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Journal Articles

Community Survey of Knowledge of Thalassemia

Jin Mei, BA, Robert Yamashita, PhD, Ashutosh Lal, MD, Nancy F. Olivieri, MD, Elliott Vichinsky, MD

Blood (2017) 130 (Supplement 1): 5580.

https://doi.org/10.1182/blood.V130.Suppl_1.5580.5580

Published: 2017

Journal Articles

Hepcidin is suppressed by erythropoiesis in hemoglobin E β-thalassemia and β-thalassemia trait

Emma Jones, Sant-Rayn Pasricha, Angela Allen, Patricia Evans, Chris A. Fisher, Katherine Wray, Anuja Premawardhena, Dyananda Bandara, Ashok Perera, Craig Webster, Pamela Sturges, Nancy F. Olivieri, Timothy St. Pierre, Andrew E. Armitage, John B. Porter, David J. Weatherall, Hal Drakesmith

Blood (2015) 125 (5): 873–880.

https://doi.org/10.1182/blood-2014-10-606491

Published: 2015

Includes: Supplemental data

Journal Articles

Assessment Of Non-Transfusional Iron Accumulation In Asian Patients With Hemoglobin E β Thalassemia

Tim G St Pierre, PhD, John Porter, MD, Angela Allen, PhD, Ashok Perera, MD, Dayananda Bandara, MD, A.B. Karunawathi, Anuja Premawardhena, MD, David J Weatherall, FRS, Nancy F Olivieri, MD

Blood (2013) 122 (21): 2262.

https://doi.org/10.1182/blood.V122.21.2262.2262

Published: 2013

Journal Articles

Cardiopulmonary and Laboratory Profiling of Patients with Thalassemia At Risk for Pulmonary Hypertension: Report From the Thalassemia Clinical Research Network.

Claudia R. Morris, MD, Hae-Young Kim, DrPH, John C Wood, MD, Ph.D, Felicia Trachtenberg, PhD, Elizabeth S Klings, MD, John B. Porter, MD, Nancy Sweeters, RN, PNP, Nancy F Olivieri, MD, Janet L. Kwiatkowski, MD, Sylvia Titi Singer, MD, Ali T Taher, MD, Ellis J. Neufeld, MD, PhD, Alexis A. Thompson, MD, MPH, Sandra K Larkin, MS, Jung H Suh, PhD, Elliott Vichinsky, MD, Frans A Kuypers, PhD

Blood (2012) 120 (21): 2122.

https://doi.org/10.1182/blood.V120.21.2122.2122

Published: 2012

Journal Articles

Sildenafil Therapy in Patients with Thalassemia and an Elevated Tricuspid Regurgitant Jet Velocity (TRV) On Doppler Echocardiography At Risk for Pulmonary Hypertension: Report From the Thalassemia Clinical Research Network

Claudia R. Morris, MD, Hae-Young Kim, DrPH, John C Wood, MD, Felicia Trachtenberg, PhD, Elizabeth S Klings, MD, John B. Porter, MD, Nancy Sweeters, RN, PNP, Nancy F Olivieri, MD, Janet L. Kwiatkowski, MD, Sylvia Titi Singer, MD, Ali T Taher, MD, Ellis J. Neufeld, MD, PhD, Alexis A. Thompson, MD, MPH, Vandana Sachdev, M.D., Sandra K Larkin, MS, Jung H Suh, PhD, Frans A Kuypers, PhD, Elliott Vichinsky, MD

Blood (2012) 120 (21): 1023.

https://doi.org/10.1182/blood.V120.21.1023.1023

Published: 2012

Journal Articles

Chelation use and iron burden in North American and British thalassemia patients: a report from the Thalassemia Longitudinal Cohort

