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Eduard Van Beers
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Journal Articles

Disease monitoring and management among pediatric patients with pyruvate kinase deficiency: Real-world practices from pyruvate kinase deficiency registries prior to 2024 international expert guidelines

Free
Sule Unal, Stefan W. Eber, Andreas Glenthoej, Bertil Glader, Eduard Van Beers, Rachael Grace, Joan-Lluis Vives Corrons, Hitoshi Kanno, Kevin Kuo, Paola Bianchi, Bryan McGee, Yan (Flame) Yan, Audra Boscoe, Junlong Li, Janet Ford, Carl Lander
Journal: Blood
Blood (2025) 146 (Supplement 1): 4454.
https://doi.org/10.1182/blood-2025-4454
Published: 2025
Journal Articles

Data validation and quality framework for building a european multimodal real-world dataset for clinical outcome research in sickle cell disease

Free
Sara Reidel, Pablo Bartolucci, Bart Biemond, Betzabel Cajiao Garcia, Elena Cela, Anna Collado Gimbert, Raffaella Colombatti, Mariane de Montalembert, Karin Fijnvandraat, Petros Kountouris, Vincent De Pierrefeu, Sandra Manceau, José Manuel Marco Sánchez, Angela Menarguez Lopez, Stella Tamana, Nuria Torquet Luna, Roberta Trapanese, Eduard Van Beers, Sigrid Van der Veen, Maria Del Mar Mañú Pereira
Journal: Blood
Blood (2025) 146 (Supplement 1): 4443.
https://doi.org/10.1182/blood-2025-4443
Published: 2025
Journal Articles

Thalassemia in europe: A cross-border real-world data analysis from the radeep registry

Free
Anna Collado Gimbert, Sara Reidel, Raffaella Colombatti, Eduard Van Beers, Paola Bianchi, Stella Tamana, Angelo Loris Brunetta, Dore Peereboom, Giovanna Russo, Daniela Cuzzubbo, Elena Cela, José Manuel Marco Sánchez, Sarah Wambacq, Dedeken Laurence, Bart Biemond, Soteroula Christou, Iren Savvides, Andreas Glenthoej, Antonis Kattamis, Ilona Binenbaum, María Pilar Nicolás, Iñigo de Miguel Beriain, Alexis Rodriguez Gallego, Angela Menarguez Lopez, Maximo Tartaglia, Nuria Torquet Luna, Roberta Trapanese, Marleen Ausloos, Betzabel Cajiao Garcia, Anna Minaidou, Kian Haseli, Efthymia Panteli, Elisabetta Mezzalira, Petros Kountouris, Béatrice Gulbis, Maria Del Mar Mañú Pereira
Journal: Blood
Blood (2025) 146 (Supplement 1): 4696.
https://doi.org/10.1182/blood-2025-4696
Published: 2025
Journal Articles

Sickle cell disease in europe: A cross-border real-world data analysis from the radeep registry

Free
Anna Collado Gimbert, Sara Reidel, Raffaella Colombatti, Eduard Van Beers, Paola Bianchi, Stella Tamana, Angelo Loris Brunetta, Dore Peereboom, Giovanna Russo, Daniela Cuzzubbo, Elena Cela, José Manuel Marco Sánchez, Sarah Wambacq, Dedeken Laurence, Mariane de Montalembert, Karin Fijnvandraat, Bart Biemond, Frederic Galacteros, Pablo Bartolucci, Andreas Glenthoej, Antonis Kattamis, Ilona Binenbaum, María Pilar Nicolás, Iñigo de Miguel Beriain, Alexis Rodriguez Gallego, Angela Menarguez Lopez, Maximo Tartaglia, Nuria Torquet Luna, Roberta Trapanese, Betzabel Cajiao Garcia, Sandra Manceau, Kian Haseli, Efthymia Panteli, Elisabetta Mezzalira, Vincent De Pierrefeu, Petros Kountouris, Béatrice Gulbis, Maria Del Mar Mañú Pereira
Journal: Blood
Blood (2025) 146 (Supplement 1): 179.
https://doi.org/10.1182/blood-2025-179
Published: 2025
Journal Articles

Implementing patient-centered PROMs in sickle cell disease care: A european consensus approach

Free
Anna Collado Gimbert, Betzabel Cajiao Garcia, Raffaella Colombatti, Mariane de Montalembert, Elisabetta Mezzalira, Eduard Van Beers, Maria Del Mar Mañú Pereira
Journal: Blood
Blood (2025) 146 (Supplement 1): 2666.
https://doi.org/10.1182/blood-2025-2666
Published: 2025
Journal Articles

Baseline Characteristics of Patients in Peak: A Global, Longitudinal Registry of Patients with Pyruvate Kinase Deficiency

Free
Rachael F. Grace, MD, Audra Boscoe, PhD, Chris Bowden, MD, Bertil Glader, MD PhD, Hitoshi Kanno, MDPhD, D. Mark Layton, MB BS, Eduard van Beers, MD PhD, Joan-Lluis Vives Corrons, MD PhD, Yan Yan, MS, Paola Bianchi, BSc, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 39–40.
https://doi.org/10.1182/blood-2020-136634
Published: 2020
Journal Articles

Red Cell Rheology Biomarkers to Assess Cure in Gene-Based Therapies

Free
Celeste K. Kanne, BA, Danielle Guffey, MS, Charles Minard, PhD, Eduard van Beers, MD PhD, Richard van Wijk, PhD, Minke A.E. Rab, MD, Vivien A. Sheehan, MD PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 11–12.
https://doi.org/10.1182/blood-2020-138989
Published: 2020
Journal Articles

Early-Onset Osteopenia and Osteoporosis in Patients with Pyruvate Kinase Deficiency

Free
Hanny Al-Samkari, MD, Rachael F. Grace, MD, Andreas Glenthoej, MD, Oliver Andres, MD, Wilma Barcellini, Frédéric Galactéros, MDPhD, Kevin H.M. Kuo, MDMSc,FRCPC, D. Mark Layton, MB BS, Marta Morado, PhD, Vip Viprakasit, Yan Dong, PhD, Feng Tai, PhD, Peter Hawkins, PhD, Sarah Gheuens, MD PhD, Chris Bowden, MD, John B. Porter, MA, MD, FRCP, FRCPath, Eduard van Beers, MD PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 30–32.
https://doi.org/10.1182/blood-2020-136598
Published: 2020
Journal Articles

Oxygen Gradient Ektacytometry-Derived Biomarkers Are Associated with the Occurrence of Cerebral Infarction, Acute Chest Syndrome and Vaso-Occlusive Crisis in Sickle Cell Disease

Free
Minke A.E. Rab, MD, Celeste K. Kanne, BA, Brigitte A. van Oirschot, Jennifer Bos, Camille Boisson, Maite E. Houwing, MD, Celine Renoux, PhD, Marije Bartels, MD PhD, Erfan Nur, MDPhD, Marjon H. Cnossen, MD PhD, Philippe Joly, PhD, Romain Fort, MD, Philippe Connes, PhD, Richard van Wijk, PhD, Vivien A. Sheehan, MD PhD, Eduard van Beers, MD PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 20–21.
https://doi.org/10.1182/blood-2020-135934
Published: 2020