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Journal Articles

Qualitative interviews exploring the patient experience of fatigue in individuals with sickle cell disease (SCD), thalassemia, and pyruvate kinase (PK) deficiency

Blood (2025) 146 (Supplement 1): 7971.

https://doi.org/10.1182/blood-2025-7971

Published: 2025

Journal Articles

Feasibility of wearable technology for remote monitoring in high-risk adults with sickle cell disease: Baseline data from the SCD-carre trial

Charles Jonassaint, Alicia Colvin, Colleen Ballantyne, Marnie Bertolet, Jude Jonassaint, Carissa Low, Nirmish Shah, Ella Zadorozny, Fuad El Rassi, Santosh Saraf, Wally Smith, Maria Brooks, Darrell Triulzi, Mark Gladwin

Blood (2025) 146 (Supplement 1): 2600.

https://doi.org/10.1182/blood-2025-2600

Published: 2025

Journal Articles

Sickle cell disease trials redefined: Toward unified clinical endpoints through international consensus

Mohamed Yassin, Nirmish Shah, Andrew Campbell, Salam Al-Kindi, Wally Smith, Charles Jonassaint, Miguel Abboud, Raffaella Colombatti, Dipty Jain, Halima Bello-Manga, Mariane de Montalembert, Ana Silva-Pinto, Steven Okoli, Abdelaziz Fahem, Biree Andemariam

Blood (2025) 146 (Supplement 1): 1166.

https://doi.org/10.1182/blood-2025-1166

Published: 2025

Journal Articles

Exploring Differences in Hospital Readmissions in Patients with Sickle Cell Disease By Examining Patterns with mHealth-Acquired Pain and Physiologic Data

Shannon Ford, Jhana Parikh, Abhinav Gundala, Caroline Vuong, Arvind Subramaniam, Elizabeth Hensley, Olivia Fernandez, Nirmish Shah

Blood (2024) 144 (Supplement 1): 3898.

https://doi.org/10.1182/blood-2024-207317

Published: 2024

Journal Articles

How to Lose an App in 10 Days: Exploring Digital Health Engagement in Sickle Cell Disease

Arvind Mallikarjunan, Abhinav Gundala, Jhana Parikh, Elizabeth Hensley, Olivia Fernandez, Caroline Vuong, Shannon Ford, Nirmish Shah

Blood (2024) 144 (Supplement 1): 1136.

https://doi.org/10.1182/blood-2024-209656

Published: 2024

Journal Articles

Preclinical and Clinical Use of AB1, a DNMT1 Protein Depleter, to Upregulate Fetal Hemoglobin in Townes Sickle Cell Disease (SCD) Mice and Patients with SCD

Nirmish Shah, Girindra Raval, Abdullah Kutlar, Niren Patel, Mayuko Takezaki, Biaoru Li, Manickam Alagar, Hongyan Xu, Kelly Blackburn, Santhosh Vadivelu, Robert Schaub, David Santos, Betty Pace

Blood (2023) 142 (Supplement 1): 276.

https://doi.org/10.1182/blood-2023-188165

Published: 2023

Journal Articles

Lessons Learned from Nanbar Health: Developing a Multi-System Software Suite for Predictive Algorithms and Remote Monitoring for People Living with Sickle Cell Disease

Arvind Mallikarjunan, Elizabeth Hensley, Abhinav Gundala, Jhana Parikh, Olivia Fernandez, Kumar Utkarsh, Caroline Vuong, Shannon Ford, Nirmish Shah

Blood (2023) 142 (Supplement 1): 5308.

https://doi.org/10.1182/blood-2023-188977

Published: 2023

Journal Articles

Setting Industry Standards for Patient Engagement, Partnership, Allyship and Care: The Patient Vision Project

Biree Andemariam, Tamara Schryver, Rae Blaylark, Ralph Colasanti, Nirmish Shah, Charles R. Jonassaint, Rucha Shah, Cassandra Trimnell, Teonna Woolford, Janie Davis, Eva Gallagher, Ahmar U Zaidi, Holly John, Sujit Sheth

