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Journal Articles

Voxelotor Therapy Reduces Whole Blood Adhesion to VCAM-1 and P-Selectin, and Shows Modest Improvements in Self-Reported Pain in a Real-World Clinical Setting in a Multi-Center Retrospective Analysis

Aliya U. Zaidi, Xiufeng U. Gao, Jennell U. White, Lanetta Bronté-Hall, Alex Glaros, Andrew D. Campbell, Olufunke Y. Martin, Sharon Pennington, Ofelia A. Alvarez, Indryas L. Woldie, Nnamdi Okeke, Patrick C. Hines

Blood (2024) 144 (Supplement 1): 2305.

https://doi.org/10.1182/blood-2024-212284

Published: 2024

Journal Articles

Further Validation of Flow Adhesion of Whole Blood to P-Selectin (FA-WB-PSEL) to Assess Targeted P-Selectin Therapies in Sickle Cell Disease (SCD)

Jennell U. White, Xiufeng Gao, Kerry Bellemare, Gershwin Theophilus Blyden, Lanetta Bronté-Hall, Alexander K Glaros, Andrew D. Campbell, Olufunke Y. Martin, Sharon Pennington, Ofelia A. Alvarez, Indryas L. Woldie, Nnamdi Okeke, Patrick C. Hines

Blood (2024) 144 (Supplement 1): 3875.

https://doi.org/10.1182/blood-2024-212193

Published: 2024

Journal Articles

Improving the Care of Adults with Sickle Cell Disease in a Large Tertiary Hospital Emergency Department By Incorporating Patients' and Providers' Feedback

Chong Bin He, Dan Pham, Rachel S. Kronenfeld, Azaria Lewis, Thomas Harrington, Lilly Lee, Hector Chavez, Brent Rogers, Emily Brauer, Maya Bloomberg, Ofelia A. Alvarez

Blood (2024) 144 (Supplement 1): 7525.

https://doi.org/10.1182/blood-2024-200451

Published: 2024

Journal Articles

Successful Use of Therapeutic Plasma Exchange Following Red Blood Cell Exchange for Severe Acute Chest Syndrome: A Single Institution Experience

Rachel S. Kronenfeld, Veronica Nunez, Miriam Duque Cuartas, Nancy El Beayni, Thomas J. Harrington, Yanyun Wu, Ofelia A. Alvarez

Blood (2023) 142 (Supplement 1): 5567.

https://doi.org/10.1182/blood-2023-173827

Published: 2023

Journal Articles

Real-World Implementation of Sickle Cell Transition Programs As Part of a State Quality Improvement Network

Ofelia A. Alvarez, Carrie Gann, Debbie Ringdahl, Manisha Bansal, Farranaz Alvarez-Nunez, William Slayton, Reema Kashif, Tung Wynn, Elizabeth Bradley, Kathryn Diener, Katrina Rivers, Sherry Buchman, Angela Chatfield, Monica Heldreth, Virginia Crowe, Sue Butts-Dion

Blood (2023) 142 (Supplement 1): 249.

https://doi.org/10.1182/blood-2023-173886

Published: 2023

Journal Articles

Grndad and Disease Modifying Therapy (DMT): Shifts in Dmt Are Seen at the Adolescent/Young Adult Transition in Sickle Cell Disease in a Multi-Site Prospective Registry

Blood (2023) 142 (Supplement 1): 798.

https://doi.org/10.1182/blood-2023-174930

Published: 2023

Journal Articles

Real-World Effectiveness of Voxelotor for the Treatment of Sickle Cell Disease: Group and Pediatric Subgroup Analyses of Effects on Transfusions, Vaso-Occlusive Crises, and Hospitalizations

Nirmish Shah, Thokozeni Lipato, Thomas E. Delea, Alexander Lonshteyn, Derek Weycker, Andy Nguyen, Anne Beaubrun, Ofelia A. Alvarez

Blood (2022) 140 (Supplement 1): 1954–1956.

