to Improve Hydroxyurea Adherence in Youth with Sickle Cell Disease through Community Health Workers: The "Habit" Study

Nancy S. Green, MD, Deepa Manwani, MD, Luisa Soto, BA, Yina Castillo, AA, Karen Ireland, BA, Zhezhen Jin, PhD, Arlene Smaldone, PhD CPNP

Blood (2016) 128 (22): 1310.

https://doi.org/10.1182/blood.V128.22.1310.1310

Published: 2016

Journal Articles

Mobile Application Vs. Paper Pictorial Blood Assessment Chart to Track Menses in Young Women: A Randomized Cross-over Design

Amanda E. Jacobson, MD, Sara K. Vesely, PhD, Myra Christian-Rancy, Sarah H. O'Brien, MD MSc

Blood (2016) 128 (22): 1006.

https://doi.org/10.1182/blood.V128.22.1006.1006

Published: 2016

Journal Articles

Measuring Transition Readiness of Young Adults with Sickle Cell Disease Using the Transition Readiness Assessment Questionnaire

Lauren Brown, MD, Amy Sobota, MD MPH

Blood (2016) 128 (22): 3534.

https://doi.org/10.1182/blood.V128.22.3534.3534

Published: 2016

Journal Articles

Implementation of an Educational Intervention to Optimize Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease

Cecelia Calhoun, MD, Regina Abel, PhD, Hai Anh Pham, BA, Shomari Thompson, BS, Allison A King, MD MPH, PhD

Blood (2016) 128 (22): 3536.

https://doi.org/10.1182/blood.V128.22.3536.3536

Published: 2016

NARROW

Patient Education Interventions for Improving Self-Management in Adults with Hemoglobinopathies: A Systematic Review and Meta-Analysis

Effect of Age on Healthcare Utilization in Patients with Sickle Cell

Value of Digital Patient Reported Outcomes (PROs) - Long-Term Management of Treatment Fatigue in Relapsed or Refractory Multiple Myeloma

Feasibility of Electronic Monitoring of Daily Oral Medications in Adolescents with Sickle Cell Disease

The Importance of Patients and Caregivers Education to Prevent Central Line Associated Bloodstream Infections in Children with Malignancies: A Single Center Experience

Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease

Health Related Stigma and Quality of Life in Adults with Sickle Cell Disease in Jamaica

County Level Surveillance of Sickle Cell Disease Population, Healthcare Utilization, and Fragmentation to Support Improvements in Access to Care

Caregiver Perceptions of Adolescent Self-Management Skills Predicts Higher Disease Knowledge Among Adolescents with SCD

Sickle Cell Patient Education: Assessment of the Emmi Electronic Teaching Module

Provider Perspectives of Necessary Factors in Sickle Cell Disease Health Care Transition: Results from an Online Survey

Transition Readiness Assessment of Adolescents with Sickle Cell Disease and Their Caretakers at the Sickle Cell Clinic in Kumasi, Ghana

An Intensive Transition Navigator Intervention Improves Transition Readiness to Adult Care in Youth with Sickle Cell Disease

Habit, a Feasibility Trial to Improve Hydroxyurea Adherence, Improves Quality of Life in Youth with Sickle Cell Disease

Factors Related to Iron Chelation Therapy Adherence in Young Adults with Thalassemia: A Framework from the Patient Perspective

Developing a Problem-Solving Intervention to Address Methods of Self-Management and Transition Challenges in Adolescents with Sickle Cell Disease: A Qualitative Investigation

A Pilot Intervention to Improve Hydroxyurea Adherence in Youth with Sickle Cell Disease through Community Health Workers: The "Habit" Study

Mobile Application Vs. Paper Pictorial Blood Assessment Chart to Track Menses in Young Women: A Randomized Cross-over Design

Measuring Transition Readiness of Young Adults with Sickle Cell Disease Using the Transition Readiness Assessment Questionnaire

Implementation of an Educational Intervention to Optimize Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease

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American Society of Hematology

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American Society of Hematology

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