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Journal Articles

Risk Factors for Joint Bleeding in Severe Hemophilia a and B: Analysis of the Community Counts Longitudinal Surveillance Cohort

Marilyn Manco-Johnson, Suchitra Acharya, Sanjay Ahuja, Meera Chitlur, Divyaswathi Citla Sridhar, Stacey Fedewa, Daniel Isaac, Roshni Kulkarni, Laura Schieve, Anjali A. Sharathkumar, Binh Le, Mike Soucie

Blood (2023) 142 (Supplement 1): 287.

https://doi.org/10.1182/blood-2023-179850

Published: 2023

Journal Articles

Trends in Invasive Orthopedic Interventions in Patients with Hemophilia Enrolled in the Community Counts Program (2015-2021)

Daniel Isaac, Roshni Kulkarni, Binh Le, Marilyn Manco-Johnson, Patricia Tobase, Mike Soucie

Blood (2023) 142 (Supplement 1): 5106.

https://doi.org/10.1182/blood-2023-181824

Published: 2023

Journal Articles

Multicenter, Randomized Crossover Trial Comparing Recombinant Von Willebrand Factor and Tranexamic Acid for Heavy Menstrual Bleeding in Von Willebrand Disease

Blood (2022) 140 (Supplement 1): 1413–1415.

https://doi.org/10.1182/blood-2022-156921

Published: 2022

Journal Articles

Efficacy of Efanesoctocog Alfa on Pain in Patients with Hemophilia A: Results from the XTEND-1 Phase 3 Clinical Trial in Previously Treated Patients with Hemophilia A

Amanda Wilson, Nana Kragh, Jerome Mshijid, Jennifer Dumont, Annemieke Willemze, Elena Santagostino, Chuanwu Zhang, Roshni Kulkarni, Annette von Drygalski, Pratima Chowdary

Blood (2022) 140 (Supplement 1): 5610–5611.

https://doi.org/10.1182/blood-2022-166849

Published: 2022

Journal Articles

Driving Change: Improving Diagnosis and Awareness of Heavy Menstrual Bleeding and Bleeding Disorders in Women and Girls Among Healthcare Providers

Rezan Abdul-Kadir, Ahmad Tarawah, Naveen Shridhar, Roshni Kulkarni

Blood (2022) 140 (Supplement 1): 2717–2718.

https://doi.org/10.1182/blood-2022-166777

Published: 2022

Journal Articles

Clinical and Treatment Characteristics of Infants and Toddlers Less Than Two Years of Age with Hemophilia: A Report from the Community Counts Registry

Jennifer H. Han, Brandi Dupervil, Roshni Kulkarni, Arash Mahajerin, Courtney D. Thornburg

Blood (2022) 140 (Supplement 1): 67–69.

https://doi.org/10.1182/blood-2022-158767

Published: 2022

Journal Articles

Mortality Trends Among Persons with Hemophilia in the United States, 2000-2021

Amanda B Payne, Binh Le, Meredith A Oakley, Brandi Dupervil, Marilyn J Manco-Johnson, Anjali Sharathkumar, Stacy E. Croteau, Rajiv K. Pruthi, Skye J Peltier, Norma Wolf, Roshni Kulkarni, Vanessa R Byams

Blood (2022) 140 (Supplement 1): 65–66.

https://doi.org/10.1182/blood-2022-163208

Published: 2022

Journal Articles

Characterization of Bleeding and Laboratory Phenotype of Carriers of Hemophilia and Trends of Utilization of Factor Concentrates and Hemostatic Therapies: Analysis of the National Athndataset

Neeraja Swaminathan, Brian Hu, Alison Currie, Roshni Kulkarni, Steven W. Pipe, Michael Recht, Peter A. Kouides, Anjali Sharathkumar

Blood (2022) 140 (Supplement 1): 59–60.

https://doi.org/10.1182/blood-2022-158861

Published: 2022

Journal Articles

Clinical Characteristics Impacting Health-Related Quality of Life in Persons with Von Willebrand Disease

Shannon L Carpenter, Joanne Wu, Jonathan C. Roberts, Roshni Kulkarni, Peter A. Kouides, Robert F. Sidonio, Jr., Barbara Konkle, Judith Baker, Megan M. Ullman, Randall Curtis, Nicole Crook, Michael B. Nichol

Blood (2022) 140 (Supplement 1): 5127–5128.

