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Rachael F. Grace
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Journal Articles

Treatment of Critical Bleeding Events in Patients with Immune Thrombocytopenia: A Systematic Review

Emily Sirotich, Saifur Chowdhury, Gordon Guyatt, Daya Gill, Dimpy Modi, Laura Venier, Kerolos Eisa, Carolyn E Beck, Vicky R. Breakey, Kerstin de Wit, Stephen Porter, Kathryn Elizabeth Webert, Adam Cuker, Clare O'Connor, Jennifer MacWhirter - DiRaimo, Justin Yan, Charles Manski, John G. Kelton, Matthew Kang, Gail Strachan, Ziauddin Hassan, Barbara Pruitt, Menaka Pai, Rachael F. Grace, Dale Paynter, Jay Charness, Nichola Cooper, Steven Fein, Hasmik Nazaryan, Arnav Agarwal, Ishaq Siddiqui, Russell Leong, Sushmitha Pallapothu, Aaron Wen, Emily Xu, Bonnie Liu, Preksha Rathod, Henry Kwon, Jared Dookie, Amirmohammad Shafiee, Rachel Couban, Donald Arnold
Journal: Blood
Blood (2023) 142 (Supplement 1): 7239.
https://doi.org/10.1182/blood-2023-179448
Published: 2023
Journal Articles

Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

Biree Andemariam, Ninamaria Badalamenti, Rae Blaylark, Ralph Colasanti, Raffaella Colombatti, Rachael F. Grace, Charles R. Jonassaint, Kevin H.M. Kuo, Laurice M Levine, Clarisse Lobo, Tamara Schyrver, Sujit Sheth, Cassandra Trimnell, Alejandra Watson, Jill Welle, Teonna Woolford, Holly John, Janie Davis, Ahmar U Zaidi, Eva Gallagher, Sarah Gheuens, Nirmish Shah
Journal: Blood
Blood (2023) 142 (Supplement 1): 3692.
https://doi.org/10.1182/blood-2023-181632
Published: 2023
Journal Articles

Genetic Variants in Canonical Wnt Signaling Pathway Associated with Pediatric ITP

Taylor Olmsted Kim, Jennifer M. Geris, Amanda B. Grimes, Rachael F. Grace, Michele P. Lambert, Melissa J. Rose, Kristin A. Shimano, Omar Niss, Cindy Neunert, Taizo A. Nakano, Derek Macmath, Bogdan Dinu, Susan E. Kirk, Jenny M. Despotovic, Jonathan M. Flanagan, Michael E. Scheurer
Journal: Blood
Blood (2023) 142 (Supplement 1): 2593.
https://doi.org/10.1182/blood-2023-175013
Published: 2023
Journal Articles

Quality of Life in Childhood Immune Thrombocytopenia: Revision of the Kids' ITP Tools (KIT)

Vinita Dhir, Caseng Zhang, Nick Barrowman, Ewa Sucha, Rachael F. Grace, John D. Grainger, Nancy L Young, Robert J. Klaassen
Journal: Blood
Blood (2023) 142 (Supplement 1): 1215.
https://doi.org/10.1182/blood-2023-182449
Published: 2023
Journal Articles

Understanding the Physical and Psychosocial Impacts of Pyruvate Kinase Deficiency: Patient-Led Development of the Pyruvate Kinase Deficiency Life Phase Model

Rachael F. Grace, Lily Cannon, Maaike Eijgenraam, Carl Lander, Laura Miller D'Angelo, Susan Morris, Janie Davis, Parija Patel, Tamara Schryver, Alejandra Watson, Wilma Barcellini
Journal: Blood
Blood (2023) 142 (Supplement 1): 3691.
https://doi.org/10.1182/blood-2023-181979
Published: 2023
Journal Articles

A Phase 3 Study of Eltrombopag Vs. Standard First-Line Management for Newly Diagnosed Immune Thrombocytopenia in Children: Trial in Progress Update