Janet L. Kwiatkowski, Hae-Young Kim, Alexis A. Thompson, Charles T. Quinn, Brigitta U. Mueller, Isaac Odame, Patricia J. Giardina, Elliott P. Vichinsky, Jeanne M. Boudreaux, Alan R. Cohen, John B. Porter, Thomas Coates, Nancy F. Olivieri, Ellis J. Neufeld, for the Thalassemia Clinical Research Network

Blood (2012) 119 (12): 2746–2753.

https://doi.org/10.1182/blood-2011-04-344507

Published: 2012

Includes: Supplemental data

Journal Articles

Risk factors and mortality associated with an elevated tricuspid regurgitant jet velocity measured by Doppler-echocardiography in thalassemia: a Thalassemia Clinical Research Network report

Claudia R. Morris, Hae-Young Kim, Felicia Trachtenberg, John Wood, Charles T. Quinn, Nancy Sweeters, Janet L. Kwiatkowski, Alexis A. Thompson, Patricia J. Giardina, Jeanne Boudreaux, Nancy F. Olivieri, John B. Porter, Ellis J. Neufeld, Elliott P. Vichinsky

Blood (2011) 118 (14): 3794–3802.

https://doi.org/10.1182/blood-2010-11-319152

Published: 2011

Journal Articles

A pilot study of subcutaneous decitabine in β-thalassemia intermedia

Nancy F. Olivieri, Yogen Saunthararajah, Vivek Thayalasuthan, Janet Kwiatkowski, Russell E. Ware, Frans A. Kuypers, Hae-Young Kim, Felicia L. Trachtenberg, Elliott P. Vichinsky, for the Thalassemia Clinical Research Network

Blood (2011) 118 (10): 2708–2711.

https://doi.org/10.1182/blood-2011-03-341909

Published: 2011

Includes: Supplemental data

Journal Articles

Rates of Non-Transfusional Iron Accumulation (NTIA) In Hemoglobin E Thalassemia

Nancy F. Olivieri, MD, Vivekanandan Thayalasuthan, MD, Giulia Muraca, MPH, David J Weatherall, FRS, Cecilia Kim, BSc, Anuja Premawardhena, MD, Ashok Perera, MD, Angela O'Donnell, PhD, Timothy St. Pierre, PhD

Blood (2010) 116 (21): 5147.

https://doi.org/10.1182/blood.V116.21.5147.5147

Published: 2010

Journal Articles

A Pilot Study of Epigenetic-Differentiation Therapy with Decitabine to Treat β-Thalassemia Intermedia

Nancy F Olivieri, MD, Yogenthiran Saunthararajah, MD, Vivekanandan Thayalasuthan, MD, Janet Kwiatkowski, MD, Russell E. Ware, MD, PhD, Franz Kuypers, PhD, Hae-Young Kim, DrPH, Elliott P Vichinsky, MD

Blood (2010) 116 (21): 2078.

https://doi.org/10.1182/blood.V116.21.2078.2078

Published: 2010

Journal Articles

Phenomenon of Pain In Thalassemia: A Prospective Analysis by the Thalassemia Clinical Research Network (TCRN)

Blood (2010) 116 (21): 256.

https://doi.org/10.1182/blood.V116.21.256.256

Published: 2010

Journal Articles

Chelation Choices and Iron Burden Among Patients with Thalassemia in the 21st Century: a Report From the Thalassemia Clinical Research Network (TCRN) Longitudinal Cohort.

Janet L Kwiatkowski, MD, MSCE, Hae-Young Kim, MS, DrPh, Alexis A. Thompson, Charles T. Quinn, MD, MS, Brigitta U Mueller, Isaac Odame, MBChB, Patricia J Giardina, MD, Elliott P Vichinsky, MD, Jeanne Boudreaux, MD, John B Porter, Thomas Coates, Nancy F Olivieri, MD, Ellis J Neufeld, MD, PhD

Blood (2009) 114 (22): 4056.

https://doi.org/10.1182/blood.V114.22.4056.4056

Published: 2009

Journal Articles

Renal Dysfunction in Thalassemia.