https://doi.org/10.1182/blood-2022-160463

Published: 2022

Journal Articles

First study of extended half-life rFVIIIFc in previously untreated patients with hemophilia A: PUPs A-LONG final results

Christoph Königs, Margareth C. Ozelo, Amy Dunn, Roshni Kulkarni, Beatrice Nolan, Simon A. Brown, Michele Schiavulli, Sriya Gunawardena, Sutirtha Mukhopadhyay, Deepthi Jayawardene, Bent Winding, Manuel Carcao

Blood (2022) 139 (26): 3699–3707.

https://doi.org/10.1182/blood.2021013563

Published: 2022

Includes: Supplemental data

Journal Articles

Efanesoctocog Alfa Half-Life and Clearance Are Independent of von Willebrand Factor in Severe Hemophilia A: A Post Hoc Analysis from Phase 1/2a Studies

Janice M. Staber, Toshko Lissitchkov, Barbara A. Konkle, Amy D. Shapiro, Doris V. Quon, Roshni Kulkarni, Melinda Hamilton, Ekta Seth Chhabra, Suresh Katragadda, Arman Altincatal, Annemieke Willemze, Jennifer Dumont, Margaret V. Ragni

Blood (2021) 138 (Supplement 1): 1035.

https://doi.org/10.1182/blood-2021-148534

Published: 2021

Journal Articles

Depression and Anxiety in Persons with Von Willebrand Disease

Jonathan C. Roberts, Roshni Kulkarni, Peter A. Kouides, Robert F. Sidonio, Jr., Shannon L Carpenter, Barbara A Konkle, Joanne Wu, Megan M. Ullman, Randall Curtis, Judith Baker, Nicole Crook, Michael B. Nichol

Blood (2021) 138 (Supplement 1): 4052.

https://doi.org/10.1182/blood-2021-151625

Published: 2021

Journal Articles

A Cross-Sectional Study of the American Thrombosis and Hemostasis Network Dataset for Outcomes of Dental Extractions in People with Hemophilia

Heather Messenger, Chunla He, Michael Recht, Roshni Kulkarni

Blood (2021) 138 (Supplement 1): 346.

https://doi.org/10.1182/blood-2021-148498

Published: 2021

Journal Articles

Hematology Utilization Group Studies Part VII (HUGS VII): Costs and Impact of Disease in Older Persons with Hemophilia

Randall Curtis, MBA, Marilyn J Manco-Johnson, MD, Barbara A. Konkle, MD, Roshni Kulkarni, MD, Joanne Wu, MDMS, Judith Baker, DrPH, MHSA, Megan M. Ullman, MA, MPH, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 35–36.

https://doi.org/10.1182/blood-2020-141453

Published: 2020

Journal Articles

Healthcare Utilization and Health Related Quality of Life in Persons with Von Willebrand Disease

Jonathan C. Roberts, MD, Roshni Kulkarni, MD, Peter A. Kouides, MD, Robert F. Sidonio, Jr., MD, Shannon L Carpenter, MD, Barbara A. Konkle, MD, Joanne Wu, MDMS, Judith Baker, DrPH, MHSA, Megan M. Ullman, MA, MPH, Randall Curtis, MBA, Steven Carrasco, MPH, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 3–4.

https://doi.org/10.1182/blood-2020-143055

Published: 2020

Journal Articles

Inhibit Clinical Trials Platform to Prevent and Eradicate Inhibitors: Feasibility Survey of Current Prophylaxis and Immune Tolerance Practices

Blood (2020) 136 (Supplement 1): 14–15.

https://doi.org/10.1182/blood-2020-136814

Published: 2020

Journal Articles

Genotype Analysis of Adolescents with Heavy Menstrual Bleeding and Low Von Willebrand Activity - Report of a Multi-Center Study

Brooke Sadler, PhD, Charles Minard, PhD, Gabe Haller, Christina Gurnett, Sarah H. O'Brien, MD, Allison P. Wheeler, MD, Eric S. Mullins, MD, Mukta Sharma, MD MPH, Robert F. Sidonio, Jr., MD MSc., Shilpa Jain, Ayesha Zia, MD, Margaret V. Ragni, MDMPH, Roshni Kulkarni, MD, Jennifer Dietrich, Peter A. Kouides, MD, Jorge Di Paola, Lakshmi Srivaths, MD

Blood (2020) 136 (Supplement 1): 19–20.

https://doi.org/10.1182/blood-2020-135886

Published: 2020

Journal Articles

Von Willebrand Disease Minimize Menorrhagia (VWDMin) Trial

Blood (2019) 134 (Supplement_1): 1130.