https://doi.org/10.1182/blood-2022-169536

Published: 2022

Journal Articles

Successful Quality Improvement Projects to Maximize Prescription Rates and Acceptance of Hydroxyurea Among Patients with Sickle Cell Anemia

Ofelia A. Alvarez, Sandra Echenique, E. Leila Jerome Clay, Hector Rodriguez-Cortes, Thomas J. Harrington, Mildred E Berry, Mary Murph, Christopher Wells, Cheryl Courtlandt, Laura Noonan

Blood (2021) 138 (Supplement 1): 2983.

https://doi.org/10.1182/blood-2021-149177

Published: 2021

Journal Articles

First Year Comparison of Sickle Cell Pediatric Cohorts from Haiti and Miami (CSHSCD Multicenter Study): Baseline Data

Ofelia A. Alvarez, Nora St Victor Dely, Michele Paul-Hanna, Alejandro Mantero, Rony Saint Fleur, Tally Hustace, Emanise Muscadin, Paulonne Bien-Aime, Woodgina Mondesir, Mimose Voltaire, Ronald Eveillard, Eric R. Brown, Louis Herns Marcelin, Emmeline Lerebours

Blood (2021) 138 (Supplement 1): 2042.

https://doi.org/10.1182/blood-2021-148227

Published: 2021

Journal Articles

Real-World Experience of Voxelotor for the Management of Complications in Sickle Cell Disease

Nirmish Shah, Thokozeni Lipato, Ofelia A. Alvarez, Thomas Delea, Alexander Lonshteyn, Derek Weycker, Andy Nguyen, Anne Beaubrun, Irene Agodoa

Blood (2021) 138 (Supplement 1): 2052.

https://doi.org/10.1182/blood-2021-153138

Published: 2021

Journal Articles

Comparative Study of Haiti and Miami Cohorts of Sickle Cell Disease (CSHSCD): Methods, Accomplishments, and Implementation

Ofelia A. Alvarez, Tally Hustace, Emmeline Lerebours, Nora St Victor Dely, Rony Saint Fleur, Emanise Muscadin, Ulrick Liberus, Paulonne Bien-Aime, Alejandro Mantero, Eric R. Brown, Louis Herns Marcelin, Ronald Eveillard, Michele Paul-Hanna, Nelly Campo, Iszet Campo-Bustillo, Jose Romano

Blood (2021) 138 (Supplement 1): 4054.

https://doi.org/10.1182/blood-2021-149145

Published: 2021

Journal Articles

Real-World Effectiveness of Voxelotor for Treating Sickle Cell Disease in the US

Ahmar Urooj Zaidi, MD, Thokozeni Lipato, MD, Ofelia A. Alvarez, MD, Alexander Lonshteyn, PhD, Derek Weycker, PhD, Nhat Pham, Thomas E Delea, MSIA, Irene Agodoa, MD, Ze Cong, PhD, Nirmish Shah, MD

Blood (2020) 136 (Supplement 1): 25.

https://doi.org/10.1182/blood-2020-140525

Published: 2020

Journal Articles

Development of a Low-Cost Electrical Impedance-Based Microflow Cytometer

Darryl Dieujuste, BS,MS, Jia Liu, E. Du, PhD, Ofelia A. Alvarez, MD

Blood (2019) 134 (Supplement_1): 4665.

https://doi.org/10.1182/blood-2019-129068

Published: 2019

Journal Articles

Patient Perception on Health Care Delivery for Sickle Cell Disease and Opportunities for Quality Improvement

Ofelia A. Alvarez, MD, Sandra Echenique, Hector Rodriguez-Cortes, MD, Thomas J. Harrington, MD, E. Leila Jerome Clay, MD MCTS, FAAP, Vandy Black, MDMSc, Mary Murph, Christopher Wells, Ifeyinwa (ify) Osunkwo, MDMPH

Blood (2019) 134 (Supplement_1): 5862.

