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Journal Articles

The International Hemoglobinopathy Research Network (INHERENT): An International Initiative to Study the Role of Genetic Modifiers in Hemoglobinopathies

Petros Kountouris, Coralea Stephanou, Natasha M. Archer, Fedele Bonifazi, Viviana Giannuzzi, Kevin H.M. Kuo, Aurelio Maggio, Julie Makani, Maria Del Mar Mañú Pereira, Kyriaki Michailidou, Siana Watoky Nkya, Obiageli E Nnodu, Sara Trompeter, Leon Tshilolo, Ambroise Wonkam, Bin Alwi Zilfalil, Baba PD Inusa, Marina Kleanthous

Blood (2021) 138 (Supplement 1): 948.

https://doi.org/10.1182/blood-2021-146078

Published: 2021

Journal Articles

Experiences of Sickle Cell Disease (SCD) Reported By Healthcare Professionals (HCPs) across Different Regions: International Sickle Cell World Assessment Survey (SWAY)

Blood (2021) 138 (Supplement 1): 3026.

https://doi.org/10.1182/blood-2021-145409

Published: 2021

Journal Articles

Limited Access to Transcranial Doppler Screening and Stroke Prevention for Children with Sickle Cell Disease in Europe: Results of a Multinational Eurobloodnet Survey

Daniela Cuzzubbo, Victoria Gutierrez-Valle, Maddalena Casale, Vincenzo Voi, Corrina McMahon, Maria Del Mar Mañú Pereira, Mariane de Montalembert, Baba PD Inusa, Raffaella Colombatti

Blood (2021) 138 (Supplement 1): 915.

https://doi.org/10.1182/blood-2021-147298

Published: 2021

Journal Articles

Average Lifetime Hemoglobin Concentration Improves Prediction of Cognitive Outcomes in Pediatric Patients with Sickle Cell Anemia

Anna M Hood, Hanne Stotesbury, Simisola Fadahunsi-Oduyemi, Jamie M Kawadler, Melanie Koelbel, Satwinder Sahota, Subarna Chakravorty, Olu Wilkey, Fenella Jane Kirkham, Joanna Howard, Baba PD Inusa

Blood (2021) 138 (Supplement 1): 1945.

https://doi.org/10.1182/blood-2021-153034

Published: 2021

Journal Articles

Randomized Controlled Trial of the Efficacy and Safety of Deferiprone: Subgroup Analysis of Pediatric Patients in Iron-Overloaded Patients with Sickle Cell Disease and Other Anemias

Mona Hamdy, Amal El-Beshlawy, Fatma Soliman Elsayed Ebeid, Janet L. Kwiatkowski, Julie Kanter, Baba PD Inusa, Suzan Williams, David Lee, Noemi T Temin, Caroline Fradette, Fernando Tricta, Mohsen Saleh Elalfy

Blood (2021) 138 (Supplement 1): 762.

https://doi.org/10.1182/blood-2021-148064

Published: 2021

Journal Articles

An Age Analysis of the International Sickle Cell World Assessment Survey (SWAY), Focusing on Symptoms, Treatment Goals and the Impact of SCD on Patients' Daily Lives

Blood (2020) 136 (Supplement 1): 3–5.

https://doi.org/10.1182/blood-2020-136073

Published: 2020

Journal Articles

Global Treatment Satisfaction Levels and Treatment Patterns from the International Sickle Cell World Assessment Survey (SWAY): Hydroxyurea (HU) Versus No HU

Blood (2020) 136 (Supplement 1): 8–10.

https://doi.org/10.1182/blood-2020-137103

Published: 2020

Journal Articles

Effectiveness of Comprehensive Newborn Screening Program of Sickle Cell Disease on the Childhood Morbidity and Mortality of the Disease: A Systematic Review and Meta-Analysis

Almuhalb Ismail, Baba PD Inusa, MDMBBS

Blood (2020) 136 (Supplement 1): 11.

https://doi.org/10.1182/blood-2020-141624

Published: 2020

Journal Articles

Glomerular Hyperfiltration and Albuminuria in Adolescents with Sickle Cell Disease: Retrospective Cross-Sectional Study

Baba PD Inusa, MDMBBS, Caroline Booth, Nosa Iduoriyekemwen, MBBS, MSc, FMCP

Blood (2020) 136 (Supplement 1): 1–2.

https://doi.org/10.1182/blood-2020-142516

Published: 2020

Journal Articles

Thrombosis and Risk Management in Paediatric Inflammatory Multisystem Syndrome - Temporally Associated with Sars-CoV2 (PIMS-TS)