Amanda B. Grimes, Rachael F. Grace, Melissa J. Rose, Sanjay J. Shah, Shipra Kaicker, Carolyn Bennett, Michael Briones, Taizo A. Nakano, Stephanie A. Fritch Lilla, Jeffrey D. Lebensburger, Alexis A. Thompson, Rukhmi Bhat, Rohith Jesudas, Michele P. Lambert, Shelley E. Crary, Kerry Hege, Cathy A. Lee-Miller, Suvankar Majumdar, James B. Ford, Joshua J. Bies, Vandy Black, John Fort, Manpreet Kochhar, Julia MW Wong, Bogdan Dinu, Pei-Chi Kao, Wendy B. London, Jenny M. Despotovic, Robert J. Klaassen, Ellis J. Neufeld, Cindy Neunert, Kristin A. Shimano
Journal: Blood
Blood (2023) 142 (Supplement 1): 1223.
https://doi.org/10.1182/blood-2023-172819
Published: 2023
Journal Articles

Regional Genetic Heterogeneity Among Patients with Pyruvate Kinase Deficiency

Paola Bianchi, Elisa Fermo, Kevin H.M. Kuo, Dagmar Pospíšilová, Andreas Glenthoej, Carl Lander, Eduard J. Van Beers, Bertil Glader, Joan-Lluis Vives Corrons, Stefan W Eber, Yan Yan, Bryan McGee, Janet H Ford, Saliha Yilmaz, Rachael F. Grace
Journal: Blood
Blood (2023) 142 (Supplement 1): 5203.
https://doi.org/10.1182/blood-2023-181834
Published: 2023
Journal Articles

Long-term risk of developing immune thrombocytopenia and hematologic neoplasia in adults with mild thrombocytopenia

Clinical Trials & Observations
Nardeen Ayad, Rachael F. Grace, David J. Kuter, Hanny Al-Samkari
Journal: Blood
Blood (2022) 140 (26): 2849–2852.
https://doi.org/10.1182/blood.2022016757
Published: 2022
Includes: Supplemental data
Journal Articles

Mitapivat Improves Iron Overload in Patients with Pyruvate Kinase Deficiency

Eduard J. van Beers, Hanny Al-Samkari, Rachael F. Grace, Wilma Barcellini, Andreas Glenthøj, Melissa Dibacco, Penelope A. Kosinski, Emily Xu, Vanessa Beynon, Parija Patel, John B. Porter, Kevin H.M. Kuo
Journal: Blood
Blood (2022) 140 (Supplement 1): 2460–2462.
https://doi.org/10.1182/blood-2022-169098
Published: 2022
Journal Articles

Long-Term Improvements in Patient-Reported Outcomes in Patients with Pyruvate Kinase Deficiency Treated with Mitapivat

Kevin H.M. Kuo, Rachael F. Grace, Eduard J. van Beers, Wilma Barcellini, Andreas Glenthøj, Susanne Holzhauer, Parija Patel, Vanessa Beynon, Junlong Li, Erin Zagadailov, Hanny Al-Samkari
Journal: Blood
Blood (2022) 140 (Supplement 1): 1223–1225.
https://doi.org/10.1182/blood-2022-168954
Published: 2022
Journal Articles

Standardizing the Diagnostic and Therapeutic Approach to Newly Diagnosed Children with ITP: Prospective Data from the ITP Consortium of North America (ICON) Quality Improvement Initiative

Hannah Elkus, Rachael F. Grace, Taylah Buissereth, Carolyn Bennett, Stacey Rifkin-Zenenberg, Elizabeth R Gunn, Jeffrey D. Lebensburger, Pablo Angulo, Monica Davini, Alexander W. Rankin, Taizo A. Nakano, Corinna L. Schultz, Ashley Pinchinat, Kirsty Hillier, Sherif M. Badawy
Journal: Blood
Blood (2022) 140 (Supplement 1): 1208–1210.
https://doi.org/10.1182/blood-2022-170067
Published: 2022
Journal Articles

The Launch of Two Sub-Studies of the Peak Registry, a Global, Longitudinal Study of Pyruvate Kinase Deficiency

Carl Lander, Rachael F. Grace, Eduard J. van Beers, Joan-Lluis Vives Corrons, Bert Glader, Kevin H.M. Kuo, Andreas Glenthøj, Dagmar Pospíšilová, D. Mark Layton, Audra Boscoe, Stephanie Smith, Bryan McGee, Paola Bianchi
Journal: Blood
Blood (2022) 140 (Supplement 1): 11041–11042.
https://doi.org/10.1182/blood-2022-163079
Published: 2022
Journal Articles

