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Journal Articles

Integrative Strong Body and Mind Training for Sickle Cell Disease (I-STRONG)-an Interdisciplinary, Multicomponent Treatment Approach for Pediatric Chronic SCD Pain

Blood (2024) 144 (Supplement 1): 291.

https://doi.org/10.1182/blood-2024-209083

Published: 2024

Journal Articles

Empowering Adolescents and Young Adults with Sickle Cell Disease: Development of a Shared Decision-Making Toolkit for Disease-Modifying Therapies

Aimee K. Hildenbrand, Melanie L Pitone, Benjamin Bear, Alyssa Decino, Corinna L. Schultz, Melissa A. Alderfer, Lori E. Crosby

Blood (2024) 144 (Supplement 1): 605.

https://doi.org/10.1182/blood-2024-200201

Published: 2024

Journal Articles

Acceptability and Feasibility of Salivary Stress Research with Adolescents and Young Adults with Sickle Cell Disease

Kemar V. Prussien, Lori E. Crosby, Margaret Mary Burke, Rosalind J. Wright, Alexis Thompson, Lisa A. Schwartz

Blood (2024) 144 (Supplement 1): 1067.

https://doi.org/10.1182/blood-2024-205076

Published: 2024

Journal Articles

Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services – the Comets Study; Results from Patient-Reported Outcomes at 6 Months

Sophia Jan, Caren Steinway, Tanisha Belton, Justine Shults, Laura Bennett, Heather Griffis, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Omar Niss, Lisa A. Schwartz, Lori E. Crosby, Lamia Barakat, Biree Andemariam, David Rubin, Kim Smith-Whitley

Blood (2024) 144 (Supplement 1): 1066.

https://doi.org/10.1182/blood-2024-205273

Published: 2024

Journal Articles

Prospective Biopsychosocial Impacts of Stress and Disease Stigma Among Adolescents and Young Adults with Sickle Cell Disease

Kemar V. Prussien, Lori E. Crosby, Margaret Mary Burke, Nikhil D. Grobes, Madison N. Smith, Rosalind J. Wright, Alexis Thompson, Lisa A. Schwartz

Blood (2024) 144 (Supplement 1): 3693.

https://doi.org/10.1182/blood-2024-205946

Published: 2024

Journal Articles

Community-Engaged Research in Psychological Interventions for Pediatric Sickle Cell Disease: A Scoping Review

Bridget N Murphy, Kristine Durkin, Desireé N Williford, Ariel Blakey, Chloe Musa, Anna M Hood, Malika Muhammad, Lori E. Crosby

Blood (2024) 144 (Supplement 1): 7524.

https://doi.org/10.1182/blood-2024-194916

Published: 2024

Journal Articles

Location, Location(s), Location(s+): Moving from Acute to Chronic Pain in SCD Pain in School-Age Children

Bridget N Murphy, Anna M Hood, Aimee K. Hildenbrand, Lisa M Shook, Charles T. Quinn, Erin Smoot, Soumitri Sil, Lori E. Crosby

Blood (2024) 144 (Supplement 1): 5360.

https://doi.org/10.1182/blood-2024-194912

Published: 2024

Journal Articles

SCD and COVID-19 Vaccines: What Do Pediatric Patients Want to Know?

Lisa M Shook, Amy Lang, Allison A. King, Kim Smith-Whitley, Alexis A. Thompson, Christina M Barriteau, Lisa Schwartz, Cami Mosely, Eniola Oke, Fatoumatou Jallow, Lori E. Crosby

Blood (2023) 142 (Supplement 1): 7199.

https://doi.org/10.1182/blood-2023-188984

Published: 2023

Journal Articles

Patterns of Nonadherence to Hydroxyurea in Pediatric Sickle Cell Disease

Lori E. Crosby, Amy Lang, Constance Mara, Charles T. Quinn, Corinna L. Schultz, Benjamin Bear, Tinuke E. Akintobi, Robin E. Miller, Aimee K. Hildenbrand

Blood (2023) 142 (Supplement 1): 7198.

https://doi.org/10.1182/blood-2023-187611

Published: 2023

Journal Articles

Disease-Modifying Therapies for Sickle Cell Disease: Decisional Needs and Supports Among Adolescents and Young Adults

Ke Ding, Benjamin Bear, Erica Sood, Melissa A. Alderfer, Lori E. Crosby, Aimee K. Hildenbrand

Blood (2023) 142 (Supplement 1): 5059.

https://doi.org/10.1182/blood-2023-178794

Published: 2023

Journal Articles

Taking Shared Decision Making from Concept to Clinical Practice: What Do Sickle Cell Healthcare Providers Need?