Ho Pui Jeff Lam, Jayanthi Alamelu, James Brighouse, MBBS FRPCH, Owen Miller, FRCPCH, Jonathan Lillie, PRCPCH, Baba PD Inusa, MDMBBS

Blood (2020) 136 (Supplement 1): 32–33.

https://doi.org/10.1182/blood-2020-142424

Published: 2020

Journal Articles

An Analysis of Racial and Ethnic Backgrounds within the Casire International Cohort of Sickle Cell Disease Patients: Implications for Disease Phenotype and Clinical Research

Blood (2019) 134 (Supplement_1): 2305.

https://doi.org/10.1182/blood-2019-127613

Published: 2019

Journal Articles

Impact of Sickle Cell Disease Symptoms on Patients' Daily Lives: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

Ifeyinwa (ify) Osunkwo, MD MPH, Biree Andemariam, MD, Baba PD Inusa, MD, Fuad El-Rassi, Beverly Francis-Gibson, Alecia C. Nero, MD, Caterina P. Minniti, MD, Cassandra Trimnell, BA, Miguel R. Abboud, MD, Jean-Benoît Arlet, Raffaella Colombatti, Mariane de Montalembert, MD PhD, Suman Jain, Wasil Jastaniah, MBBS, FRCPC, Erfan Nur, MD PhD, Laurie DeBonnett, MD, John James, MSc

Blood (2019) 134 (Supplement_1): 2297.

https://doi.org/10.1182/blood-2019-124762

Published: 2019

Journal Articles

Randomized Controlled Trial of the Efficacy and Safety of Deferiprone in Iron-Overloaded Patients with Sickle Cell Disease or Other Anemias

Blood (2019) 134 (Supplement_1): 618.

https://doi.org/10.1182/blood-2019-122062

Published: 2019

Journal Articles

Double-Blind, Randomized Study of Canakinumab Treatment in Pediatric and Young Adult Patients with Sickle Cell Anemia

Blood (2019) 134 (Supplement_1): 615.

https://doi.org/10.1182/blood-2019-123355

Published: 2019

Journal Articles

Management Strategies and Satisfaction Levels in Patients with Sickle Cell Disease: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

John James, MSc, Biree Andemariam, MD, Baba PD Inusa, MD, Fuad El-Rassi, Beverly Francis-Gibson, Alecia C. Nero, MD, Caterina P. Minniti, MD, Cassandra Trimnell, BA, Miguel R. Abboud, MD, Jean-Benoît Arlet, Raffaella Colombatti, Mariane de Montalembert, MD PhD, Suman Jain, Wasil Jastaniah, Erfan Nur, MD PhD, Laurie DeBonnett, MD, Ifeyinwa (ify) Osunkwo, MD MPH

Blood (2019) 134 (Supplement_1): 1017.

https://doi.org/10.1182/blood-2019-123643

Published: 2019

Journal Articles

An Educational Study Promoting the Delivery of TCD Screening in Paediatric Sickle Cell Disease: A European Multi-Centre Perspective

Baba PD Inusa, MD, Corrina Macmahon, MD, Laura Sainati, MD, Raffaella Colombatti, MD PhD, Maddalena Casale, MD PhD, Patrizia Rampazzo, MD, Silverio Perrotta, Soundrie Padayachee

Blood (2019) 134 (Supplement_1): 2172.

https://doi.org/10.1182/blood-2019-130390

Published: 2019

Journal Articles

Whole Exome Sequencing in Children with Sickle Cell Anemia Who Developed Ischemic Stroke Prior to 4 Years of Age Reveals a Strong Association with Inherited Dyslipidemias

John N. Brewin, Riley Cook, MD, Alexander E Smith, PhD, Valentine Brousse, MD PhD, Julie Brent, MD, Sanjay Tewari, FRCPath, MBBS, Baba PD Inusa, MD, Stephan Menzel, MD PhD, David C Rees

Blood (2019) 134 (Supplement_1): 3571.

https://doi.org/10.1182/blood-2019-123764

Published: 2019

Journal Articles

Pharmacokinetics of Ticagrelor in Infants and Toddlers Aged <24 Months with Sickle Cell Disease

Baba PD Inusa, MD, Adlette Inati, MD, Philip Maes, MD, Jessie Githanga, MBChB, MMed, Miguel R. Abboud, MD, Maurizio Miano, Elena Cela, Videlis Nduba, Mohammad Niazi, Magnus Åstrand, Kevin Persson, Anders Rikard Berggren, MD PhD, Glenn Carlson, MD

Blood (2019) 134 (Supplement_1): 1005.