Charles T Quinn, MD, MS, Valerie L Johnson, MD, PhD, Hae-Young Kim, MS, DrPh, Felicia Trachtenberg, PhD, Maria G Vogiatzi, MD, Janet L Kwiatkowski, MD, MSCE, Ellis J Neufeld, MD, PhD, Ellen Fung, PhD, RD, Nancy F Olivieri, MD, Melanie Kirby-Allen, MD, Patricia J Giardina, MD

Blood (2009) 114 (22): 2008.

https://doi.org/10.1182/blood.V114.22.2008.2008

Published: 2009

Journal Articles

Pulmonary Hypertension in Thalassemia Assessed by Echocardiography: A Report From Baseline Data of the Thalassemia Clinical Research Network Longitudinal Cohort Study.

Claudia R. Morris, MD, Hae-Young Kim, MS, DrPh, Felicia Trachtenberg, PhD, Charles T. Quinn, MD, MS, Nancy F Olivieri, MD, Nancy Sweeters, RN, PNP, Patricia J Giardina, MD, Janet L Kwiatkowski, MD, MSCE, Alexis A. Thompson, MD, Jeanne Boudreaux, MD, Ellis J Neufeld, MD, PhD, Elliott P Vichinsky, MD

Blood (2009) 114 (22): 2016.

https://doi.org/10.1182/blood.V114.22.2016.2016

Published: 2009

Journal Articles

Hemoglobin H-Constant Spring in North America: A Common Alpha Thalassemia with Frequent Complications.

Titi Singer, Hae-Young Kim, Nancy F Olivieri, Janet Kwiatkowski, Ashutosh Lal, Thomas D. Coates, Susan Carson, Melody J. Cunningham, Patricia J Giardina, Brigitta U Mueller, Charles Quinn, Elliott Vichinsky, Thalassemia Clinical Research Network

Blood (2008) 112 (11): 1880.

https://doi.org/10.1182/blood.V112.11.1880.1880

Published: 2008

Journal Articles

Body Composition and Its Relationship to Growth and Bone Mass in Patients with Thalassemia

Ellen Fung, PhD, Yan Xu, PhD, Janet Kwiatkowski, MD, Sylvia Titi Singer, MD, Ashutosh Lal, Maria G Vogiatzi, Nancy F. Olivieri, MD, Ellis J. Neufeld, Elliott Vichinsky, MD, Patricia Giardina, MD

Blood (2008) 112 (11): 3890.

https://doi.org/10.1182/blood.V112.11.3890.3890

Published: 2008

Journal Articles

Increased Nucleosomal DNA Fragmentation in Leukocytes of Thalassemia Patients.

Patrick B Walter, PhD, John B Porter, MD, Patricia Evans, PhD, Janet Kwiatkowski, MD, Ellis J. Neufeld, MD, PhD, Thomas D. Coates, MD, Patricia Giardina, MD, Robert jW Grady, PhD, Elliott Vichinsky, MD, Nancy F. Olivieri, MD, Felicia Trachtenberg, PhD, Daniele Alberti, MD, Ellen Fung, PhD, Bruce Ames, PhD, Annie Lui, BS, Paul Harmatz, MD

Blood (2008) 112 (11): 1868.

https://doi.org/10.1182/blood.V112.11.1868.1868

Published: 2008

Journal Articles

Leukocyte Apoptosis and Mitochondrial Dysfunction in β-Thalassemia Patients Treated with Deferasirox or Deferoxamine.