https://doi.org/10.1182/blood-2019-124234

Published: 2019

Journal Articles

B-YOND Final Results Confirm Established Safety, Sustained Efficacy, and Extended Dosing Interval for Up to 4 Years of Treatment With rFIXFc in Previously Treated Subjects With Severe Hemophilia B

Margaret Ragni, Roshni Kulkarni, K. John Pasi, MB, ChB, PhD FRCP, FRCPath, FRCPCH, Kathelijn Fischer, Johnny Mahlangu, Amy Shapiro, Beatrice Nolan, Johannes Oldenburg, Tadashi Matsushita, Annemieke Willemze, Huixing Yuan, Dan Rudin

Blood (2018) 132 (Supplement 1): 1214.

https://doi.org/10.1182/blood-2018-99-110100

Published: 2018

Journal Articles

Genotypic and Phenotypic Analysis of Adolescents with Heavy Menstrual Bleeding and Low Von Willebrand Activity - Interim Report of a Multi-Center Study

Lakshmi Srivaths, MD, Jorge Di Paola, MD, Charles Minard, PhD, Sarah H. O'Brien, MD MSc, Allison Wheeler, MD, Shilpa Jain, MDMPH, Mukta Sharma, MD MPH, Roshni Kulkarni, Eric S. Mullins, MD, Margaret V. Ragni, MD MPH, Jennifer Dietrich, Peter A. Kouides, MD

Blood (2018) 132 (Supplement 1): 984.

https://doi.org/10.1182/blood-2018-99-113064

Published: 2018

NARROW

Risk Factors for Joint Bleeding in Severe Hemophilia a and B: Analysis of the Community Counts Longitudinal Surveillance Cohort

Trends in Invasive Orthopedic Interventions in Patients with Hemophilia Enrolled in the Community Counts Program (2015-2021)

Multicenter, Randomized Crossover Trial Comparing Recombinant Von Willebrand Factor and Tranexamic Acid for Heavy Menstrual Bleeding in Von Willebrand Disease

Efficacy of Efanesoctocog Alfa on Pain in Patients with Hemophilia A: Results from the XTEND-1 Phase 3 Clinical Trial in Previously Treated Patients with Hemophilia A

Driving Change: Improving Diagnosis and Awareness of Heavy Menstrual Bleeding and Bleeding Disorders in Women and Girls Among Healthcare Providers

Clinical and Treatment Characteristics of Infants and Toddlers Less Than Two Years of Age with Hemophilia: A Report from the Community Counts Registry

Mortality Trends Among Persons with Hemophilia in the United States, 2000-2021

Characterization of Bleeding and Laboratory Phenotype of Carriers of Hemophilia and Trends of Utilization of Factor Concentrates and Hemostatic Therapies: Analysis of the National Athndataset

Clinical Characteristics Impacting Health-Related Quality of Life in Persons with Von Willebrand Disease

First study of extended half-life rFVIIIFc in previously untreated patients with hemophilia A: PUPs A-LONG final results

Efanesoctocog Alfa Half-Life and Clearance Are Independent of von Willebrand Factor in Severe Hemophilia A: A Post Hoc Analysis from Phase 1/2a Studies

Depression and Anxiety in Persons with Von Willebrand Disease

A Cross-Sectional Study of the American Thrombosis and Hemostasis Network Dataset for Outcomes of Dental Extractions in People with Hemophilia

Hematology Utilization Group Studies Part VII (HUGS VII): Costs and Impact of Disease in Older Persons with Hemophilia

Healthcare Utilization and Health Related Quality of Life in Persons with Von Willebrand Disease

Inhibit Clinical Trials Platform to Prevent and Eradicate Inhibitors: Feasibility Survey of Current Prophylaxis and Immune Tolerance Practices

Genotype Analysis of Adolescents with Heavy Menstrual Bleeding and Low Von Willebrand Activity - Report of a Multi-Center Study

Von Willebrand Disease Minimize Menorrhagia (VWDMin) Trial

B-YOND Final Results Confirm Established Safety, Sustained Efficacy, and Extended Dosing Interval for Up to 4 Years of Treatment With rFIXFc in Previously Treated Subjects With Severe Hemophilia B

Genotypic and Phenotypic Analysis of Adolescents with Heavy Menstrual Bleeding and Low Von Willebrand Activity - Interim Report of a Multi-Center Study

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American Society of Hematology

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American Society of Hematology

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