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Journal Articles

Tailoring pediatric to adult care transition from high to low-resource settings: A user-centered design approach

Tarun Aurora, Danila Sala, Clarisse Lobo, Maria Figueiredo, Josefina Braga, Kelly Pimenta, Nicholas Faris, Patricia Moura, Patricia Blum, Andrea Angel, Maria Farias, Thiago Vilela, Heloisa Silva, Thais Oliveira, Marcia Senra, Talita Rodrigues, Ana Baumann, Jane Hankins

Blood (2025) 146 (Supplement 1): 2589.

https://doi.org/10.1182/blood-2025-2589

Published: 2025

Journal Articles

Qualitative interviews exploring the patient experience of fatigue in individuals with sickle cell disease (SCD), thalassemia, and pyruvate kinase (PK) deficiency

Blood (2025) 146 (Supplement 1): 7971.

https://doi.org/10.1182/blood-2025-7971

Published: 2025

Journal Articles

Psychometric evaluation of the self-management skills checklist across Brazil and the United States: Toward global measurement of transition readiness in sickle cell disease

Kelly Pimenta, Alejandro Vázquez, Patricia Moura, Thiago Vilela, Renee Hodges, Nicholas Faris, Danila Sala, Thais Oliveira, Heloisa Silva, Tarun Aurora, Andrea Angel, Patricia Blum, Maria Farias, Josefina Braga, Clarisse Lobo, Jerlym Porter, Jane Hankins

Blood (2025) 146 (Supplement 1): 1186.

https://doi.org/10.1182/blood-2025-1186

Published: 2025

Journal Articles

Healthcare transition readiness for sickle cell disease: A high- and low- income comparative analysis

Kelly Pimenta, Jerlym Porter, Patricia Moura, Thiago Vilela, Renee Hodges, Nicholas Faris, Danila Sala, Thais Oliveira, Heloisa Silva, Tarun Aurora, Andrea Angel, Patricia Blum, Maria Farias, Ana Baumann, Maria Figueiredo, Josefina Braga, Clarisse Lobo, Jane Hankins

Blood (2025) 146 (Supplement 1): 4740.

https://doi.org/10.1182/blood-2025-4740

Published: 2025

Journal Articles

Evaluation of Capacity for Implementation of Pediatric-to-Adult Care Transition for Sickle Cell Disease in Brazil

Kelly Pimenta, Tarun Aurora, Perla Vicari, Thais Oliveira, Heloisa Helena Miranda, Maria Stella Figueiredo, Patricia Moura, Josefina Braga, Clarisse Lobo, Andrea Angel, Thiago Vilela, Patricia Blum, Maria Jose de Farias Ramos Reis, Ana Baumann, Jane S Hankins

Blood (2023) 142 (Supplement 1): 2296.

https://doi.org/10.1182/blood-2023-178672

Published: 2023

Journal Articles

Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

Blood (2023) 142 (Supplement 1): 3692.

https://doi.org/10.1182/blood-2023-181632

Published: 2023

Journal Articles

Outpatient Costs of Patients with Sickle Cell Disease with or without Hydroxyurea at an Institution in Rio De Janeiro, Brazil

Tarun Aurora, Patricia Moura, Delaine Fidlarczyk, Jane Duran, Roberto Barbosa, Thais Oliveira, Emilia Nascimento, Jane S Hankins, Clarisse Lobo

Blood (2023) 142 (Supplement 1): 7325.

https://doi.org/10.1182/blood-2023-179610

Published: 2023

Journal Articles

Cost Analysis of ACUTE Care Resource Utilization Among Individuals with Sickle Cell Disease in a Middle-Income Country

Clarisse Lobo, Jane S Hankins, Nickhill Bhakta, Emilia Nascimento, Patricia Gomes Moura, Delaine Fidlarczyk, Thais Oliveira Figueiredo, Roberto Barbosa, Jane Duran

Blood (2021) 138 (Supplement 1): 2987.

https://doi.org/10.1182/blood-2021-149639

Published: 2021

Journal Articles

Sickle Cell Disease Mortality in Brazil: Real-World Evidence

Rodolfo D Cançado, Fernando Ferreira Costa, Clarisse Lobo, Celina Borges Migliavaca, Maicon Falavigna, Homero C. R. Souza Filho, Carolina Tosin Bueno, Ana Cristina Silva Pinto

Blood (2021) 138 (Supplement 1): 3025.

https://doi.org/10.1182/blood-2021-151098

Published: 2021

Journal Articles

Safe Use of Hydroxyurea in Sickle Cell Disease Patients Hospitalized for Painful Vaso-Occlusive Episodes: Results of the Randomized, Open-Label Helps Study