Blood (2023) 142 (Supplement 1): 7233.

https://doi.org/10.1182/blood-2023-181791

Published: 2023

Journal Articles

Use of Apple Watch to Acquire Baseline Wearable Biometric Data for Patients with Sickle Cell Disease and Correlations to Symptoms Such As Pain and Fatigue

Olivia Fernandez, Logan Long, Arvind Mallikarjunan, Abhinav Gundala, Nirmish Shah

Blood (2023) 142 (Supplement 1): 5290.

https://doi.org/10.1182/blood-2023-188096

Published: 2023

Journal Articles

Use of Machine Learning to Predict 30-Day Reutilization of Care for Patients with Sickle Cell Disease Treated for Vaso-Occlusive Crisis

Caroline Vuong, Kumar Utkarsh, Rebecca Stojancic, Arvind Mallikarjunan, Olivia Fernandez, Tanvi Banerjee, Daniel A. Abrams, Karin Fijnvandraat, Nirmish Shah

Blood (2023) 142 (Supplement 1): 3896.

https://doi.org/10.1182/blood-2023-186272

Published: 2023

Journal Articles

Development of a Patient Reported Outcome Daily Diary to Assess Symptom Burden in Sickle Cell Disease

Gale Harding, Julia Correll, Nirmish Shah, Danellys Borroto, George J Joseph, Ankur Dashputre

Blood (2023) 142 (Supplement 1): 3749.

https://doi.org/10.1182/blood-2023-173620

Published: 2023

Journal Articles

A Randomized Clinical Trial Testing the Effect of Digital Behavioral Interventions on Pain and Mental Health Among Adults with Sickle Cell Disease

Blood (2023) 142 (Supplement 1): 789.

https://doi.org/10.1182/blood-2023-186763

Published: 2023

Journal Articles

Associations between Epigenetic Age Acceleration and Psychoneurological Symptoms in Sickle Cell Disease

Rita V Masese, Allison E Ashley-Koch, Brandon M Lê, Daniel Hatch, Qing Yang, Faith Luyster, Paula Jean Tanabe, Nirmish Shah, Mitchell Knisely

Blood (2023) 142 (Supplement 1): 5263.

https://doi.org/10.1182/blood-2023-187274

Published: 2023

Journal Articles

Pharmacokinetics, Pharmacodynamics, Safety, and Efficacy of Crizanlizumab in Patients with Sickle Cell Disease: Final Interim Analysis Results from the Phase 2 Solace-Adults Study

Julie Kanter, Sarah Mennito, Santosh M Nair, Deepa Manwani, Abdullah Kutlar, Nirmish Shah, Deborah Keefe, Hariprasad Madhamshetty, Evgeniya Reshetnyak, Anisha E Mendonza, Darla K. Liles

Blood (2023) 142 (Supplement 1): 2532.

https://doi.org/10.1182/blood-2023-173342

Published: 2023

Journal Articles

Assessing Pain Severity in Sickle Cell Disease Using Animations and a Graphical Body Image

Blood (2023) 142 (Supplement 1): 5052.

https://doi.org/10.1182/blood-2023-189667

Published: 2023

Journal Articles

Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

Blood (2023) 142 (Supplement 1): 3692.

https://doi.org/10.1182/blood-2023-181632

Published: 2023

Journal Articles

Engagement with Incharge App - a Mobile Health Intervention to Improve Adherence to Hydroxyurea Among Individuals with Sickle Cell Disease

Christina M Abrams, Natalia Davila, Cathy Melvin, Sherif M. Badawy, Michael B Potter, Robert Gibson, Allison A King, Victor R. Gordeuk, Chinonyelum Nwosu, Jerlym S. Porter, Sophie Li, Jeffrey A. Glassberg, Richard Lottenberg, Lisa Klesges, Nirmish Shah, Jane S Hankins

Blood (2023) 142 (Supplement 1): 1144.

https://doi.org/10.1182/blood-2023-179272

Published: 2023

Journal Articles

Sickle Cell Disease Management Practices across Nigeria: A Cross-Sectional Analysis

