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Journal Articles

Value of Prophylactic Plasma Treatment and Incidence of Acute Episodes in Patients Enrolled in the International Hereditary Thrombotic Thrombocytopenic Purpura Registry

Blood (2023) 142 (Supplement 1): 691.

https://doi.org/10.1182/blood-2023-184580

Published: 2023

Journal Articles

Evaluating the Impact of Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) on Patients: A Patient Reported Outcomes (PROs) Study

Azra Borogovac, Honieh Sowdagar, Julia Naifeh, Marissa Schraner, Johanna A. Kremer Hovinga, Devon Mack, Sara Vesely, James N. George, Deirdra Terrell

Blood (2023) 142 (Supplement 1): 3756.

https://doi.org/10.1182/blood-2023-190338

Published: 2023

Journal Articles

Pregnancy-Related Outcomes in Patients with Congenital Thrombotic Thrombocytopenic Purpura: Post Hoc Analysis of a Retrospective Chart Review Study

PAUL Coppo, Marie Scully, Johanna A. Kremer Hovinga, Maria Jose Aragon, Parth Patwari, Linda T. Wang, Bjorn Mellgard, Olulade Ayodele, Ragy Saad

Blood (2023) 142 (Supplement 1): 1261.

https://doi.org/10.1182/blood-2023-189181

Published: 2023

Journal Articles

Clinical Outcomes of Congenital Thrombotic Thrombocytopenic Purpura: A Multinational Chart Review Study

PAUL Coppo, Marie Scully, Johanna A. Kremer Hovinga, Maria Jose Aragon, Parth Patwari, Linda T. Wang, Bjorn Mellgard, Olulade Ayodele, Ragy Saad

Blood (2023) 142 (Supplement 1): 4006.

https://doi.org/10.1182/blood-2023-189416

Published: 2023

Journal Articles

Insight into the Natural History of Hereditary Thrombotic Thrombocytopenic Purpura: Short- and Long-Term Outcomes in a Longitudinally Followed Large Patient Cohort of the International Hereditary TTP Registry

Blood (2023) 142 (Supplement 1): 4003.

https://doi.org/10.1182/blood-2023-185053

Published: 2023

Journal Articles

“Hermes” - Hemophilia Related Mental Illness: A Cross-Sectional, Multicenter Study in Switzerland

Francesca Schmitt, Laura Aliena Maier, Manuela Albisetti, Alice Trinchero, Lukas Graf, Heinz Hengartner, Pierre Fontana, Nicolas von der Weid, Katrin Scheinemann, Sylvia von Mackensen, Stefan Lerch, Corinna Reichl, Ines Mürner-Lavanchy, Johanna A. Kremer Hovinga, Michael Kaess, Mutlu Kartal-Kaess

Blood (2023) 142 (Supplement 1): 3741.

https://doi.org/10.1182/blood-2023-189771

Published: 2023

Journal Articles

A Role of Immunothrombosis in Acquired Antibody-Mediated Thrombophilia's: Classical Complement and Neutrophil Activation in APS and HIT

Annina Capraru, Tiphaine Ruggeri, Noelia Schärz, Laura Delvasto-Nunez, Justine Brodard, Gerard van Mierlo, Johanna A. Kremer Hovinga Strebel, Anne Angelillo-Scherrer, Ilse Jongerius, Sacha Sergio Zeerleder

Blood (2022) 140 (Supplement 1): 8368–8370.

https://doi.org/10.1182/blood-2022-164592

Published: 2022

Journal Articles

The Role of ADAMTS13 Activity Levels on Disease Exacerbation or Relapse in Patients with Immune-Mediated Thrombotic Thrombocytopenic Purpura: Post Hoc Analysis of the Phase 3 HERCULES and Post-HERCULES Studies

Johanna A. Kremer Hovinga Strebel, Javier de la Rubia, Katerina Pavenski, Ara Metjian, Paul Knoebl, Flora Peyvandi, Spero Cataland, PAUL Coppo, Umer Khan, Laurel A. Menapace, Ana Paula Marques, Sriya Gunawardena, Marie Scully

Blood (2022) 140 (Supplement 1): 5651–5653.

https://doi.org/10.1182/blood-2022-156306

Published: 2022

Journal Articles

Neonatal Exchange Transfusion: When Should We Think about Hereditary Thrombotic Thrombocytopenic Purpura (hTTP)?