Aimee K. Hildenbrand, Benjamin Bear, Amanda M. Lewis, Corinna L. Schultz, Melissa A. Alderfer, Lori E. Crosby

Blood (2023) 142 (Supplement 1): 5054.

https://doi.org/10.1182/blood-2023-186739

Published: 2023

Journal Articles

Assessing Psychosocial Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement

Steven J. Hardy, Lori E. Crosby, Jerlym S. Porter, Soumitri Sil, Cecelia R. Valrie, Charles R. Jonassaint, Shawn M. Bediako, Clayton Andrews, Maria Rivera, Teonna Woolford, Victoria H. Coleman-Cowger

Blood (2023) 142 (Supplement 1): 371.

https://doi.org/10.1182/blood-2023-190398

Published: 2023

Journal Articles

A Health Equity Echo for Providers of Children and Adults with Sickle Cell Disease

Lisa M Shook, Lori E. Crosby, Wanda Whitten-Shurney, Linda Drawhorn, Fouza I. Yusuf, Christina Bennett Farrell, Stephen C Nelson

Blood (2022) 140 (Supplement 1): 13141–13142.

https://doi.org/10.1182/blood-2022-168716

Published: 2022

Journal Articles

Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia

Blood (2022) 140 (Supplement 1): 10857–10859.

https://doi.org/10.1182/blood-2022-167914

Published: 2022

Journal Articles

A New Phen X Collection: Sickle Cell Disease Psychosocial and Social Determinants of Health Protocols

Lori E. Crosby, Allison A. King, Jerlym S. Porter, Sherif M. Badawy, Dominique Bulgin, Steven J. Hardy, Staci D. Arnold, Desiree Williford, Marsha Treadwell, Wayne Huggins, Cataia Ives, Marian Sullivan, Carol Hamilton

Blood (2022) 140 (Supplement 1): 7898–7899.

https://doi.org/10.1182/blood-2022-167739

Published: 2022

Journal Articles

Hydroxyurea Use Among Youth with Sickle Cell Anemia across Eight Care Centers within the United States

Aimee K. Hildenbrand, Daniel Eckrich, Amanda M. Lewis, Corinna L. Schultz, Melissa A. Alderfer, Christopher B. Forrest, Susan E. Creary, Monica L. Hulbert, Suchitra Rao, Dimitri A. Christakis, Lori E. Crosby

Blood (2022) 140 (Supplement 1): 7875–7876.

https://doi.org/10.1182/blood-2022-167241

Published: 2022

Journal Articles

Effects of the COVID-19 Pandemic on Caregivers of Young Children with Sickle Cell Disease Enrolled in the Engage-HU Trial

Blood (2021) 138 (Supplement 1): 1891.

https://doi.org/10.1182/blood-2021-152722

Published: 2021

Journal Articles

Mobile Health Use Predicts Self-Efficacy and Self-Management in Adolescents with Sickle Cell Disease

Anna M Hood, PhD, Cara Nwankwo, BA, Emily McTate, PhD, Naomi E Joffe, PhD, Charles T. Quinn, MD, James L Peugh, PhD, Lori E Crosby, PsyD

Blood (2020) 136 (Supplement 1): 57–58.

https://doi.org/10.1182/blood-2020-140805

Published: 2020

Journal Articles

Leveraging Project Echo Telementoring to Improve Sickle Cell Disease Care in the Midwest: Expanding Provider Education during a Pandemic

Lisa M Shook, DHPE, Christina Bennett Farrell, MPH, Cami Mosley, MPH, Lori E Crosby, PsyD, Charles T. Quinn, MD

Blood (2020) 136 (Supplement 1): 21.

https://doi.org/10.1182/blood-2020-140705

Published: 2020

Journal Articles

Addressing Recruitment Challenges in the Engage-HU Trial in Young Children with Sickle Cell Disease

Blood (2020) 136 (Supplement 1): 26–27.

https://doi.org/10.1182/blood-2020-141471

Published: 2020

NARROW

Integrative Strong Body and Mind Training for Sickle Cell Disease (I-STRONG)-an Interdisciplinary, Multicomponent Treatment Approach for Pediatric Chronic SCD Pain

Empowering Adolescents and Young Adults with Sickle Cell Disease: Development of a Shared Decision-Making Toolkit for Disease-Modifying Therapies

Acceptability and Feasibility of Salivary Stress Research with Adolescents and Young Adults with Sickle Cell Disease

Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services – the Comets Study; Results from Patient-Reported Outcomes at 6 Months

Prospective Biopsychosocial Impacts of Stress and Disease Stigma Among Adolescents and Young Adults with Sickle Cell Disease

Community-Engaged Research in Psychological Interventions for Pediatric Sickle Cell Disease: A Scoping Review

Location, Location(s), Location(s+): Moving from Acute to Chronic Pain in SCD Pain in School-Age Children

SCD and COVID-19 Vaccines: What Do Pediatric Patients Want to Know?

Patterns of Nonadherence to Hydroxyurea in Pediatric Sickle Cell Disease

Disease-Modifying Therapies for Sickle Cell Disease: Decisional Needs and Supports Among Adolescents and Young Adults

Taking Shared Decision Making from Concept to Clinical Practice: What Do Sickle Cell Healthcare Providers Need?

Assessing Psychosocial Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement

A Health Equity Echo for Providers of Children and Adults with Sickle Cell Disease

Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia

A New Phen X Collection: Sickle Cell Disease Psychosocial and Social Determinants of Health Protocols

Hydroxyurea Use Among Youth with Sickle Cell Anemia across Eight Care Centers within the United States

Effects of the COVID-19 Pandemic on Caregivers of Young Children with Sickle Cell Disease Enrolled in the Engage-HU Trial

Mobile Health Use Predicts Self-Efficacy and Self-Management in Adolescents with Sickle Cell Disease

Leveraging Project Echo Telementoring to Improve Sickle Cell Disease Care in the Midwest: Expanding Provider Education during a Pandemic

Addressing Recruitment Challenges in the Engage-HU Trial in Young Children with Sickle Cell Disease

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American Society of Hematology

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