Stephanie Ibemere, Tonia Onyeka, Osita Ezenwosu, Helen Chioma Okoye, Ngozi Ugwu, Paula Jean Tanabe, Nirmish Shah, Echezona Ezeanolue

Blood (2023) 142 (Supplement 1): 1143.

https://doi.org/10.1182/blood-2023-178129

Published: 2023

Journal Articles

Real-World Experience of Individuals with Sickle Cell Disease Treated with Voxelotor: Initial Report from the Multicenter, Prospective Prospect Study

Biree Andemariam, Henny H. Billett, William B Ershler, Shayla Bergmann, Vishwas S. Sakhalkar, Alicia Chang, Payal Desai, Nirmish Shah, Sharon Pennington, Robin E. Miller, Laura M. Decastro, Michelle Xu, Brooke Hayward, Ching-Ray Yu, Darla K. Liles

Blood (2023) 142 (Supplement 1): 2499.

https://doi.org/10.1182/blood-2023-188746

Published: 2023

Journal Articles

Active Study: Impact of Voxelotor on Sleep Quality, Physical Activity, and Patient-Reported Outcomes

Nirmish Shah, Clark Brown, Biree Andemariam, Modupe Idowu, Alexander Glaros, Jeffrey Glassberg, Robert M Cronin, Barbara Moehring, Carolyn Hoppe, Sandy Dixon, Deepa Manwani

Blood (2022) 140 (Supplement 1): 5411–5413.

https://doi.org/10.1182/blood-2022-168317

Published: 2022

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Qualitative interviews exploring the patient experience of fatigue in individuals with sickle cell disease (SCD), thalassemia, and pyruvate kinase (PK) deficiency

Feasibility of wearable technology for remote monitoring in high-risk adults with sickle cell disease: Baseline data from the SCD-carre trial

Sickle cell disease trials redefined: Toward unified clinical endpoints through international consensus

Exploring Differences in Hospital Readmissions in Patients with Sickle Cell Disease By Examining Patterns with mHealth-Acquired Pain and Physiologic Data

How to Lose an App in 10 Days: Exploring Digital Health Engagement in Sickle Cell Disease

Preclinical and Clinical Use of AB1, a DNMT1 Protein Depleter, to Upregulate Fetal Hemoglobin in Townes Sickle Cell Disease (SCD) Mice and Patients with SCD

Lessons Learned from Nanbar Health: Developing a Multi-System Software Suite for Predictive Algorithms and Remote Monitoring for People Living with Sickle Cell Disease

Setting Industry Standards for Patient Engagement, Partnership, Allyship and Care: The Patient Vision Project

Use of Apple Watch to Acquire Baseline Wearable Biometric Data for Patients with Sickle Cell Disease and Correlations to Symptoms Such As Pain and Fatigue

Use of Machine Learning to Predict 30-Day Reutilization of Care for Patients with Sickle Cell Disease Treated for Vaso-Occlusive Crisis

Development of a Patient Reported Outcome Daily Diary to Assess Symptom Burden in Sickle Cell Disease

A Randomized Clinical Trial Testing the Effect of Digital Behavioral Interventions on Pain and Mental Health Among Adults with Sickle Cell Disease

Associations between Epigenetic Age Acceleration and Psychoneurological Symptoms in Sickle Cell Disease

Pharmacokinetics, Pharmacodynamics, Safety, and Efficacy of Crizanlizumab in Patients with Sickle Cell Disease: Final Interim Analysis Results from the Phase 2 Solace-Adults Study

Assessing Pain Severity in Sickle Cell Disease Using Animations and a Graphical Body Image

Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

Engagement with Incharge App - a Mobile Health Intervention to Improve Adherence to Hydroxyurea Among Individuals with Sickle Cell Disease

Sickle Cell Disease Management Practices across Nigeria: A Cross-Sectional Analysis

Real-World Experience of Individuals with Sickle Cell Disease Treated with Voxelotor: Initial Report from the Multicenter, Prospective Prospect Study

Active Study: Impact of Voxelotor on Sleep Quality, Physical Activity, and Patient-Reported Outcomes

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American Society of Hematology

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