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Journal Articles

Feasibility of impementing pre-marital genetic counseling in kano, northern Nigeria using the cfir-eric model

Aisha Galadanci Akilu, Faisal Dankishiya, Sabiu Yarima, Umma Ibrahim, Bilya Musa, Abdulkadir Yusuf, Aisha Mukaddas, Yvonne Carroll, Tessa Youngner, Nicholas Faris, Jane Hankins, Zubaida Farouk

Blood (2025) 146 (Supplement 1): 6228.

https://doi.org/10.1182/blood-2025-6228

Published: 2025

Journal Articles

Application and challenges of the sickle cell outcome grading system (SCOGS) for classifying acute chest syndrome severity

Joseph Wardell, Renee Hodges, Janna Lipford, Matthew Wogksch, Cassandra Chua, Jason Lofters, Bharath Miriyam, Elizabeth Klings, Nickhill Bhakta, Jane Hankins

Blood (2025) 146 (Supplement 1): 2969.

https://doi.org/10.1182/blood-2025-2969

Published: 2025

Journal Articles

Healthcare transition readiness for sickle cell disease: A high- and low- income comparative analysis

Kelly Pimenta, Jerlym Porter, Patricia Moura, Thiago Vilela, Renee Hodges, Nicholas Faris, Danila Sala, Thais Oliveira, Heloisa Silva, Tarun Aurora, Andrea Angel, Patricia Blum, Maria Farias, Ana Baumann, Maria Figueiredo, Josefina Braga, Clarisse Lobo, Jane Hankins

Blood (2025) 146 (Supplement 1): 4740.

https://doi.org/10.1182/blood-2025-4740

Published: 2025

Journal Articles

Building healthcare professional capacity in sickle cell disease through a global case-based discussion program

Ombeni Idassi, Alhassan Abdul-Mumin, Paula Kjollerstrom, Brigida Santos, Khalid Elbashir, Fathea Bani, Nicholas Faris, Caitlin Soma, Jane Hankins

Blood (2025) 146 (Supplement 1): 6159.

https://doi.org/10.1182/blood-2025-6159

Published: 2025

Journal Articles

Budget impact analysis for sickle cell disease point-of-care testing in Mozambique

La'Ron Browne, Nancy Bolous, Rocio Caja Rivera, Chishamiso Mudenyanga, Tessa Younger, Nicholas Faris, Ana Mocumbi, Jane Hankins

Blood (2025) 146 (Supplement 1): 4369.

https://doi.org/10.1182/blood-2025-4369

Published: 2025

Journal Articles

Tailoring pediatric to adult care transition from high to low-resource settings: A user-centered design approach

Tarun Aurora, Danila Sala, Clarisse Lobo, Maria Figueiredo, Josefina Braga, Kelly Pimenta, Nicholas Faris, Patricia Moura, Patricia Blum, Andrea Angel, Maria Farias, Thiago Vilela, Heloisa Silva, Thais Oliveira, Marcia Senra, Talita Rodrigues, Ana Baumann, Jane Hankins

Blood (2025) 146 (Supplement 1): 2589.

https://doi.org/10.1182/blood-2025-2589

Published: 2025

Journal Articles

Machine learning replicates and extends clinician-informed disease severity grading classification for acute pain and CKD in sickle cell disease

Minzhang Zheng, Joseph Wardell, Renee Hodges, Janna Lipford, Deepa Manwani, Clifford Takemoto, Nickhill Bhakta, Jane Hankins, Yong Cheng

Blood (2025) 146 (Supplement 1): 4733.

https://doi.org/10.1182/blood-2025-4733

Published: 2025

Journal Articles

Assessing replicability in chronic kidney disease severity scoring classifications using the sickle cell outcome grading system

India Sisler, Nadirah El-Amin, Joseph Wardell, Tarun Aurora, Daniel Semakula, Sophie Lanzkron, Jane Hankins, Renee Hodges

Blood (2025) 146 (Supplement 1): 4749.

https://doi.org/10.1182/blood-2025-4749

Published: 2025

Journal Articles

Psychometric evaluation of the self-management skills checklist across Brazil and the United States: Toward global measurement of transition readiness in sickle cell disease