Patrick B. Walter, PhD, John Porter, MD, Patricia Evans, PhD, Janet L. Kwiatkowski, MD, Ellis J. Neufeld, MD, Thomas Coates, MD, Patricia J. Giardina, MD, Robert W. Grady, PhD, Elliott Vichinsky, MD, Nancy F. Olivieri, MD, Felicia Trachtenberg, PhD, Daniele Alberti, MD, Jaymes Holland, PhD, Ellen Fung, PhD, Bruce Ames, PhD, Annie Lui, BS, Paul Harmatz, MD

Blood (2007) 110 (11): 2773.

https://doi.org/10.1182/blood.V110.11.2773.2773

Published: 2007

Journal Articles

Safety and Efficacy of Peginterferon Alfa-2a and Ribavirin for Hepatitis C in Thalassemia.

Paul Harmatz, MD, Nancy F. Olivieri, MD, Janet Kwiatkowski, MD, Elliott Vichinsky, MD, Patricia Giardina, MD, Farrukh Shah, MD, Elizabeth C. Wright, PhD, Roland Fischer, PhD, Maureen M. Jonas, MD

Blood (2006) 108 (11): 558.

https://doi.org/10.1182/blood.V108.11.558.558

Published: 2006

Journal Articles

Red Blood Cell Allo and Autoantibody Production in Patients in the Thalassemia Clinical Research Network.

Melody J. Cunningham, MD, Eric A. Macklin, PhD, Sylvia T. Singer, MD, Catherine S. Manno, MD, Patricia J. Giardina, MD, Nancy F. Olivieri, MD, Alexis A. Thompson, MD

Blood (2005) 106 (11): 1890.

https://doi.org/10.1182/blood.V106.11.1890.1890

Published: 2005

NARROW

Community Survey of Knowledge of Thalassemia

Hepcidin is suppressed by erythropoiesis in hemoglobin E β-thalassemia and β-thalassemia trait

Assessment Of Non-Transfusional Iron Accumulation In Asian Patients With Hemoglobin E β Thalassemia

Cardiopulmonary and Laboratory Profiling of Patients with Thalassemia At Risk for Pulmonary Hypertension: Report From the Thalassemia Clinical Research Network.

Sildenafil Therapy in Patients with Thalassemia and an Elevated Tricuspid Regurgitant Jet Velocity (TRV) On Doppler Echocardiography At Risk for Pulmonary Hypertension: Report From the Thalassemia Clinical Research Network

Chelation use and iron burden in North American and British thalassemia patients: a report from the Thalassemia Longitudinal Cohort

Risk factors and mortality associated with an elevated tricuspid regurgitant jet velocity measured by Doppler-echocardiography in thalassemia: a Thalassemia Clinical Research Network report

A pilot study of subcutaneous decitabine in β-thalassemia intermedia

Rates of Non-Transfusional Iron Accumulation (NTIA) In Hemoglobin E Thalassemia

A Pilot Study of Epigenetic-Differentiation Therapy with Decitabine to Treat β-Thalassemia Intermedia

Phenomenon of Pain In Thalassemia: A Prospective Analysis by the Thalassemia Clinical Research Network (TCRN)

Chelation Choices and Iron Burden Among Patients with Thalassemia in the 21st Century: a Report From the Thalassemia Clinical Research Network (TCRN) Longitudinal Cohort.

Renal Dysfunction in Thalassemia.

Pulmonary Hypertension in Thalassemia Assessed by Echocardiography: A Report From Baseline Data of the Thalassemia Clinical Research Network Longitudinal Cohort Study.

Hemoglobin H-Constant Spring in North America: A Common Alpha Thalassemia with Frequent Complications.

Body Composition and Its Relationship to Growth and Bone Mass in Patients with Thalassemia

Increased Nucleosomal DNA Fragmentation in Leukocytes of Thalassemia Patients.

Leukocyte Apoptosis and Mitochondrial Dysfunction in β-Thalassemia Patients Treated with Deferasirox or Deferoxamine.

Safety and Efficacy of Peginterferon Alfa-2a and Ribavirin for Hepatitis C in Thalassemia.

Red Blood Cell Allo and Autoantibody Production in Patients in the Thalassemia Clinical Research Network.

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American Society of Hematology

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American Society of Hematology

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