Nicola Conran, PhD, Kleber Yotsumoto Fertrin, MD PhD, Claudia de Alvarenga Maximo, MD, Thais Oliveira, B.Sc., Clarisse Lobo, MD PhD, Fernando Ferreira Costa, MD PhD

Blood (2019) 134 (Supplement_1): 2303.

https://doi.org/10.1182/blood-2019-130106

Published: 2019

Journal Articles

Case series of octogenarians with sickle cell disease

Samir K. Ballas, E. Dianne Pulte, Clarisse Lobo, Gaye Riddick-Burden

Blood (2016) 128 (19): 2367–2369.

https://doi.org/10.1182/blood-2016-05-715946

Published: 2016

Journal Articles

Initial Molecular Response At 3 Months Can Identify Three Groups Of Patients With Different Responses and Event-Free Survival At 36-Months Following Second-Generation Tyrosine Kinase Inhibitor Therapy In Imatinib-Resistant Chronic Myeloid Leukemia

Carla Boquimpani, MD, Rony Schaffel, MD, PhD, Daniel Graça, Camila Mesquita, Tania Silva Madeira, MD, Danielle Peixoto, MD, Patricia Wendling, MD, Clarisse Lobo, MD, Irene Biasoli, MD, PhD, Nelson Spector, MD, PhD

Blood (2013) 122 (21): 4005.

https://doi.org/10.1182/blood.V122.21.4005.4005

Published: 2013

Journal Articles

Cognitive Dysfunction Occurs In Children with Sickle Cell Anemia without Cerebral Ischemic Insult or Vasculopathy

Clarisse Lobo, MD, Patricia Moura, MD, Patricia Rio, Psych, Heber Maia, MD, PhD, MSc, Juliana Fernandes, Psych, Jorge Cunha Pinto, MD, Ana C Leite, MD, PhD, Jane S Hankins, MD, MS

Blood (2011) 118 (21): 1076.

https://doi.org/10.1182/blood.V118.21.1076.1076

Published: 2011

Journal Articles

Results From the ENESTnd Extension Study: Efficacy and Safety of Patients (pts) with Chronic Myeloid Leukemia in Chronic Phase (CML-CP), Treated with Nilotinib 400 Mg Twice Daily (BID) After Suboptimal Response (SoR) or Treatment Failure (TF) to Imatinib 400 Mg Once Daily (QD) or Nilotinib 300 Mg BID

Andreas Hochhaus, MD, Gert Ossenkoppele, MD, PhD, Josy Reiffers, MD, Ming Yao, MD, Hirohiko Shibayama, MD, PhD, Norbert Gattermann, MD, Timothy P. Hughes, MD, MBBS, Giuseppe Saglio, MD, Richard A. Larson, MD, Albert Hoenekopp, MD, Neil J. Gallagher, MD, PhD, Richard Yu, Rick E. Blakesley, PhD, Clarisse Lobo, MD, Hagop M. Kantarjian

Blood (2011) 118 (21): 114.

https://doi.org/10.1182/blood.V118.21.114.114

Published: 2011

Journal Articles

ENESTnd Update: Continued Superiority of Nilotinib Versus Imatinib In Patients with Newly Diagnosed Chronic Myeloid Leukemia In Chronic Phase (CML-CP)

Timothy P. Hughes, MD, MBBS, Andreas Hochhaus, MD, Giuseppe Saglio, Dong-Wook Kim, MD, PhD, Saengsuree Jootar, MD, Philipp D. le Coutre, MD, Josy Reiffers, Ricardo Pasquini, MD, Clarisse Lobo, MD, Richard E. Clark, MD, Neil J. Gallagher, MD, PhD, Albert Hoenekopp, MD, Ariful Haque, Richard A. Larson, MD, Hagop M. Kantarjian, MD

Blood (2010) 116 (21): 207.

https://doi.org/10.1182/blood.V116.21.207.207

Published: 2010

Journal Articles

Comparasion Between Nilotinib and Dasatinib as Second-Line Therapy for Patients with Chronic Myeloid Leukemia: A Single Center Retrospective Study.

Clarisse Lobo, MD, Carla Boquimpani, Tania Silva Madeira, Patricia Wendling, Claudia Maximo, Carlos Bernardo Lima, Elias Atta, Renata DE SOUZA Cravo

Blood (2010) 116 (21): 3440.

https://doi.org/10.1182/blood.V116.21.3440.3440

Published: 2010

Journal Articles

Hydroxyurea Therapy Reduces Mortality Among Children with Sickle Cell Disease

Clarisse Lobo, MD, Jane S Hankins, MD, MS, Patricia Moura, MD, Jorge Cunha Pinto, MD

Blood (2010) 116 (21): 843.

https://doi.org/10.1182/blood.V116.21.843.843

Published: 2010

Journal Articles

Efficacy and Safety of Deferasirox (Exjade®) in Patients with Transfusion- Dependent Anemias: Preliminary Results From the First, Retrospective, Multicenter Brazilian Study.