https://doi.org/10.1182/blood-2019-129855

Published: 2019

Journal Articles

Lung Function Impairment in Pediatric Subjects with Sickle Cell Anemia from Nigeria Is Associatede with Associated Low Steady Haemoglobin

Baba PD Inusa, MD, Livingstone Gayus Dogara, MBBS, FMCPath, Ramatu Zubair, MBBS, MPH, Chiara Zuiani, MD, Christoper Audu, Ashel Dache Sunday, MSC Nutrition, Muhammed Zakari Sani, MD, Luigi Castriotta, MD, Michele Arigliani, MD

Blood (2018) 132 (Supplement 1): 3659.

https://doi.org/10.1182/blood-2018-99-116328

Published: 2018

Journal Articles

History of Asthma is Associated with Albuminuria within an International Pediatric Cohort of Sickle Cell Disease Patients: A Casire Group Analysis

Immacolata Tartaglione, MD, Baba PD Inusa, MBBS, FMCPaed, FRCPCH, MRCP, DCP, Raffaella Colombatti, MD PhD, Deepa Manwani, MD, Silverio Perrotta, Eugenia Vicky Naa Kwarley Asare, MBChB, BSc, Connie M. Piccone, MD, Fredericka Sey, MB ChB, Charles Antwi-Boasiako, PhD, Laura Sainati, MD, Adetola A. Kassim, MD MS, Donna Boruchov, MD, Angela Rivers, MD PhD, William Zempsky, MD, Crawford John Strunk, MD, Biree Andemariam, MD, Andrew D. Campbell, MD

Blood (2016) 128 (22): 3668.

https://doi.org/10.1182/blood.V128.22.3668.3668

Published: 2016

NARROW

The International Hemoglobinopathy Research Network (INHERENT): An International Initiative to Study the Role of Genetic Modifiers in Hemoglobinopathies

Experiences of Sickle Cell Disease (SCD) Reported By Healthcare Professionals (HCPs) across Different Regions: International Sickle Cell World Assessment Survey (SWAY)

Limited Access to Transcranial Doppler Screening and Stroke Prevention for Children with Sickle Cell Disease in Europe: Results of a Multinational Eurobloodnet Survey

Average Lifetime Hemoglobin Concentration Improves Prediction of Cognitive Outcomes in Pediatric Patients with Sickle Cell Anemia

Randomized Controlled Trial of the Efficacy and Safety of Deferiprone: Subgroup Analysis of Pediatric Patients in Iron-Overloaded Patients with Sickle Cell Disease and Other Anemias

An Age Analysis of the International Sickle Cell World Assessment Survey (SWAY), Focusing on Symptoms, Treatment Goals and the Impact of SCD on Patients' Daily Lives

Global Treatment Satisfaction Levels and Treatment Patterns from the International Sickle Cell World Assessment Survey (SWAY): Hydroxyurea (HU) Versus No HU

Effectiveness of Comprehensive Newborn Screening Program of Sickle Cell Disease on the Childhood Morbidity and Mortality of the Disease: A Systematic Review and Meta-Analysis

Glomerular Hyperfiltration and Albuminuria in Adolescents with Sickle Cell Disease: Retrospective Cross-Sectional Study

Thrombosis and Risk Management in Paediatric Inflammatory Multisystem Syndrome - Temporally Associated with Sars-CoV2 (PIMS-TS)

An Analysis of Racial and Ethnic Backgrounds within the Casire International Cohort of Sickle Cell Disease Patients: Implications for Disease Phenotype and Clinical Research

Impact of Sickle Cell Disease Symptoms on Patients' Daily Lives: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

Randomized Controlled Trial of the Efficacy and Safety of Deferiprone in Iron-Overloaded Patients with Sickle Cell Disease or Other Anemias

Double-Blind, Randomized Study of Canakinumab Treatment in Pediatric and Young Adult Patients with Sickle Cell Anemia

Management Strategies and Satisfaction Levels in Patients with Sickle Cell Disease: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

An Educational Study Promoting the Delivery of TCD Screening in Paediatric Sickle Cell Disease: A European Multi-Centre Perspective

Whole Exome Sequencing in Children with Sickle Cell Anemia Who Developed Ischemic Stroke Prior to 4 Years of Age Reveals a Strong Association with Inherited Dyslipidemias

Pharmacokinetics of Ticagrelor in Infants and Toddlers Aged <24 Months with Sickle Cell Disease

Lung Function Impairment in Pediatric Subjects with Sickle Cell Anemia from Nigeria Is Associatede with Associated Low Steady Haemoglobin

History of Asthma is Associated with Albuminuria within an International Pediatric Cohort of Sickle Cell Disease Patients: A Casire Group Analysis

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American Society of Hematology

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American Society of Hematology

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