Long-Term Risk of Developing Immune Thrombocytopenia and Hematologic Neoplasia in Adults with Persistent, Isolated Mild Thrombocytopenia

Nardeen Ayad, Rachael F. Grace, David J. Kuter, Hanny Al-Samkari
Journal: Blood
Blood (2022) 140 (Supplement 1): 44–45.
https://doi.org/10.1182/blood-2022-168000
Published: 2022
Journal Articles

Mitapivat Improves Markers of Hemolysis and Erythropoiesis in Patients with Pyruvate Kinase Deficiency Irrespective of Hemoglobin Response

Hanny Al-Samkari, Rachael F. Grace, Eduard J. van Beers, Feng Tai, Jaime Morales-Arias, Vanessa Beynon, Andreas Glenthøj
Journal: Blood
Blood (2022) 140 (Supplement 1): 8159–8160.
https://doi.org/10.1182/blood-2022-167147
Published: 2022
Journal Articles

ACTIVATE-Kids: Mitapivat in Children with Pyruvate Kinase Deficiency Who Are Not Regularly Transfused

Rachael F. Grace, Patrick D. Tyler, Erin Larcom, Penelope A. Kosinski, Vanessa Beynon
Journal: Blood
Blood (2022) 140 (Supplement 1): 5331–5332.
https://doi.org/10.1182/blood-2022-168652
Published: 2022
Journal Articles

Age of Onset of Complications in Patients with Pyruvate Kinase Deficiency: Analysis from the Peak Registry

Andreas Glenthøj, Rachael F. Grace, Eduard J. van Beers, Joan-Lluis Vives Corrons, Bert Glader, Kevin H.M. Kuo, Carl Lander, Dagmar Pospíšilová, Hitoshi Kanno, Jean Williams, Yan Yan, Bryan McGee, Paola Bianchi
Journal: Blood
Blood (2022) 140 (Supplement 1): 5323–5325.
https://doi.org/10.1182/blood-2022-156205
Published: 2022
Journal Articles

ACTIVATE-KidsT: Mitapivat in Children with Pyruvate Kinase Deficiency Who Are Regularly Transfused

Rachael F. Grace, Patrick D. Tyler, Meredith Little, Penelope A. Kosinski, Vanessa Beynon
Journal: Blood
Blood (2022) 140 (Supplement 1): 5319–5320.
https://doi.org/10.1182/blood-2022-167452
Published: 2022
Journal Articles

Comorbidities and Complications in Pediatric Patients with Pyruvate Kinase Deficiency Enrolled in the Peak Registry

Rachael F. Grace, Andreas Glenthøj, Carl Lander, Eduard J. van Beers, Hitoshi Kanno, Joan-Lluis Vives Corrons, Paola Bianchi, Dagmar Pospíšilová, Jean Williams, Yan Yan, Bryan McGee, Bert Glader
Journal: Blood
Blood (2022) 140 (Supplement 1): 5316–5318.
https://doi.org/10.1182/blood-2022-168799
Published: 2022
Journal Articles

Long-Term Hemoglobin Response and Reduction in Transfusion Burden Are Maintained in Patients with Pyruvate Kinase Deficiency Treated with Mitapivat

Rachael F. Grace, Andreas Glenthøj, Wilma Barcellini, Madeleine Verhovsek, Jennifer A. Rothman, Marta Morado, D. Mark Layton, Oliver Andres, Frédéric Galactéros, Eduard J. van Beers, Koichi Onodera, Vip Viprakasit, Satheesh Chonat, Malia P. Judge, Penelope A. Kosinski, Peter Hawkins, Sarah Gheuens, Emily Xu, Bryan McGee, Vanessa Beynon, Hanny Al-Samkari
Journal: Blood
Blood (2022) 140 (Supplement 1): 5313–5315.
https://doi.org/10.1182/blood-2022-169125
Published: 2022
Journal Articles

An update on pediatric ITP: differentiating primary ITP, IPD, and PID

Rachael F. Grace, Michele P. Lambert
Journal: Blood
Blood (2022) 140 (6): 542–555.
https://doi.org/10.1182/blood.2020006480
Published: 2022