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Journal Articles

Development of the sickle cell outcome grading system (SCOGS), a novel classification system for sickle cell disease severity

Free
Tarun Aurora, Renee Hodges, Joseph Wardell, Martha Barton, Janna Lipford, Clifford Takemoto, Marisol Betensky, Payal Desai, Seethal Jacob, Parul Rai, John Strouse, Lewis Hsu, Melissa Azul, Monica Hulbert, Winfred Wang, Ravi Talati, Robert Liem, Sheinei Alan, Elizabeth Klings, Abena Appiah-Kubi, Caterina Minniti, India Sisler, Patrick McGann, Madhav Vissa, Marquita Nelson, Stephanie Guarino, Robin Miller, Sharl Azar, Sherif Badawy, Christina Abrams, Sophie Lanzkron, Elna Saah, Farranz Alvarez Nunez, Nadirah El-Amin, Nickhill Bhakta, Jane Hankins
Journal: Blood
Blood (2025) 146 (Supplement 1): 2942.
https://doi.org/10.1182/blood-2025-2942
Published: 2025
Journal Articles

Psychometric evaluation of the self-management skills checklist across Brazil and the United States: Toward global measurement of transition readiness in sickle cell disease

Free
Kelly Pimenta, Alejandro Vázquez, Patricia Moura, Thiago Vilela, Renee Hodges, Nicholas Faris, Danila Sala, Thais Oliveira, Heloisa Silva, Tarun Aurora, Andrea Angel, Patricia Blum, Maria Farias, Josefina Braga, Clarisse Lobo, Jerlym Porter, Jane Hankins
Journal: Blood
Blood (2025) 146 (Supplement 1): 1186.
https://doi.org/10.1182/blood-2025-1186
Published: 2025
Journal Articles

Clinical and laboratory findings in adults with sickle cell disease which increase risk for severe acute chest syndrome

Free
Jason Lofters, Cassandra Chua, Jessica Moore, Bharath Miriyam, Augusta Alwang, Anish Vora, Renee Hodges, Tarun Aurora, Jane Hankins, Nickhill Bhakta, Robyn Cohen, Elizabeth Klings
Journal: Blood
Blood (2025) 146 (Supplement 1): 1175.
https://doi.org/10.1182/blood-2025-1175
Published: 2025
Journal Articles

Healthcare transition readiness for sickle cell disease: A high- and low- income comparative analysis

Free
Kelly Pimenta, Jerlym Porter, Patricia Moura, Thiago Vilela, Renee Hodges, Nicholas Faris, Danila Sala, Thais Oliveira, Heloisa Silva, Tarun Aurora, Andrea Angel, Patricia Blum, Maria Farias, Ana Baumann, Maria Figueiredo, Josefina Braga, Clarisse Lobo, Jane Hankins
Journal: Blood
Blood (2025) 146 (Supplement 1): 4740.
https://doi.org/10.1182/blood-2025-4740
Published: 2025
Journal Articles

Assessing replicability in chronic kidney disease severity scoring classifications using the sickle cell outcome grading system

Free
India Sisler, Nadirah El-Amin, Joseph Wardell, Tarun Aurora, Daniel Semakula, Sophie Lanzkron, Jane Hankins, Renee Hodges
Journal: Blood
Blood (2025) 146 (Supplement 1): 4749.
https://doi.org/10.1182/blood-2025-4749
Published: 2025
Journal Articles

Hemoglobin SC disease: Clinical analysis from the Georgia comprehensive sickle cell center at grady memorial hospital, Atlanta, Georgia.

Free
Abraham Attah, Abisola Ajayi, Jhonsley Frederic, Fareedah Badmus, Dominique Mosley, Eldrida Randall, Tarun Aurora, Nneka Nwachukwu, Ross Fasano, Morgan McLemore, Fuad El Rassi
Journal: Blood
Blood (2025) 146 (Supplement 1): 6533.
https://doi.org/10.1182/blood-2025-6533
Published: 2025
Journal Articles

Prevalence and factors associated with acute transfusion reactions among patients receiving blood transfusions in regional referral hospitals in dar es salaam, Tanzania

Free
Raymond Mushi, Tarun Aurora, Koga Luhulla, Magdalena Lyimo
Journal: Blood
Blood (2025) 146 (Supplement 1): 3141.
https://doi.org/10.1182/blood-2025-3141
Published: 2025
Journal Articles

Empowering families through conversational design: A chatbot for sickle cell care

Free
Tulika Banerjee, Morgan Greenleaf, Santiago Arconada Alvarez, Tarun Aurora, Jan Mooney, Beatrice Gee
Journal: Blood
Blood (2025) 146 (Supplement 1): 2591.
https://doi.org/10.1182/blood-2025-2591
Published: 2025
Journal Articles

Tailoring pediatric to adult care transition from high to low-resource settings: A user-centered design approach

Free
Tarun Aurora, Danila Sala, Clarisse Lobo, Maria Figueiredo, Josefina Braga, Kelly Pimenta, Nicholas Faris, Patricia Moura, Patricia Blum, Andrea Angel, Maria Farias, Thiago Vilela, Heloisa Silva, Thais Oliveira, Marcia Senra, Talita Rodrigues, Ana Baumann, Jane Hankins
Journal: Blood
Blood (2025) 146 (Supplement 1): 2589.
https://doi.org/10.1182/blood-2025-2589
Published: 2025
Journal Articles

Determinants of Linkage to Care in a New Newborn Screening Care Program for Sickle Cell Disease in Ghana, West Africa

Free
Lookman Sunday Ibrahim, Tarun Aurora, Stephanie Adjinkpang, Sanni Ibrahim, Mohammed Hafiz Kanamu, Sheila A Owusu, Jane S Hankins, Kirsten K Ness, Alhassan Abdul-Mumin
Journal: Blood
Blood (2024) 144 (Supplement 1): 392.
https://doi.org/10.1182/blood-2024-205127
Published: 2024
Journal Articles

Outpatient Costs of Patients with Sickle Cell Disease with or without Hydroxyurea at an Institution in Rio De Janeiro, Brazil

Free
Tarun Aurora, Patricia Moura, Delaine Fidlarczyk, Jane Duran, Roberto Barbosa, Thais Oliveira, Emilia Nascimento, Jane S Hankins, Clarisse Lobo
Journal: Blood
Blood (2023) 142 (Supplement 1): 7325.
https://doi.org/10.1182/blood-2023-179610
Published: 2023
Journal Articles

Evaluation of Capacity for Implementation of Pediatric-to-Adult Care Transition for Sickle Cell Disease in Brazil

Free
Kelly Pimenta, Tarun Aurora, Perla Vicari, Thais Oliveira, Heloisa Helena Miranda, Maria Stella Figueiredo, Patricia Moura, Josefina Braga, Clarisse Lobo, Andrea Angel, Thiago Vilela, Patricia Blum, Maria Jose de Farias Ramos Reis, Ana Baumann, Jane S Hankins
Journal: Blood
Blood (2023) 142 (Supplement 1): 2296.
https://doi.org/10.1182/blood-2023-178672
Published: 2023
Journal Articles

Successful HPV Vaccination in Adolescents with Sickle Cell Disease Following a Quality Improvement Bundle Intervention

Free
Tarun Aurora, Audrey Cole, Parul Rai, Paul T Lavoie, Carrie McIvor, Lisa Klesges, Guolian Kang, Juan Ding, Heather Brandt, Jane S Hankins
Journal: Blood
Blood (2021) 138 (Supplement 1): 914.
https://doi.org/10.1182/blood-2021-151461
Published: 2021