Kelly Pimenta, Alejandro Vázquez, Patricia Moura, Thiago Vilela, Renee Hodges, Nicholas Faris, Danila Sala, Thais Oliveira, Heloisa Silva, Tarun Aurora, Andrea Angel, Patricia Blum, Maria Farias, Josefina Braga, Clarisse Lobo, Jerlym Porter, Jane Hankins

Blood (2025) 146 (Supplement 1): 1186.

https://doi.org/10.1182/blood-2025-1186

Published: 2025

Journal Articles

Clinical and laboratory findings in adults with sickle cell disease which increase risk for severe acute chest syndrome

Jason Lofters, Cassandra Chua, Jessica Moore, Bharath Miriyam, Augusta Alwang, Anish Vora, Renee Hodges, Tarun Aurora, Jane Hankins, Nickhill Bhakta, Robyn Cohen, Elizabeth Klings

Blood (2025) 146 (Supplement 1): 1175.

https://doi.org/10.1182/blood-2025-1175

Published: 2025

Journal Articles

Single-cell analysis reveals distinct γ-globin expression profiles in sickle cell disease with pancellular fetal hemoglobin

Phillip Doerfler, Yichao Li, Yu Yao, Ruopeng Feng, Thiyagaraj Mayuranathan, Jingjing Zhang, Emilia Kooienga, David Cullins, Rohith Jesudas, Dillon Williams, David Wood, Jane Hankins, Yong Cheng, Mitchell Weiss

Blood (2025) 146 (Supplement 1): 1149.

https://doi.org/10.1182/blood-2025-1149

Published: 2025

Journal Articles

Barriers to continuity of care and adult practice retention among adolescents and young adults with sickle cell disease

Yogindra Persaud, Paul Lavoie, Rana Cooper, Tralana Woodley, Sheila Anderson, Pei-Lin Chen, Jane Hankins, Marquita Nelson, Parul Rai

Blood (2025) 146 (Supplement 1): 4379.

https://doi.org/10.1182/blood-2025-4379

Published: 2025

Journal Articles

Development of the sickle cell outcome grading system (SCOGS), a novel classification system for sickle cell disease severity

Blood (2025) 146 (Supplement 1): 2942.

https://doi.org/10.1182/blood-2025-2942

Published: 2025

Journal Articles

Hydroxyurea Dosing in Very Young Children with Sickle Cell Anemia: A Multicenter, Randomized, Controlled Trial (HUGKISS)

Meghna Dua, Winfred C. Wang, R. Clark Brown, Melissa A. McNaull, Zora R. Rogers, Martha Barton, Jane Hankins, Jeffrey Gossett, Julie Richardson, Jerlym S. Porter, Guolian Kang, Jeremie H. Estepp

Blood (2022) 140 (Supplement 1): 445–446.

https://doi.org/10.1182/blood-2022-160485

Published: 2022

Journal Articles

Mortality in Adults with Sickle Cell Disease: Results from the Sickle Cell Disease Implementation Consortium (SCDIC) Registry

Franklin Njoku, Norma Pugh, Marsha Treadwell, Jeffrey A. Glassberg, Abdullah Kutlar, Robert Gibson, Nirmish Shah, Victor R. Gordeuk, Lewis L. Hsu, Jane Hankins, Allison A. King, Julie Kanter

Blood (2022) 140 (Supplement 1): 2586–2588.

https://doi.org/10.1182/blood-2022-168856

Published: 2022

Journal Articles

Baseline Patient and Provider Reports of Quality of Care and Confidence Providing ED Management of Vaso-Occlusive Episodes

Paula Tanabe, Jane Hankins, Robert Gibson, Victor R. Gordeuk, Cathy L Melvin, Liliana Preiss, Lauren Siewny, Lynne Richardson, Marsha Treadwell, Allison A. King

Blood (2022) 140 (Supplement 1): 2570–2571.

https://doi.org/10.1182/blood-2022-158016

Published: 2022

Journal Articles

Patient-Reported Outcomes Are Significantly Worse in Adults with Sickle Cell Disease Who Have Chronic Pain Compared to Those Who Do Not

Lana Mucalo, Jane Hankins, Janelle Highland, Hamda Khan, Ashima Singh, Amanda M. Brandow

Blood (2022) 140 (Supplement 1): 11137–11138.