https://doi.org/10.1182/blood-2019-123215

Published: 2019

Journal Articles

Comparison of Clinical Evolution of Children with Sickle Cell Disease before and after Treatment with Hydroxyurea at Saint Damien Hospital, Tabarre-Haiti,2013-2018

Nora St Victor Dély, MD, Ofelia A. Alvarez, MD, Vanessa J Dor, MD, Emmeline Lerebours, MD

Blood (2019) 134 (Supplement_1): 2306.

https://doi.org/10.1182/blood-2019-124105

Published: 2019

Journal Articles

Role of Point-of-Care Device in Improving Sickle Cell Newborn Screening Feasibility in Haiti

Ofelia A. Alvarez, MD, Tally Hustace, ARNP, Mimose Voltaire, RN, Rodrigueson Rizil, Ulrick Liberus, Rony Saint Fleur, MD

Blood (2018) 132 (Supplement 1): 3670.

https://doi.org/10.1182/blood-2018-99-115384

Published: 2018

Journal Articles

Optimal Hemoglobin Level for Pediatric Sickle Cell Patients Who Undergo Adenotonsillectomy

Zhongbo Hu, MD PhD, Simone Megan Chang, MD, Ramzi Younis, MD, Ofelia A. Alvarez, MD

Blood (2018) 132 (Supplement 1): 4938.

https://doi.org/10.1182/blood-2018-99-119452

Published: 2018

Journal Articles

SUSTAIN: A Multicenter, Randomized, Placebo-Controlled, Double-Blind, 12-Month Study to Assess Safety and Efficacy of SelG1 with or without Hydroxyurea Therapy in Sickle Cell Disease Patients with Sickle Cell-Related Pain Crises

Kenneth I. Ataga, MD, Abdullah Kutlar, MD, Julie Kanter, MD, Darla Liles, MD, Rodolfo Cancado, MD, PhD, João Friedrisch, MD PhD, Troy H. Guthrie, MD, Jennifer Knight-Madden, MBBS, PhD, Ofelia A. Alvarez, MD, Victor R. Gordeuk, MD, Sandra Gualandro, MD PhD, Marina Pereira Collela, MD PhD, Wally R. Smith, MD, Scott A. Rollins, PhD, Jonathan W. Stocker, PhD, Russell P. Rother, PhD

Blood (2016) 128 (22): 1.

https://doi.org/10.1182/blood.V128.22.1.1

Published: 2016

Journal Articles

Genetic Modifiers Influencing the Development of Albuminuria in Children with Sickle Cell Anemia

Beverly A Schaefer, MD, Jonathan M Flanagan, PhD, Banu Aygun, MD, Ofelia A. Alvarez, MD, Stephen C Nelson, MD, Kerri A Nottage, MD MPH, Carla W Roberts, MD, Thad A. Howard, MS, Barry R Davis, MDPhD, Russell E. Ware, MD PhD

Blood (2015) 126 (23): 3393.

https://doi.org/10.1182/blood.V126.23.3393.3393

Published: 2015

Journal Articles

TCD with Transfusions Changing to Hydroxyurea (TWiTCH): Hydroxyurea Therapy As an Alternative to Transfusions for Primary Stroke Prevention in Children with Sickle Cell Anemia