Erika Tarasco, Kenneth D. Friedman, James N. George, Paul Knöbl, Ingrid Hrachovinova, Masanori Matsumoto, Reinhard Schneppenheim, Anne Sophie Von Krogh, Bernhard Lammle, Johanna A. Kremer Hovinga Strebel

Blood (2022) 140 (Supplement 1): 336–337.

https://doi.org/10.1182/blood-2022-168612

Published: 2022

Journal Articles

Prevalence of neuropsychiatric symptoms and stroke in patients with hereditary thrombotic thrombocytopenic purpura

Azra Borogovac, Erika Tarasco, Johanna A. Kremer Hovinga, Kenneth D. Friedman, Adam S. Asch, Sara K. Vesely, Calin I. Prodan, Deirdra R. Terrell, James N. George

Blood (2022) 140 (7): 785–789.

https://doi.org/10.1182/blood.2022016044

Published: 2022

Includes: Supplemental data

Journal Articles

Cerebral venous thrombosis due to vaccine-induced immune thrombotic thrombocytopenia after a second ChAdOx1 nCoV-19 dose

Katarzyna Krzywicka, Anita van de Munckhof, Julian Zimmermann, Felix J. Bode, Giovanni Frisullo, Theodoros Karapanayiotides, Bernd Pötzsch, Mayte Sánchez van Kammen, Mirjam R. Heldner, Marcel Arnold, Johanna A. Kremer Hovinga, José M. Ferro, Diana Aguiar de Sousa, Jonathan M. Coutinho

Blood (2022) 139 (17): 2720–2724.

https://doi.org/10.1182/blood.2021015329

Published: 2022

Includes: Supplemental data

Journal Articles

Prevalence of Stroke and Cognitive Impairment in Patients with Hereditary Thrombotic Thrombocytopenic Purpura

Azra Borogovac, Erika Tarasco, Johanna A. Kremer Hovinga Strebel, Kenneth D. Friedman, Adam S. Asch, Sara K. Vesely, Calin I. Prodan, James N. George

Blood (2021) 138 (Supplement 1): 1008.

https://doi.org/10.1182/blood-2021-148714

Published: 2021

Journal Articles

Long-Term Safety and Efficacy of Caplacizumab for Acquired Thrombotic Thrombocytopenic Purpura (aTTP): The Post-HERCULES Study

Marie Scully, Javier de la Rubia, Katerina Pavenski, Ara Metjian, Paul Knoebl, Flora Peyvandi, Spero Cataland, Paul Coppo, Johanna A. Kremer Hovinga Strebel, Jessica Minkue Mi Edou, Rui de Passos Sousa, Filip Callewaert, Sriya Gunawardena, Julie Lin

Blood (2021) 138 (Supplement 1): 2080.

https://doi.org/10.1182/blood-2021-148839

Published: 2021

Journal Articles

Long-Term Renal Outcomes in Hereditary TTP Patients: Data from the International Hereditary TTP Registry

Erika Tarasco, Ralph Wendt, Anne Sophie von Krogh, Sibylle Tschumi, James N. George, Masanori Matsumoto, Paul Knöbl, Reinhard Schneppenheim, Bernhard Lämmle, other members of Hereditary TTP Registry Steering Committee, Johanna A. Kremer Hovinga Strebel

Blood (2021) 138 (Supplement 1): 770.

https://doi.org/10.1182/blood-2021-146128

Published: 2021

Journal Articles

Annual incidence and severity of acute episodes in hereditary thrombotic thrombocytopenic purpura

Erika Tarasco, Lukas Bütikofer, Kenneth D. Friedman, James N. George, Ingrid Hrachovinova, Paul N. Knöbl, Masanori Matsumoto, Anne Sophie von Krogh, Isabella Aebi-Huber, Zuzana Cermakova, Magdalena Górska-Kosicka, Katarzyna A. Jalowiec, Carlo R. Largiadèr, Zoltán Prohászka, György Sinkovits, Jerzy Windyga, Bernhard Lämmle, Johanna A. Kremer Hovinga

Blood (2021) 137 (25): 3563–3575.

https://doi.org/10.1182/blood.2020009801

Published: 2021

Includes: Supplemental data

Journal Articles

Redefining outcomes in immune TTP: an international working group consensus report

Adam Cuker, Spero R. Cataland, Paul Coppo, Javier de la Rubia, Kenneth D. Friedman, James N. George, Paul N. Knoebl, Johanna A. Kremer Hovinga, Bernhard Lӓmmle, Masanori Matsumoto, Katerina Pavenski, Flora Peyvandi, Kazuya Sakai, Ravi Sarode, Mari R. Thomas, Yoshiaki Tomiyama, Agnès Veyradier, John-Paul Westwood, Marie Scully

Blood (2021) 137 (14): 1855–1861.

https://doi.org/10.1182/blood.2020009150

Published: 2021

Includes: Supplemental data

Journal Articles

Safety of Caplacizumab in Patients Without Documented Severe ADAMTS13 Deficiency During the HERCULES Study

