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Journal Articles

The Launch of Two Sub-Studies of the Peak Registry, a Global, Longitudinal Study of Pyruvate Kinase Deficiency

Carl Lander, Rachael F. Grace, Eduard J. van Beers, Joan-Lluis Vives Corrons, Bert Glader, Kevin H.M. Kuo, Andreas Glenthøj, Dagmar Pospíšilová, D. Mark Layton, Audra Boscoe, Stephanie Smith, Bryan McGee, Paola Bianchi
Journal: Blood
Blood (2022) 140 (Supplement 1): 11041–11042.
https://doi.org/10.1182/blood-2022-163079
Published: 2022
Journal Articles

Validation of the Pyruvate Kinase Deficiency Diary (PKDD): A Patient-Reported Outcome Measure for Pyruvate Kinase (PK) Deficiency

Shayna Egan, Erin Zagadailov, Adrian Jewett, Junlong Li, Feng Tai, Audra Boscoe, David A. Andrae
Journal: Blood
Blood (2021) 138 (Supplement 1): 4144.
https://doi.org/10.1182/blood-2021-148278
Published: 2021
Journal Articles

Validation of the Pyruvate Kinase Deficiency Impact Assessment (PKDIA): A Patient-Reported Outcome Measure for Pyruvate Kinase (PK) Deficiency

Shayna Egan, Erin Zagadailov, Adrian Jewett, Junlong Li, Feng Tai, Audra Boscoe, David A. Andrae
Journal: Blood
Blood (2021) 138 (Supplement 1): 4145.
https://doi.org/10.1182/blood-2021-148364
Published: 2021
Journal Articles

Baseline Characteristics of Patients in Peak: A Global, Longitudinal Registry of Patients with Pyruvate Kinase Deficiency

Rachael F. Grace, MD, Audra Boscoe, PhD, Chris Bowden, MD, Bertil Glader, MD PhD, Hitoshi Kanno, MDPhD, D. Mark Layton, MB BS, Eduard van Beers, MD PhD, Joan-Lluis Vives Corrons, MD PhD, Yan Yan, MS, Paola Bianchi, BSc, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 39–40.
https://doi.org/10.1182/blood-2020-136634
Published: 2020
Journal Articles

Mortality Among Veterans with a Diagnosis of Pyruvate Kinase (PK) Deficiency: A Real-World Study Using US Veterans Health Administration Data

Erin Zagadailov, PharmD, Audra Boscoe, PhD, Viviana Garcia-Horton, PhD, Sherry Shi, MSc, Shuqian Liu, MD, Lizheng Shi, PhD, Dendy Macaulay, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 24–25.
https://doi.org/10.1182/blood-2020-136693
Published: 2020
Journal Articles

Treatment Patterns and Healthcare Resource Utilization in Patients with Relapsed/Refractory Acute Myeloid Leukemia and a Subset with IDH1-Mutation: A United States Medical Chart Review Study

James D. Griffin, MD, Mike Storm, MSc, Ken Wilhelm, MD, Audra Boscoe, PhD, Dendy Macaulay, PhD, Zheng-Yi Zhou, PhD, Elizabeth Faust, MBA/MPH, Claudia Cheung, MS
Journal: Blood
Blood (2018) 132 (Supplement 1): 5864.
https://doi.org/10.1182/blood-2018-99-116495
Published: 2018