Russell E. Ware, MD PhD, Barry R Davis, MD PhD, William H Schultz, MHS PA, Clark Brown, MD PhD, Banu Aygun, MD, Sharada A. Sarnaik, MD, Isaac Odame, MD, Beng Fuh, MD, Alex George, MD, PhD, William Owen, MD, Lori Luchtman-Jones, MD, Zora R. Rogers, MD, Lee Hilliard, MD, Cynthia Gauger, MD, Connie M. Piccone, MD, Margaret T. Lee, MD, Janet Kwiatkowski, MD, Sherron Jackson, MD, Scott T. Miller, MD, Carla W Roberts, MD, Matthew M. Heeney, MD FRCP(C), Theodosia A. Kalfa, MD PhD, Stephen C Nelson, MD, Hamayun Imran, MD, Kerri A Nottage, MD MPH, Ofelia A. Alvarez, MD, Melissa Rhodes, MD, Alexis A. Thompson, MD, Jennifer Rothman, MD, Kathleen J. Helton, MD, Donna Roberts, MD, Jamie Coleman, MD, Melanie J Bonner, PhD, Abdullah Kutlar, MD, Niren Patel, MD, John C Wood, MD PhD, Linda Piller, MD, Peng Wei, PhD, Judy Luden, CCRP, Nicole A. Mortier, MHS, PA-C, Susan Stuber, MA, Naomi L.C. Luban, MD, Alan R. Cohen, MD, Sara L Pressel, MS, Robert J. Adams, MD MS

Blood (2015) 126 (23): 3.

https://doi.org/10.1182/blood.V126.23.3.3

Published: 2015

NARROW

Voxelotor Therapy Reduces Whole Blood Adhesion to VCAM-1 and P-Selectin, and Shows Modest Improvements in Self-Reported Pain in a Real-World Clinical Setting in a Multi-Center Retrospective Analysis

Further Validation of Flow Adhesion of Whole Blood to P-Selectin (FA-WB-PSEL) to Assess Targeted P-Selectin Therapies in Sickle Cell Disease (SCD)

Improving the Care of Adults with Sickle Cell Disease in a Large Tertiary Hospital Emergency Department By Incorporating Patients' and Providers' Feedback

Successful Use of Therapeutic Plasma Exchange Following Red Blood Cell Exchange for Severe Acute Chest Syndrome: A Single Institution Experience

Real-World Implementation of Sickle Cell Transition Programs As Part of a State Quality Improvement Network

Grndad and Disease Modifying Therapy (DMT): Shifts in Dmt Are Seen at the Adolescent/Young Adult Transition in Sickle Cell Disease in a Multi-Site Prospective Registry

Real-World Effectiveness of Voxelotor for the Treatment of Sickle Cell Disease: Group and Pediatric Subgroup Analyses of Effects on Transfusions, Vaso-Occlusive Crises, and Hospitalizations

Successful Quality Improvement Projects to Maximize Prescription Rates and Acceptance of Hydroxyurea Among Patients with Sickle Cell Anemia

First Year Comparison of Sickle Cell Pediatric Cohorts from Haiti and Miami (CSHSCD Multicenter Study): Baseline Data

Real-World Experience of Voxelotor for the Management of Complications in Sickle Cell Disease

Comparative Study of Haiti and Miami Cohorts of Sickle Cell Disease (CSHSCD): Methods, Accomplishments, and Implementation

Real-World Effectiveness of Voxelotor for Treating Sickle Cell Disease in the US

Development of a Low-Cost Electrical Impedance-Based Microflow Cytometer

Patient Perception on Health Care Delivery for Sickle Cell Disease and Opportunities for Quality Improvement

Comparison of Clinical Evolution of Children with Sickle Cell Disease before and after Treatment with Hydroxyurea at Saint Damien Hospital, Tabarre-Haiti,2013-2018

Role of Point-of-Care Device in Improving Sickle Cell Newborn Screening Feasibility in Haiti

Optimal Hemoglobin Level for Pediatric Sickle Cell Patients Who Undergo Adenotonsillectomy

SUSTAIN: A Multicenter, Randomized, Placebo-Controlled, Double-Blind, 12-Month Study to Assess Safety and Efficacy of SelG1 with or without Hydroxyurea Therapy in Sickle Cell Disease Patients with Sickle Cell-Related Pain Crises

Genetic Modifiers Influencing the Development of Albuminuria in Children with Sickle Cell Anemia

TCD with Transfusions Changing to Hydroxyurea (TWiTCH): Hydroxyurea Therapy As an Alternative to Transfusions for Primary Stroke Prevention in Children with Sickle Cell Anemia

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American Society of Hematology

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