1-9 of 9
Charles Jonassaint
Close
Save search
Follow your search
Access your saved searches in your account
Would you like to receive an alert when new items match your search?
Close Modal
Sort by
Journal Articles

Psychosocial considerations during and after gene therapy for sickle cell disease: Building on consensus to guide comprehensive care

Free
Jerlym Porter, Victoria Coleman-Cowger, Steven Hardy, Juan Salomon, Beth Thompson, Ugonna Anyadike, Katrina Dalton, Clevetta Drew, Melissa Gordon-Pitts, Charles Jonassaint, Phillip Okwo, Teonna Woolford, Cecelia Valrie
Journal: Blood
Blood (2025) 146 (Supplement 1): 126.
https://doi.org/10.1182/blood-2025-126
Published: 2025
Journal Articles

Qualitative interviews exploring the patient experience of fatigue in individuals with sickle cell disease (SCD), thalassemia, and pyruvate kinase (PK) deficiency

Free
Biree Andemariam, NinaMaria Badalamenti, Rae Blaylark, Audra Boscoe, Lily Cannon, Ralph Colasanti, Janie Davis, Daniel Ford, Rachael Grace, Holly John, Charles Jonassaint, Sarah Knight, Kevin Kuo, Laurice Levine, Clarisse Lobo, Jake Macey, Susan Morris, Parija Patel, Tamara Schryver, Nirmish Shah, Sujit Sheth, Cassandra Trimnell, Jack Wakefield, Alejandra Watson, Jill Welle, Teonna Woolford, Raffaella Colombatti
Journal: Blood
Blood (2025) 146 (Supplement 1): 7971.
https://doi.org/10.1182/blood-2025-7971
Published: 2025
Journal Articles

Feasibility of wearable technology for remote monitoring in high-risk adults with sickle cell disease: Baseline data from the SCD-carre trial

Free
Charles Jonassaint, Alicia Colvin, Colleen Ballantyne, Marnie Bertolet, Jude Jonassaint, Carissa Low, Nirmish Shah, Ella Zadorozny, Fuad El Rassi, Santosh Saraf, Wally Smith, Maria Brooks, Darrell Triulzi, Mark Gladwin
Journal: Blood
Blood (2025) 146 (Supplement 1): 2600.
https://doi.org/10.1182/blood-2025-2600
Published: 2025
Journal Articles

Suicide risk management protocol (SRMP) for presence trial in adolescents and young adults (AYAs) living with sickle cell disease (SCD) and chronic pain

Free
Steffi Siebert, Laura De Castro, Charles Jonassaint, Amy Tiberi, Ana Radovic
Journal: Blood
Blood (2025) 146 (Supplement 1): 8225.
https://doi.org/10.1182/blood-2025-8225
Published: 2025
Journal Articles

Sickle cell disease trials redefined: Toward unified clinical endpoints through international consensus

Free
Mohamed Yassin, Nirmish Shah, Andrew Campbell, Salam Al-Kindi, Wally Smith, Charles Jonassaint, Miguel Abboud, Raffaella Colombatti, Dipty Jain, Halima Bello-Manga, Mariane de Montalembert, Ana Silva-Pinto, Steven Okoli, Abdelaziz Fahem, Biree Andemariam
Journal: Blood
Blood (2025) 146 (Supplement 1): 1166.
https://doi.org/10.1182/blood-2025-1166
Published: 2025
Journal Articles

Trends of Disease Modifying Treatment Use in Sickle Cell Disease: Retrospective Analysis of Claims Data, 2014-2020

Free
Terri Newman, Jingye Yang, Kangho Suh, Charles Jonassaint, Sandra Kane-Gill, Enrico M Novelli
Journal: Blood
Blood (2022) 140 (Supplement 1): 1389–1390.
https://doi.org/10.1182/blood-2022-159197
Published: 2022
Journal Articles

Assessing the Validity of the Brief Pain Inventory for Use Among Adults with Sickle Cell Disease

Free
Jordan Driscoll, BA, Mikhil Bamne, PhD, Charles Jonassaint, PhD
Journal: Blood
Blood (2017) 130 (Supplement 1): 5579.
https://doi.org/10.1182/blood.V130.Suppl_1.5579.5579
Published: 2017
Journal Articles

Assessing Perceptions of Hydroxyurea Among Sickle Cell Disease Stakeholders Using Social Media

Free
Aisha L Walker, PhD MPH, Rosta Farzan, PhD, Laura M Gaydos, PhD, Laura DeCastro, MD MHSc, Charles Jonassaint, PhD
Journal: Blood
Blood (2016) 128 (22): 318.
https://doi.org/10.1182/blood.V128.22.318.318
Published: 2016
Journal Articles

Using Social Media to Assess Patient and Family Perceptions of Bone Marrow Transplant, Gene Therapy and Other Potentially Curative Treatments for Sickle Cell Disease (SCD)

Free
Charles Jonassaint, PhD, Aisha L Walker, PhD MPH, Rosta Farzan, PhD, Laura M. De Castro, MD, Tosin Ola, BSN, RN, Lakiea Bailey, PhD
Journal: Blood
Blood (2016) 128 (22): 5921.
https://doi.org/10.1182/blood.V128.22.5921.5921
Published: 2016