https://doi.org/10.1182/blood-2022-167148

Published: 2022

Journal Articles

Comprehensive Nutrition Assessment in Adults with Sickle Cell Disease Using the Dietary Inflammatory Index and Healthy Eating Index

Lana Mucalo, Jane Hankins, Janelle Highland, Hamda Khan, Ashima Singh, Amanda M. Brandow

Blood (2022) 140 (Supplement 1): 11112–11113.

https://doi.org/10.1182/blood-2022-170461

Published: 2022

Journal Articles

Treatment of Individuals with Severe Sickle Cell Disease with OTQ923, an Autologous, Ex Vivo , CRISPR/Cas9-Edited, CD34+ Hematopoietic Stem and Progenitor Cell Product, Leads to Durable Engraftment and Fetal Hemoglobin Induction

Akshay Sharma, Jaap Jan Boelens, Maria I. Cancio, Jane Hankins, Prafulla A Bhad, Andrew Lewandowski, Xiaojun Zhao, Shripad Chitnis, Radhika Peddinti, Yan Zheng, Neena Kapoor, Fabio Ciceri, Jianping Yuan, Vionnie W. Yu, Susan C. Stevenson, Serena De Vita, James LaBelle

Blood (2022) 140 (Supplement 1): 1906–1908.

https://doi.org/10.1182/blood-2022-166254

Published: 2022

Journal Articles

Efficacy of Interventions to Build Transition Readiness for Youth with Sickle Cell Disease: A 13-Year Evaluation of a Healthcare Transition Program

Melissa Azul, Tarun D Aurora, Shiela Anderson, Andrew M Heitzer, Jennifer Longoria, Martha Barton, Yunusa Olufadi, Guolian Kang, Ana Baumann, Jerlym S. Porter, Jane Hankins

Blood (2022) 140 (Supplement 1): 5139–5141.

https://doi.org/10.1182/blood-2022-169235

Published: 2022

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Feasibility of impementing pre-marital genetic counseling in kano, northern Nigeria using the cfir-eric model

Application and challenges of the sickle cell outcome grading system (SCOGS) for classifying acute chest syndrome severity

Healthcare transition readiness for sickle cell disease: A high- and low- income comparative analysis

Building healthcare professional capacity in sickle cell disease through a global case-based discussion program

Budget impact analysis for sickle cell disease point-of-care testing in Mozambique

Tailoring pediatric to adult care transition from high to low-resource settings: A user-centered design approach

Machine learning replicates and extends clinician-informed disease severity grading classification for acute pain and CKD in sickle cell disease

Assessing replicability in chronic kidney disease severity scoring classifications using the sickle cell outcome grading system

Psychometric evaluation of the self-management skills checklist across Brazil and the United States: Toward global measurement of transition readiness in sickle cell disease

Clinical and laboratory findings in adults with sickle cell disease which increase risk for severe acute chest syndrome

Single-cell analysis reveals distinct γ-globin expression profiles in sickle cell disease with pancellular fetal hemoglobin

Barriers to continuity of care and adult practice retention among adolescents and young adults with sickle cell disease

Development of the sickle cell outcome grading system (SCOGS), a novel classification system for sickle cell disease severity

Hydroxyurea Dosing in Very Young Children with Sickle Cell Anemia: A Multicenter, Randomized, Controlled Trial (HUGKISS)

Mortality in Adults with Sickle Cell Disease: Results from the Sickle Cell Disease Implementation Consortium (SCDIC) Registry

Baseline Patient and Provider Reports of Quality of Care and Confidence Providing ED Management of Vaso-Occlusive Episodes

Patient-Reported Outcomes Are Significantly Worse in Adults with Sickle Cell Disease Who Have Chronic Pain Compared to Those Who Do Not

Comprehensive Nutrition Assessment in Adults with Sickle Cell Disease Using the Dietary Inflammatory Index and Healthy Eating Index

Treatment of Individuals with Severe Sickle Cell Disease with OTQ923, an Autologous, Ex Vivo , CRISPR/Cas9-Edited, CD34+ Hematopoietic Stem and Progenitor Cell Product, Leads to Durable Engraftment and Fetal Hemoglobin Induction

Efficacy of Interventions to Build Transition Readiness for Youth with Sickle Cell Disease: A 13-Year Evaluation of a Healthcare Transition Program

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American Society of Hematology

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