Blood (2009) 114 (22): 5096.

https://doi.org/10.1182/blood.V114.22.5096.5096

Published: 2009

Journal Articles

Nilotinib Demonstrates Superior Efficacy Compared with Imatinib in Patients with Newly Diagnosed Chronic Myeloid Leukemia in Chronic Phase: Results From the International Randomized Phase III ENESTnd Trial

Giuseppe Saglio, Dong-Wook Kim, MD, PhD, Surapol Issaragrisil, MD, FRCP, FACP, FRCPA, FRCPath, Philipp D. le Coutre, MD, Josy Reiffers, MD, Clarisse Lobo, MD, Ricardo Pasquini, MD, Richard E. Clark, MD, Timothy P. Hughes, MD, MBBS, Andreas Hochhaus, MD, Neil J. Gallagher, MD, PhD, Albert Hoenekopp, MD, Mei Dong, MD, MS, Ariful Haque, MS, Hagop M. Kantarjian, MD, Richard A. Larson, MD

Blood (2009) 114 (22): LBA-1.

https://doi.org/10.1182/blood.V114.22.LBA-1.LBA-1

Published: 2009

Journal Articles

Early Absolute Lymphocyte Count Recovery after Autologous Peripheral Hematopoietic Stem Cell Transplantation Depends on the Pre-Mobilization Absolute Lymphocyte Count and the Lymphocyte Dose in the Autograft.

Elias H. Atta, MD, Cláudia J.P.B. Coelho, MD, Silvia M.P. Sarcinelli, Cláudia A. Máximo, MD, Alexandre M. Azevedo, MSc, Vera L.N. Marra, MD, Clarisse Lobo, MD

Blood (2007) 110 (11): 4973.

https://doi.org/10.1182/blood.V110.11.4973.4973

Published: 2007

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Tailoring pediatric to adult care transition from high to low-resource settings: A user-centered design approach

Qualitative interviews exploring the patient experience of fatigue in individuals with sickle cell disease (SCD), thalassemia, and pyruvate kinase (PK) deficiency

Psychometric evaluation of the self-management skills checklist across Brazil and the United States: Toward global measurement of transition readiness in sickle cell disease

Healthcare transition readiness for sickle cell disease: A high- and low- income comparative analysis

Evaluation of Capacity for Implementation of Pediatric-to-Adult Care Transition for Sickle Cell Disease in Brazil

Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

Outpatient Costs of Patients with Sickle Cell Disease with or without Hydroxyurea at an Institution in Rio De Janeiro, Brazil

Cost Analysis of ACUTE Care Resource Utilization Among Individuals with Sickle Cell Disease in a Middle-Income Country

Sickle Cell Disease Mortality in Brazil: Real-World Evidence

Safe Use of Hydroxyurea in Sickle Cell Disease Patients Hospitalized for Painful Vaso-Occlusive Episodes: Results of the Randomized, Open-Label Helps Study

Case series of octogenarians with sickle cell disease

Initial Molecular Response At 3 Months Can Identify Three Groups Of Patients With Different Responses and Event-Free Survival At 36-Months Following Second-Generation Tyrosine Kinase Inhibitor Therapy In Imatinib-Resistant Chronic Myeloid Leukemia

Cognitive Dysfunction Occurs In Children with Sickle Cell Anemia without Cerebral Ischemic Insult or Vasculopathy

ENESTnd Update: Continued Superiority of Nilotinib Versus Imatinib In Patients with Newly Diagnosed Chronic Myeloid Leukemia In Chronic Phase (CML-CP)

Comparasion Between Nilotinib and Dasatinib as Second-Line Therapy for Patients with Chronic Myeloid Leukemia: A Single Center Retrospective Study.

Hydroxyurea Therapy Reduces Mortality Among Children with Sickle Cell Disease

Efficacy and Safety of Deferasirox (Exjade®) in Patients with Transfusion- Dependent Anemias: Preliminary Results From the First, Retrospective, Multicenter Brazilian Study.

Nilotinib Demonstrates Superior Efficacy Compared with Imatinib in Patients with Newly Diagnosed Chronic Myeloid Leukemia in Chronic Phase: Results From the International Randomized Phase III ENESTnd Trial

Early Absolute Lymphocyte Count Recovery after Autologous Peripheral Hematopoietic Stem Cell Transplantation Depends on the Pre-Mobilization Absolute Lymphocyte Count and the Lymphocyte Dose in the Autograft.

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