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Journal Articles

A Patient-Centric Approach to Sickle Cell Disease Clinical Trials: Integrating Patient Perspectives in the RISE UP Phase 2/3 Trial of Mitapivat for Informed Protocol Design and Associated Patient Community Benefit

Charles R. Jonassaint, Blaze Armon Eppinger, Dominique Friend, Golie Lorenzo Green, Mia Robinson, Teonna Woolford, DeMitrious Wyant, Janie Davis, Abdulafeez Oluyadi, Ahmar U Zaidi, Holly John, Wally R Smith

Blood (2023) 142 (Supplement 1): 2376.

https://doi.org/10.1182/blood-2023-186710

Published: 2023

Journal Articles

Assessing Psychosocial Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement

Steven J. Hardy, Lori E. Crosby, Jerlym S. Porter, Soumitri Sil, Cecelia R. Valrie, Charles R. Jonassaint, Shawn M. Bediako, Clayton Andrews, Maria Rivera, Teonna Woolford, Victoria H. Coleman-Cowger

Blood (2023) 142 (Supplement 1): 371.

https://doi.org/10.1182/blood-2023-190398

Published: 2023

Journal Articles

Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

Blood (2023) 142 (Supplement 1): 3692.

https://doi.org/10.1182/blood-2023-181632

Published: 2023

Journal Articles

Setting Industry Standards for Patient Engagement, Partnership, Allyship and Care: The Patient Vision Project

Biree Andemariam, Tamara Schryver, Rae Blaylark, Ralph Colasanti, Nirmish Shah, Charles R. Jonassaint, Rucha Shah, Cassandra Trimnell, Teonna Woolford, Janie Davis, Eva Gallagher, Ahmar U Zaidi, Holly John, Sujit Sheth

Blood (2023) 142 (Supplement 1): 7233.

https://doi.org/10.1182/blood-2023-181791

Published: 2023