Javier De La Rubia, Flora Peyvandi, MD PhD, Marie Scully, Spero Cataland, MD, Paul Coppo, MD PhD, Johanna A. Kremer Hovinga, MD Prof, Paul Knoebl, MD, Ara Metjian, MD, Katerina Pavenski, MD, Hilde De Winter, MD, Rui de Passos Sousa, Filip Callewaert

Blood (2019) 134 (Supplement_1): 1093.

https://doi.org/10.1182/blood-2019-124004

Published: 2019

Journal Articles

Narratives of Patients with Fatal Outcomes During the Phase 2 TITAN and Phase 3 HERCULES Studies

Spero Cataland, MD, Marie Scully, Flora Peyvandi, MD PhD, Paul Knoebl, MD, Johanna A. Kremer Hovinga, MD Prof, Paul Coppo, MD PhD, Ara Metjian, MD, Javier De La Rubia, Katerina Pavenski, MD, Hilde De Winter, MD, Filip Callewaert

Blood (2019) 134 (Supplement_1): 4908.

https://doi.org/10.1182/blood-2019-123124

Published: 2019

Journal Articles

Acquired Hemophilia and Plasma Cell Neoplasms, a Rare Association

Katarzyna Aleksandra Jalowiec, Martin Andres, Behrouz Mansouri Taleghani, Anne Angelillo-Scherrer, MD PhD, Alicia Rovo, Johanna A. Kremer Hovinga, MD Prof

Blood (2019) 134 (Supplement_1): 4930.

https://doi.org/10.1182/blood-2019-128048

Published: 2019

Journal Articles

Efficacy of Caplacizumab in Patients with aTTP in the HERCULES Study According to Initial Immunosuppression Regimen

Katerina Pavenski, MD, Paul Knoebl, MD, Marie Scully, Johanna A. Kremer Hovinga, MD Prof, Paul Coppo, MD PhD, Flora Peyvandi, MD PhD, Spero Cataland, MD, Ara Metjian, MD, Javier De La Rubia, Hilde De Winter, MD, Rui de Passos Sousa, Filip Callewaert

Blood (2019) 134 (Supplement_1): 2365.

https://doi.org/10.1182/blood-2019-123126

Published: 2019

NARROW

Value of Prophylactic Plasma Treatment and Incidence of Acute Episodes in Patients Enrolled in the International Hereditary Thrombotic Thrombocytopenic Purpura Registry

Evaluating the Impact of Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) on Patients: A Patient Reported Outcomes (PROs) Study

Pregnancy-Related Outcomes in Patients with Congenital Thrombotic Thrombocytopenic Purpura: Post Hoc Analysis of a Retrospective Chart Review Study

Clinical Outcomes of Congenital Thrombotic Thrombocytopenic Purpura: A Multinational Chart Review Study

Insight into the Natural History of Hereditary Thrombotic Thrombocytopenic Purpura: Short- and Long-Term Outcomes in a Longitudinally Followed Large Patient Cohort of the International Hereditary TTP Registry

“Hermes” - Hemophilia Related Mental Illness: A Cross-Sectional, Multicenter Study in Switzerland

A Role of Immunothrombosis in Acquired Antibody-Mediated Thrombophilia's: Classical Complement and Neutrophil Activation in APS and HIT

The Role of ADAMTS13 Activity Levels on Disease Exacerbation or Relapse in Patients with Immune-Mediated Thrombotic Thrombocytopenic Purpura: Post Hoc Analysis of the Phase 3 HERCULES and Post-HERCULES Studies

Neonatal Exchange Transfusion: When Should We Think about Hereditary Thrombotic Thrombocytopenic Purpura (hTTP)?

Prevalence of neuropsychiatric symptoms and stroke in patients with hereditary thrombotic thrombocytopenic purpura

Cerebral venous thrombosis due to vaccine-induced immune thrombotic thrombocytopenia after a second ChAdOx1 nCoV-19 dose

Prevalence of Stroke and Cognitive Impairment in Patients with Hereditary Thrombotic Thrombocytopenic Purpura

Long-Term Safety and Efficacy of Caplacizumab for Acquired Thrombotic Thrombocytopenic Purpura (aTTP): The Post-HERCULES Study

Long-Term Renal Outcomes in Hereditary TTP Patients: Data from the International Hereditary TTP Registry

Annual incidence and severity of acute episodes in hereditary thrombotic thrombocytopenic purpura

Redefining outcomes in immune TTP: an international working group consensus report

Safety of Caplacizumab in Patients Without Documented Severe ADAMTS13 Deficiency During the HERCULES Study

Narratives of Patients with Fatal Outcomes During the Phase 2 TITAN and Phase 3 HERCULES Studies

Acquired Hemophilia and Plasma Cell Neoplasms, a Rare Association

Efficacy of Caplacizumab in Patients with aTTP in the HERCULES Study According to Initial Immunosuppression Regimen

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American Society of Hematology

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American Society of Hematology

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